The People's Perspective on Medicine

Lyrica Side Effects & Withdrawal are Worrisome

Lyrica is prescribed for pain and fibromyalgia, but stopping the drug can result in a troublesome withdrawal syndrome.

Have you seen the ad blitz for Lyrica (pregabalin)? A LOT of money is being spent trying to convince the American public that Lyrica is the answer to diabetic nerve pain. One of the most compelling commercials stars a retired policeman:

“Hi, I’m Terry and I have diabetic nerve pain. I worked a patrol unit for 17 years in the city of Baltimore. When I first started experiencing the pain it’s hard to describe because you have a numbness but yet you have the pain like thousands of needles sticking in your foot.”

This sounds awful, and indeed people with diabetic neuropathy suffer terribly. Symptoms can include:

Symptoms of Diabetic Neuropathy

  • Burning, tingling or a feeling of needles sticking into your skin
  • Numbness in toes and feet; an inability to sense a needle prick; reduced sensitivity to temperature change
  • Difficulty walking because of numbness, pain or weakness
  • Intense stabbing jolts of pain, especially in the evening
  • Sexual dysfunction
  • Swallowing difficulties
  • Poor stomach emptying, leading to feelings of fullness and bloating
  • Bladder problems
  • Dizziness on standing

It’s hardly any wonder that patients with neuropathy and nerve pain would be looking for help. A commercial like the one with Terry, the retired Baltimore police officer, is very appealing. When Terry says the “pain started subsiding” after taking Lyrica, we imagine that lots of viewers might think that they too might benefit from this drug. Are they paying attention, though, when the voice-over announcer says:

“Lyrica is not for everyone. It may cause serious allergic reactions or suicidal thoughts or actions. Tell your doctor right away if you have these: new or worsening depression or unusual changes in mood or behavior, or swelling, trouble breathing, rash, hives, blisters, changes in eye sight including blurry vision, muscle pain with fever, tired feeling or skin sores from diabetes. Common side effects are dizziness, sleepiness, weight gain, and swelling of hands, legs and feet. Don’t drink alcohol while taking Lyrica. Don’t drive or use machinery until you know how Lyrica affects you.”

While you listen to the on-air announcer speed through this long list of complications you see Terry working in his backyard planting and watering pretty flowers. Somehow, the scary side effects seem less worrisome in such a bucolic setting.

Here are some real stories from our website to bring the side effects into focus:

This comes from LCB:

“I started taking Lyrica 10 days ago for RLS [restless leg syndrome] and fibromyalgia. I was taking gabapentin but it had stopped working. I gained 14 pounds on the gabapentin, and now I’ve gained 5 pounds more on the Lyrica. I have edema [fluid retention] as well. I’m sleepy for most of the day and I feel like I’m dragging my body around. I have no energy. My husband tells me I’m irritable with the kids, and that I can’t seem to remember things anymore.

“All of this is quite a drastic change from my usual energetic, tireless self. I don’t like how I feel, and to make the most important point: Lyrica doesn’t seem to help much. I still have tons of pain, and RLS at night. So, I have an appointment with my doctor to ask for a change. I believe that these medicines work very well on some people, but we are all so different. It doesn’t work for me.”

T.  had a very scary story to share:

“After almost eight years on Cymbalta, it had lost the effectiveness. My doctor added Lyrica to help with fibro. Soon after, I started to have a deep depression and wanted to end the pain that I have lived with for so long. The stress of life was so great, that I attempted suicide. I was put in the hospital for four days.

“At that point, no more meds! The symptoms are what everyone has described. I feel alone and lost in my own brain fog hell. Not one of my family has a clue what a nightmare this is.”

Kathy listed these complications:

“I was on the drug eight months for fibromyalgia prescribed by a rheumatologist. I, too, started having problems with eyesight (my eye doctor could NOT update my lenses due to Lyrica causing severe blurriness). I also had memory loss, anxiety, and trouble sleeping. I suffer from chronic constipation due to diverticulitis, and the Lyrica was making this worse. I weaned off over a three-week period. OMG! The withdrawal was/is terrible.

“I am 9 weeks into it, and still have terrible throbbing ongoing headaches, difficulty swallowing, and went from 134 lbs to 118! I feel like I’m dying most of the time. I went to my current neurologist today and was told there were no such symptoms from Lyrica withdrawal!

“Google it, doctor! Please, if anyone reading this is considering taking Lyrica, reconsider! If you have side effects like I did, then decide to go off; you may be looking at a long recovery and NO help from a doctor. They are all denying any problems with this medication. Please read the “Lyrica Withdrawal” posts first!”

Getting off drugs that affect the central nervous system can sometimes be challenging. As we mentioned recently with our post on Abilify, the track record of psychiatry and neurology has been abysmal when it comes to studying sudden withdrawal from commonly prescribed medications. It took years for researchers to discover that when patients suddenly stopped benzodiazepines such as alprazolam (Xanax), diazepam (Valium) or lorazepam (Ativan) they often experienced very unpleasant withdrawal symptoms. Ditto for antidepressants like citalopram (Celexa), duloxetine (Cymbalta), escitalopram (Lexapro), sertraline (Zoloft) and venlafaxine (Effexor).

The story of Lyrica (pregabalin) withdrawal is also murky. There is very little in the medical literature on this topic. The prescribing information does mention, though, that some patients report symptoms such as insomnia, nausea, headache, anxiety, sweating or diarrhea if they stop suddenly. The advice: taper the dose over at least a week rather that stopping suddenly. We fear that such information is not always that helpful, especially since there is not much practical information about actual dosage reduction.

Lyrica Side Effects

  • Vertigo, dizziness, unsteadiness, coordination problems, abnormal gait
  • Sleepiness, fatigue
  • Confusion, abnormal thinking, difficulty with attention and concentration, accidental injury
  • Dry mouth
  • Fluid retention in hands or feet, edema
  • Blurred vision, difficulty with eyesight
  • Weight gain
  • Constipation, gas
  • Pain
  • Skin reaction, rash, dermatitis (requires immediate medical attention!)
  • Depression, suicidal thoughts or actions
  • Muscle breakdown (rhabdomyolysis), tremor
  • Blood disorders
  • Withdrawal symptoms, discontinuation syndrome, seizures

We recognize that some people with hard-to-treat neuropathy or fibromyalgia may do quite well on Lyrica and not suffer side effects. That’s great. But some patients don’t get much benefit and do suffer complications. For them, Lyrica is not a blessing.

To learn about some other approaches to neuropathy, you may want to check these links about benfotiamine (link 1 and link 2) and alpha lipoic acid.

Please share your own story about Lyrica or your experience with neuropathy and what has worked for you below so others can benefit from your experience.

Rate this article
star-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-emptystar-fullstar-empty
3.5- 186 ratings
About the Author
Joe Graedon is a pharmacologist who has dedicated his career to making drug information understandable to consumers. His best-selling book, The People’s Pharmacy, was published in 1976 and led to a syndicated newspaper column, syndicated public radio show and web site. In 2006, Long Island University awarded him an honorary doctorate as “one of the country's leading drug experts for the consumer.” .
Get the latest health news right in your inbox

Join our daily email newsletter with breaking health news, prescription drug information, home remedies AND you'll get a copy of our brand new full-length health guide — for FREE!

Screenshots of The People's Pharmacy website on mobile devices of various sizes
Join over 150,000 Subscribers at The People's Pharmacy

We're empowering you to make wise decisions about your own health, by providing you with essential health information about both medical and alternative treatment options.

Showing
100
comments (564 total)
Comments
Add your comment

The terror, not nervousness, was scary. The dark urine with rancid smell was nasty. 5 days of not sleeping, unsteady gait,tremors,jerking limbs, severe vomiting, sweating,all thanks to 6 months of Lyrica and trying to quit.

I was put on lyrica 18 months ago for severe anxiety and social anxiety disorder. I was originally put on 75mg x2 daily. At first I thought this drug was amazing. My stomach anxiety disappeared, and I began socialising again, but my medication over the following months was upped to 200mg x2 daily, and I became withdrawn and avoided any kind of social event. I gained 3 stone in weight. I would stay in bed for days on end never washed or got dressed.

I managed to wean my self down to 100mg x2 daily, and 3 times I got down, with the doctor’s advice, slowly to 0 Lyrica per day. The withdrawal symptoms from this drug are horrendous. I only ever managed a couple of days off the drug, and I was back on it. Lyrica was turning me into a zombie. I hated myself. I was having suicidal thoughts. It stripped me of my whole identity. I needed to get off this drug.

I am currently coming off lycria but I am using codeine for the pain and diazepam to help me sleep. It is the only way I am ever going to get off this horrible drug. If I knew what was ahead of me I would have never have taken it. This drug is soul-destroying, and I find it crazy that a lot of GPs don’t know how horrid being on and coming off this drug is. If anyone is thinking of starting Lyrica I would say “NO. Don’t do it.”

Severe reaction to Lyrica. 4 months on it and currently 22 months off. Confirmed diagnosis related to Lyrica: small fiber neuropathy, sensory neuropathy, musculoskeletal on-going pain and weakness, despite 2 years of therapy. Also have stomach and colon ulcers and inflammation, short-term memory loss. None of this prior to taking the med. No underlying medical condition found to date. It was givien for a herniated disc. OMG, stay away from this drug.

I don’t see anyone on here talking about the price. I hate that my previous Dr. took me off very addictive drugs just to put me on a drug that costs me over $400 a month, makes me feel horrible, and will probably cause suicidal thoughts if I try to get off it. Gabapentin did cause suicidal thoughts. I went off a bunch of drugs. It was an opioid cold turkey because I was suicidal and had to be on an antidepressant. Lyrics is what they put me on. I can’t afford it but am scared to death to withdraw!

My doctor prescribed Lyrica for 1 month trial for Labyrinthitis-(constantly dizzy. Only when I lie down does my dizziness stops). I have now been on Lyrica for almost 2 weeks but my dizziness has worsened. I am sleepy and feel fatigued all day. I have been retaining fluid in feet, legs and hands, have a hard time concentrating. I didn’t weigh myself before I started Lyrica but I know I have gained weight. I feel it. I am also feeling depressed. I just wanted to share my experiences while taking Lyrica. It’s definitely not working in MY case.

Trying Lyrica withdrawal: On the first day I was irritable, hot, had a headache and pain everywhere. But I have to do it, as I’m getting fatter and fatter and almost starving to prevent weight gain. I have a family to feed and want to be in garden but can’t do it. I’m not giving in. I’m doing this. Have been poisoned and must do this.

I am 6 days Pregablin free…so I guess that means I am almost over the withdrawal! I wish I had never been put on it. It took me a while to figure out what was going on as I was very low, I had suicidal impulses (ooo look a bridge-lets jump off it), I cried a lot, I had no energy, my legs and arms stopped working and this was scary as I drive a lot for work, I got larger (and I eat crazy healthy) and overall it had a huge impact on my life. I was told to up my dose to 300mg morning and night…and things got worse-this is when it finally clicked that pregablin was not working for me! I was not told about how bad it can be for people and was not told how awful it was to come off it-so on advise from my doctor I did just stop! Now…the most worrying thing I think was that I looked online at the symptoms to figure out what was happening to me and realised that I was going through withdrawal symptoms and that I was actually very poorly…headaches, diohrea, hot and cold, flu like sypmtoms, didn’t sleep for 5 nights, no interest in ANYTHING! No concentration…sick…hungry and sick…hot…cold…pain! AGH!!!! I had no idea it was like this. I posted on some online groups and people being useful told me to go back on it…I didn’t as I figured I was over the worst by that part (so far I’m right but who knows).
I guess all I know is its horrible. I’m sure it has a use and I’m sure for some people its amazing…but it ruined me! I lost a lot of friends over the last year of my life…im starting to feel human and I slept last night which was lovely. I’m going to try running this evening but it still hurts to lie down (feels like people are pricking me all over) but this is nothing compared to the past week! Doctors need to tell people all about this drug before they take it!

If like me you have googled withdrawal and are wanting positive stories…I do want to say you can do it! I don’t know what life brings, or how long it lasts…but I do know I am starting to hear things I haven’t heard for ages…to dream again…to like cups of tea, to fidget….and I’m back in my size 12 clothes (not even a week after my last dose so that is some water retention right there)

I was om gabapentin from a psychiatrist who worked for Contra Costa County of Northern .California. He prescribed it as an off use-med that was originally for strokes or similar.It makes you fuzzy and sleepy.its been known to give you Edema.NOW they prescribe it for nerve pain, cause i have nerve damage in MY FEET.WELL,I got more info. from home-care givers of Oregon,and many of them say,by experience, gabapentin does nothing for nerve pain.

I also have fibromyalgia. I learned that A LOT OF FIBROMYALGIA is a damage of the brain;your brain is signaling “pain” when there is no hurt damage of the body,It is a NERVE-DAMAGE caused by an error of your BRAIN.MANY people especially women, who have bad fybromyalgia as adults, often had sexual abuse and/or physical abuse as kids and teens.–If you doubt this last,ask a whole lot of therapists;ask them how many of their abuse patients also have Fybromyalgia.–I did, and a lot of them said,”Yes, it often goes with the trauma of past abuse.We don’t know why.”Don’t take my word for it,look yourself.

I go to a chiropractor for my back,(works very well) and i found many chiropractors can affect the nerves in your limbs thru skilled manipulation.If you are typing too much on ‘puter, yes, it can affect the muscles and nerves in your arms.I had to take over care of my FEET for arthritis,)which a bone doctor could see forming in xrays of my feet(it got worse.cause i kept aggravating it by walk on feet.START LISTENING TO YOUR BODY.If it wants to not use the limb(like my feet)stay off it.I have to do that. I got tendonitis, it took years,and much ice,and not walking, to fix it.I also put ice on them to take down inflammation(got that about runners’ feet)or mild heat if that helps. Massage your toes and small arch,balls of feet, but not if its too sore.that helps cramping. I almost got put in a nursing home from not able to walk,I got a power-chair.–it kept me out.A lot of us self-damage a limb, and the nerves, cause we walk on feet when they hurt badly.–STOP HURTING YOURSELF. I am presently refusing to have a physical therapist continue at my home, cause I already walked all over the rehab, (I got pneumonia.)and my feet are very SORE. NOW I have to stay off them for some time—physical therapists don’t listen to you say”I got bad feet,bad inflammation, i have to stop walking on them.”–and let the inflammation heal up. Your ancestors would say”if your arm is broken,don’t use it.” If the medication does not work,and only gets more problems, stop taking it. And use your own judgement and common sense on what works for your pain. I did, and it helped me a lot.

I wish I had not been given that drug. It made my body pain or fibro worse. It also made me return to ultram 50mg 2x day. I had been weaning myself down to 25mg. But then caught flu virus, and something triggered severe nerve pain; went to hospital and given pregabalin. Now I want off of it. Stomach too bloated, feel feverish, mood is cranky, weight gain, a.m. headaches every morning. I am also weaning off of zopiclone. The pregabalin can be useful for initial sleep. Overall it did stop the pain in my armpit. Found out I have tendonitis and bursitis and waiting to see neurologist for nerve test. GP said h1n1 flu virus can attack nerves.

I’ve been on 150 mg Pregabalin 3 times a day for 18 months. This is prescribed by a consultant psychiatrist to help me get off diazepam. I was on 60 mg diazepam a day and have now tapered to 5mg. I’ve also been on Zopiclone which stopped 2 weeks ago and withdrawal from that is awful.
Reading all your experiences terrified me. Has anyone been able to taper slowly with no or minimal side effects? The psychiatrist tells me Prefabs are not in the same ballpark as Valium.
I’d love to hear any positive stories! Part of me thinks if you expect it to be awful it becomes a self-fulfilling prophecy. This is in no way to suggest anyone is not reporting genuinely experiences. I just think it would be helpful to counterbalance ‘,if’ there are people who have had a milder experience.

I was on Lyric for 3 months after spinal fusion surgery. You definitely have to be your own advocate regarding this particular drug. The doctors are not going to disclose the true horrific side affects that this drug does to your body while on it and while trying to wean off it. My entire world flipped upside down as soon as I tried to wean off the drug. I had diarrhea, nausea, headaches, chills, sweats, numbness in arms and hands, restlessness in all joints, fatigue, lethargy, dizziness, anxiety, depression, hopelessness, and more and this was all in the first week of trying to wean. Unfortunately it got worse before it started to calm down a bit.

This is a horrible horrible drug so please do not use it, if you don’t have to. I was using it for nerve pain, and while it took away some of the nerve pain, it actually increased my all-around pain. It was a lose-lose situation. I wish I would have known then but I had to research a lot to find out what was going on with me. I am completely off this drug by about 10 days but still have around 10 side affects. I stay strong in my faith and just keep praying every day that each day gets a bit better than the day before.

Prayers to all of you!

I’ve been taking Lyrica for fibromyalgia 2 years 150mg day. Started tapering after 2 months now and it’s living a new hell. I recommend nobody take this drug at all. Worst withdrawal symptoms I’ve ever experienced. I felt like I was dying.

To all who have written their stories here, it is hard to hear your troubles and what your individual experiences have been to get off this medication. I myself have Fibromyalgia, CRPS, and permanent nerve damage in both upper & lower extremities resulting from a variety of cirmstances over the years. It has been 20 years now on this medication at a dosage of 450mg daily.

I never experienced any of the side affects mentioned in the posts up until approximately 3 years ago when I started having severe edema in both lower limbs. I got a stat sonogram within 1/2 hour. Lucky it was not a DVT blood clot. My MD told me that day after the results that he did not think it was a DVT, rather he thought it was a reaction to the Lyrica. I thought to myself he doesn’t know what he is talking about since I was on this for 20 years without an issue. Well the dosage was reduced to what it is now, 150mg.

I take my meds at night when I get into bed so I do not experience issues some people have stated. I am not a diabetic, and I can’t really say what this stuff is doing for me if anything at all. I am also on Cymbalta 30 mg. Next month I see my pain management doctor and discuss getting off the Lyrica. The lowest dose of this med is 75 mg.

Wish you all the best and I’ll include myself as well. Unfortunately for me my nerve damage is widespread and permanent. I have a steady diet of pain relieving meds that I will not go into but will state the obvious which is the less you can get by with the better. Also, if you ask any doctor they will all say the same thing which is don’t Google the net for answers to your conditions, ask a qualified doctor.

Hi, All —

I have been on Lyrica for about five weeks at 50mg. 2x day. I am starting the weaning process today — I am skipping my first dose now. I had blurred vision, head full of marshmallow, forgetfulness, word loss, uncoordinated feeling, just felt poisoned by this drug. Wish me luck on the withdrawals, as it looks as though I will need it!! I hope that the Facebook page for Lyrica sufferers does start a class action against Pfizer — they should be held accountable for pushing this mess!

I just took Lyrica for the first time today. I have a fill-in doctor that almost took me off my oxycodone. She took me from 30 mg 4 x daily to 10 mg 2 x daily I switched Drs. They can’t change another doctor’s dosage so the new doctor added the Lyrica. Every time I get out of bed I can’t walk normally. I kind of run from one wall to another. I’m not thinking right. I’M JITTERY. I’LL NEVER TAKE ANOTHER ONE AFTER READING THESE ARTICLES. I’M SCARED TO DEATH RIGHT NOW AND DONT KNOW HOW LONG THIS IS GOING TO LAST. When will I get back to normal? This isn’t something that’s going to last long after just one pill.

I have been on Lyrica for four yrs. I’m trying to get off of it. I feel like bugs are all over me. And am dizzy when I stand. Headaches. Nausea. I took one in the morning and one at night 75mg. And now I am only taking one each morning. And it’s been one week so far. Next week I will take one every other day. This is what my doc. recommended. I feel horrible. If anyone knows of a better way please let me know. Praying I can get off this med. It’s a terrible drug.

I have been on Lyrica for a week now. No pain relief at all. But instead, my pains are getting worse, especially in the hands. Pain is worse at a rate of 3 times. My dr had started me on 50 mg three time a day and had said he would increase the dosage if 50 mg didn’t work. 50 mg is knocking me off my feet. I wonder if 100mg or 150 mg would leave me sensible. 7 days of suffering while on Lyrica is not worth giving it a try. Gabapentin didn’t work on me either.

For 10 years, I took Tramadol for my Neuropathy. I had my symptoms under control, and was able to sleep at night with the help on an OTC sleep aid. As my pain got worse Gabapentin was added to the mix.

I only took one Tramadol and usually one Gabapentin a night. THEN, I moved to another state and the NP wouldn’t give me Tramadol, instead increasing Gabapentin to 4 @ day.

It’s not working, and I have gained 40 pounds. Ten days ago, she prescribed Lyrcia. It also doesn’t give me relief. I’m thinking about going off everything. I have to work on losing my weight gain.

I’ve been on lyrica for quite some time. My pain is chronic and has been going on for 18yrs & does involve nerve pain.

My chronic pain issues stem from having 10 abdominal surgeries that started with fixing a messed up hysterectomy, prolapsed fallopian tube on two separate occasions, etc., etc. You get that if anything that could go wrong it did! Worse every time until now 10yrs after the last surgery & there is not a thing they can do to fix me. I live with this pain and drastic change in my life every day.

Fourteen years ago my gyno put me on the Fentanyl patch. It was life changing. I could actually get out of bed and be with my kids & my husband. It was so awesome! Before that getting out of bed, cleaning house, relations with my husband, were pretty much at nil. So I know & understand how pain, especially chronic pain, can ruin a life, a marriage, a child’s life and relationship with the affected parent.

That’s why some of us will jump at the opportunity to try something new that may help us, even if it is a small amount. When you lose so much & it wasn’t your fault you do what you can. I say that because I have read some interesting comments that I didn’t know what to think about but then I forget sometimes it’s not only frustrating for the chronic painers to get across how they feel but also frustrating for the ones who do not deal with pain to get it or understand.

I started on lyrica because after being on 50mcg patch every 3 days for 10yrs, I needed to be bumped up a little. My gyno figured 6-8yrs but I stretched it out to ten.

But my GP had a real issue putting me up to 75mcg patch every 3 days. He wanted me to go on lyrica. I really didn’t want to. I’d been on gabapentin & IT did nothing for me, so I said I would try his new drug but only if he upped me. I had a whole big list on pros/cons, etc. It was quite the debate. I get why he was being careful & most times it feels like he understands me and my PAIN. It’s there every day, many different layers, all day & night. That day I was questioning where he stood, after being on that drug for a month with no pain relief – then being upped – again nooothing – then upped til I was @ 300 in the am & 300 in the pm. I’ve always been willing to try anything to make sure I made everyone involved I was not ONLY using opiates.

I’m on topamax, ketoralac, 2 different antidepressants that apparently help with pain to the sum of 11, well now 10 different Meds in the am & 3 in the pm. It’s CRAZY! I know each drug helps a tiny little bit with my horrific chronic pain. Now all these little bits are supposed to all add up and be way better than the three meds I was using before that HARDLY had any side effects for me at all, & actually dealt with my pain.

You can tell if you yourself (or if you’re a Dr., your patient) really needs them or not. If you don’t need pain meds then there aren’t any pain receptors for the drug to bind to & you get really good and high I’ve been told. If you are in horrible horrific pain the pain receptors are there to bind to the pain meds and use them.

I’ve been trying to get myself OFF this drug lyrica for a couple months now, and it’s killing me. Thank God my kids are all grown and out of the house or I don’t think I could do it. It’s work just trying to make sure my Hunny has food for supper. Then I’m done for the day AGAIN. my headache is worse than any migraine or migraine hangover I’ve ever had. I’m still having trouble talking, walking; my head is still shaking off & on and this all happened **Boom**.

When I brought it to my Dr.s attention he was a little confused about what I was trying to tell him but not too concerned. So I started weaning myself, and it slowed down some. I could actually talk again, get words out of my mouth; my balance was back, kind of. That’s when I knew I had to get off this drug, as soon as I could, HaHaHaHa that was a funny thought! Fast with lyrica is not good.

Anyway, my mind wanders alot which I’m pretty sure I DID on here, sorry. This is another issue I apparently picked up from this drug, AND I really hope it disappears.

I have taken Lyrica for 3+yrs (severe lower limb nerve/muscle damage & loss) I take 150mg three times a day I will say it took abt 2-3wks to show effectiveness (dosage changes,etc) for me it’s a miracle medication, BUT certainly heed the warnings and DO NOT stop it suddenly! It will welcome you to a fresh hell, that you never knew existed! Best wishes!

Omg! I am so annoyed that I blindly got on this evil ride. I feel like I’m in the Twilight Zone. I took 75mg of Lyrica last night and 75mg in the morning. I suffered such awful side effects…like I was outside my body, and I couldn’t walk properly or think or speak.
I had an ilioinguinal nerve block done then went straight to the GP to discuss my symptoms. He gave me a script for 25mg so I can start tailoring my dose.
I’ve reduced to 25mg day and 50mg night.
Last night I couldn’t sleep but this morning I feel a bit less brain fog.
I’m hopeful I can come off in the next few days and just up my tramadol dose.
Thank you all for sharing. It’s awesome knowing you’re not on your own!
I just wish I’d read your posts before I started Lyrica!
Take care and God bless you! ❤🙏😇

I stopped taking Lyrica about 4 months ago. The rls and neuopothy was helped by taking pramoxcle. I start itching like crazy, tear my skin off crazy. Welts, bumps terrible rash…it was awful and I have been trying to figure this out myself because the Doctors are NO help at all. I started taking it again two day ago, 75mg…..and the itching and rash are gone. The nausea is gone. The headaches, sweats and stmach problems are gone. I have been SO miserable that I will take my chances. My life was not good….now, it is 100% better. They’ve got me right were they want everyone.
SHAME ON YOU PHARMACEUTICAL COMPANIES!!!!!

I was prescribed lyrica when pain pills were not taking care of my nerve pain. Drs would not increase the dose. I now do research since having
issues with side effects from drugs I had a lot going on at that time so only looked at ‘the info from pharmacy. I quickly noticed it wasn’t helping the nerve pain.

I was on low dose 25? I had been on it 3 weeks Dr increased the dose to twice what I was taking within short time 2 days? Pain dr recommended nerve block it made nerve pain worse! Was 3 weeks until I had relief with kidney transplant he went to close to kidney.

I had a bruise where he put the needle in I had been very clear to stay
away he showed where he would go!…I trusted him.

I began severe reactions; spaced out couldnt understand what was being said my nerve pain was getting worse; couldnt talk words wouldnt come
Out. I had depression n crying jags I was jittery and shaky.

On some occasions I had a seizure which was not common for me to do. I was losing touch with reality. I knew I had to get off soon as possible! I cut back as slow as I could. By the time I was off had been 1 month from when I had started Lyrica.

Then the Nightmare began!! I was not in control of myself. I will try to list what all I dealt with. Brain fog; couldn’t remember names etc; I had muscle pain felt like ,y muscles were drawing up tight; sometimes shaking was awful had night sweats; I couldnt sleep even with taking sleep pills I would go up to 3 days with no sleep. I couldn’t eat yet. I gained weight!!!…Which I can’t lose”!” I was a emotional mess!

I was a mess physically couldnt hardly keep balance (should mention I had a kidney transplant got a deadly bacteria which I got a stroke from antibiotics the setback from Lyrica made it hard to do therapy).

I at one point had hallucinations; can’t talk;.light headed; dizzy; I’m sure I’m leaving some out.

It’s been 5 months. Blurry vision; hair loss; hearing loss when I had to get new one he commented I had drop in my hearing on the chart. He had on me which was alarming for me.

Basic opinion?
NO ONE SHOULD GO ON LYRICA NO MATTER WHAT THE DR SAYS!!!! WHEN YOU TELL HIM WHAT IT DOES TO YOU, DON’T BE SURPRISED WHEN HE DISMISSES YOU LIKE “YOU IMAGINED THE WHOLE THING”. CHECK FORUMS ON LYRICA your not alone!

I’m researching hard for an answer to detox this drug from your system!!

With me lyrica makes me obsessive , over talking and emotionally a wreck. I’ve never been dx as manic but it sure does seem to make me that way. Normally I’m a lay back quiet person. On it I’m a vocal spinning top. These side affects are too much for my family and me to take. I’ve been on again off again on it for over 2 years. Even at a low dose of just 50 mg I’m still having these problems.

I have been on Lyrica since 2008.It was prescribed for fibro pain,and whiplash pain in my neck and shoulders.I was also given Tramadol as a booster for pain as I was taking so many over the counter drugs my doctor thought I would injure myself.In the beginning it seemed to help.I had been taking Cymbalta but it stopped working, so I was elated when the Lyrica seemed to help.It was short lived though and I can’t understand why I have stayed on it for so long.Within a few weeks I realized I was gaining significant weight(about 5 lbs a month,and it has never stopped)I always feel hungry and my eyes have felt the effects too with dry eyes and blurring vision.I do sleep better at night,but I am also on a CPAP machine now,and I wasn’t when I first started the drugs.I have the foggy thinking and loose of cognitive abilities I used to have.My ankles swell,my skin is dry and peeling all the time,my muscles are slowly weakening and I am fatigued feeling before the day is even started.I am slowly weaning myself off of both the Lyrica and Tramadol this week and hoping to have them both out of my system in a couple of weeks.I hope I will recover enough of my old functions and abilities that I can live a closer to normal life.The chronic fibro pain I can recognize,the whiplash pain I know too.The symptoms from the drugs are the confusing ones.I am tired of being confused and being in pain too.Wish me luck.

Worst drug ever. PLEASE DO NOT TAKE CYMBALTA OR LYRICA. I promise you the side effects are awful, and it did nothing to help with my pain. I stopped taking LYRICA weeks ago yet still suffer from major depression, hopelessness, sadness, paranoia, and feelings of worthlessness. I’m terrified I’ll never feel right again. I have horrible short term memory loss along with a long list of awful after-effects.

The doctors don’t want to prescribe pain pills because they’re worried about the side effects, yet still prescribe Cymbalta and Lyrica which are two of the worst drugs ever, ever put in the market. THEY ARE SUPPOSED TO HELP YOU BE ABLE TO MANAGE YOUR PAIN. At no time did I notice any pain relief at all. By the way, the Dr did not believe these side effects were caused by these meds. It has been a nightmare that I’m now concerned has caused me permanent damage.

Hi. I am hoping someone can help. I’ve been on lyrica for couple yrs. I’m
At 450mg per day. I just cut back to 300 over past 2 months. I feel horrible. I’m
Scared. So anxious n cry so much. Can’t sleep. I don’t want to go backwards. My question is can I just start doing the taper much much slower from this point on n not go back to 450? Lyrica made me gain 22lb and my teeth are crumbling in back? I’ve started otc cbd and other vitamins. I hate this feeling. Anxiety is horrible. Not sleeping is making it worse.

I have relapsing remitting multiple sclerosis . To help the numbness in my left hand 15 ninths ago my neurologist prescribed lyrics 100 mg. a day. After 2 months I noticed swelling on the left side. Of abdomin. 1 month later I started forcing my urine out constantly. 1 month after that I had small constant stomach ache. The whole time my walking suffered increasingly. I went from being able to beat my. 10 yr old son in a running race to walking with a cane. After several months 3months ago my doctor doubled my dose to 200 mg. a day. Within 4weeks I had bladder pain kidney pain swollen eye lid double vision and the pain in my entire abdomin was the worst pain of my 51 yr old life. I was in er 4times in 3 weeks. The er doctors could t figure it out.because I was on lyrica 15 months. If I didn’t figure it out myself I honestly think id be DEAD. I spent :34 days in bed out of 40. I’ve been off lyrica 28 days and everytbing is back to normal. The dangerous side affects of lyrica are normal problems of multiple sclerosis. I hope to be walking better tha. I have in the past 2 years. My leg is weak hope to gain streangth back slowly. lRICA IS KILLING PEOPLE BLINDLY. Richard

I decided to stop taking Lyrica cold turkey after taking 100 mg three times a day for about a year. I had no idea what the hell I was in store for. For at least three days, I was completely hallucinating. I lost all connection to reality, and could not tell the difference between my dreams and waking state. Tastes, smells, tactile sensation I had no idea what hell I was in store for.

For at least three days, I was completely hallucinating. I lost all connection to reality, and could not tell the difference between my dreams and waking state. Tastes, smells, tactile sensations and visuals were all distorted. Everything seemed different, to the point where I couldn’t even recognize my own house. It felt like I was literally going insane. Not to mention the fight or flight response, complete loss of balance and dizziness.

It was like benzodiazepine and opiate withdrawal combined but far worse than either of them. The only thing was that it was over when it was over. After about four days, but withdrawls went away and I got the drug out of my system and never took it again. Benzodiazepines are the hardest drug to with draw from, but Lyrica is very close. The scariest part was the psychotic break.

I had been on lyrica for 6 months for herniated disc pressing on the sciatic nerve…started at 25mg twice a day…eventually was taking 100mg twice a day….started the weaning process 3 weeks ago and am finally off the drug….had gained 10 lbs….the side affects of the weaning process are less than pleasant….dizziness and nausea are high on the list….not sure if the drug helped with the pain, but would not recommend this drug….check out other options…..

anyone having brain problems with lyrica watery eyes kike acid burning also like someone through acid in your face on times

Wow is all I can say. I was put on Lyrica for my Fibromyalgia pain because I can no longer take Nsaid drugs such as meloxican or Ibuprofen because I just got diagnosed with Congestive Heart Failure from complications with inflammation and I find out that Lyrica gives you inflammation do these DR know what your doing and even pay attention when you don’t have the best Health Insurance my guess is not.

I was on Lyrics for over a year. I have Pelvic Neuropathy, Sacralilitis, Chronic Pain Syndrome, and Psoriatic Arthritis. I was at a point that I would have words in my head I would want to say….. But they just wouldn’t come out of my mouth!!!! Horrible!!!! I still had pain, it brought my pain from #10 down to around #6-8 on good days. I’m also on antidepressant medication and have been for years. But being a Nurse and being taken out of work because I couldn’t walk anymore without limping in pain…. I became more depressed!!! I’m only 55 year’s young!!! My PCP slowly tapered me off the Lyrica AND WITH IN 2-3 WEEKS MY MIND FOG WAS CLEARING UP!!!!!! Now around 8 month’s later, I feel I’m back in control of my LIFE!!!! Since going off of the Lyrica I have TERRIBLE HAND & LEG TREMORS, HEADACHES, & MY YEAR OLD BIFOCALS …. forget it, I need new Glasses!!!!!! My vision is SO BLURRED!!!!! I recommend NEVER START LYRICA!!!!!! Living with the severe pain & my Injections are a better choice for me!!!!! What a NIGHTMARE!!!!!

On July 7th 2016, I received a torn L5-S1 disc from an auto accident. I had severe pain in my lower back and right leg due to the disc compressing both the L5 nerve and the S1 nerve. I was prescribed Gabapentin 100mg 3x daily which was increased 2700mg a day over a period of 3-4 months. After increased dosage of medication and three epidurals had failed to relieve the pain the doctor ordered a Laminectomy and Microdiscectomy on my L5 S1 disc.

After my surgery, the doctor continue to prescribe Gabapentin at a high dosage but I still received no relief from the Gabapentin. My doctor informed me that because of the compression on the nerve for a long period of time I would most likely suffer lifelong nerve damage. After continued complaints of no relief from the Gabapentin my doctor then prescribed me Lyrica. The prescription my doctor wrote out was for 120 pills 30 day supply 150 mg capsules to be taken 2 in the morning (300mg) and 2 at night (300mg) that’s 600 mg a day.

During the first two days I was on Lyrica I felt wonderful. My pain level which used to hover anywhere between a 9 and 10 on the Pain Scale had been dropped all the way down to a 2. I thought Lyrica was the greatest thing in the world it was able to decrease my pain whereas Gabapentin had no effect on me. I was on Lyrica for a total of 15 1/2 days when my wife had to rush me to the hospital for what appeared to be mini strokes. I was in the emergency room for over 9 hours with 3 different doctors running test that ranged anywhere from MRIs, CT scans, ultrasounds of my arteries, blood test, and a lumbar puncture because they thought I had meningitis.

It wasn’t until the third doctor that saw me noticed in my records that I was on 600 mg of Lyrica. The doctor asked me if this was a mistake and I told him no that is what my doctor prescribed to me. when I told the doctor that it wasn’t a mistake I thought he was the one that was going to have a stroke. He told me that 600mg was extremely high for someone who just started taking Lyrica. He said that 25 mg would be an appropriate dose to start out with.

I was admitted to the hospital for 2 days so I could detox off of the Lyrica. During the 2 weeks I was on Lyrica I gained 22lbs of water weight, had memory loss, aggression towards people around me, loss of balance, and slurred speech. After I was taken off the Lyrica, I was then prescribed Pamelor which also had no pain-relieving effect.

Please, I woulf like to receive some help ! I took Lyrica for 12 days…I stopped it 4 days ago because it made me feel bad, and I realized it caused me anorgasmia. I’m still sexually numb..I feel soooooooo anxious about it !!! Did anyone experienced the same thing ? How long does it take to recover ? Thank you

Wow! I’ve got caudal equine. Been on 300mg twice a day for two years now. I have tried reducing the drug myself by asking for 150mg capsules (told doc I was finding the 300mg hard to swallow, but he’s reluctant to cut the dose). I cut my own dose then to 150mg twice a day and find I’m having a very rapid and irregular pulse, and awful palpitations. So afraid, I’ve taken an extra 150mg to see if it calms things.
I’m on morphine sustained release 150mg per day, and 100mg amytrptilline per day.
Caudal equine has left me in an awful state, but are the drugs designed to help actually killing me?

I had shingles, am diabetic, have been taking Lyrica for five-six years. The awful tingling in my feet is about gone now. Had none of the side effects listed except possibly balance a bit off right now. Have not felt need to discontinue. I’m 92 and still going strong, so I guess the Lyrica is o.k. for me.

Hi i have been on lyrica for a few months and now have weaned off. However the side effects are terrible. I feel so lost, unmotivated and tierd. I hope this nightmare ends soon. I need the real me to come back. Please don’t take these….bad news.

I have been on Lyrica/Pregabalin for 6 years since breaking my back and suffering a spinal cord injury and permanent paralysis from the waist down. I am in constant neuropathic pain in the form of burning and stabbing. The Pregabalin dulls the pain but it is never gone completely. To have no pain I would have to be on such a high dose that I would be like a zombie. I definitely have problems cognitively and with my memory to the point where I can’t remember the names of people I have known for years at times. I don’t recognise faces of people I’ve only met a couple of times, and I have made some embarrassing social blunders due to this. I have reduced my dose and have more mental acuity than on higher doses, but more pain, unfortunately. The withdrawal each time (only 25mg at a time) has been pure hell that has gone on for weeks. I am unsure how I will ever break free of it. I would like to see a future where I don’t take any medication but I need to find a better way of coping. I use mindfulness and sport to cope at the moment, but it is not enough.

I was on Lyrica for Postherpetic Neuralgia (the pain/itch) that lasts after one has had a bout of Shingles, which I had in 2008. In June 2010, about a year after starting the Lyrica, and having gained about 15ks in weight and having quite a few of the the other side-effects, I happened to see Lyrica mentioned in a Newsletter which came to my e-mail regularly. The Newsletter was called “Prescription Drugs” and it stated that the makers of Lyrica were facing lawsuits regarding unreported side-effects found during tests.

In 2013 I noticed that my eyebrows were thinning substantially. I saw a Dermatologist. He lifted up my fringe covering my forehead and immediately said I had “Frontal Fibrosing Alopecia” and prescribed quite a large dose of Cortisone tablets, which he said may halt the hair fall, but won’t reverse it. I

I am now living in another country and had to come off Lyrica and was prescribed Gabapentin, a similar drug as one patch on my back continues to itch really badly. My hair has continued to fall out and is quite thin all over, about 3 inches back from where it used to be on my forehead and on my temples and behind my ears. I now have to wear a wig if I want to go anywhere, coz I just feel so very embarrassed.

Has anyone else experienced HAIR LOSS on Lyrica? I think I can still find that Newsletter in my inbox from that time. Will have a look.

A doctor friend of mine noticed my eyebrows were thinning and said to me, “Ah, yes, hypo- thyroid!” I had my thyroid tested, and it was a bit low but they put me on synthroid, and my hair grew back. I also gained back energy and mental acuity.

Unfortunately, if you start thyroid medication, you have to take it forever. My sister and my mother had hypo-thyroid, and it seems to hereditary. Have your thyroid tested.

Have been taking lyrica 50mg for three days. Wish to stop now. Will I have withdrawal symptoms?

I have been taking Lyrica for several years Ann’s since then I keep gaining weight, memory is bad, can’t even describe the pain just know I still have it and my hair is thin now and have few eye brows and lashes and have been going to a dermatologist for couple of treats and she had given me hydroxy meds and creams and nothing has helped. I still hurt so bad I really want to know what would habit if I just quit using Lirica all together, i habe a lout of pain so how much worse and will my hair continue falling out???

I started taking Lyrica 3 weeks ago for fibromyalgia, saw my Dr. Yesterday and she took me right off them. Didn’t say anything about side effects but maybe I wasn’t on them long enough. I was taking 50 mg. 3 times a day. Did reduce some of the pain but the side effects were worse than the pain. Fatigue, depression and anxiety There were times I wanted to scream I felt so much anxiety. That was it for me, time to get off them and visit other avenues.
Good luck

Yup hair loss, missing eyebrows too, weight gain, brain fog, swollen feet, and did I say brain fog. haha

I’ve been on Lyrica for almost 10 years because I have fibromyalgia and idiopathic peripheral neuropathy. I’ve been on as little as 300mg/day and as much as 600mg/day. Currently I’m taking 200mg morning and night. My pain is gradually getting worse but I’m not sure if it’s because I’m getting worse or Lyrica is beginning to make it worse. I’ve tried weaning off it a couple of other times and the first time, I couldn’t handle the withdrawals so I went back on. That was cutting 25 or 50mg each week, if I remember correctly. The last time was because my pain management doctor was starting me on oxycontin. I was too afraid of everything I heard about oxycontin, so I quit and went back on Lyrica. I’ve gained about 100lbs in the 10 years but have lost some because I went through a divorce and don’t eat as well when cooking for myself. I can’t seem to remember a whole lot and I’m so tired all the time. I’m not even sure what other side effects I do have since no one talked about them years ago and I’m so used to the way things are for me now. I want to get off Lyrica and try a vitamin B complex, turmeric curcumin, and alpha lipoic acid. Does anyone have any thoughts on this or has anyone tried it? I’m getting desperate!

Hi Lori, I was on Lyrica for 10+ years for Fibromyalgia. I took 150 mg. a day. Had lots of side effects but it did work for the pain. then someone told me about the herb Ginger. after a week my pain was so much better. I took 6 weeks to wean myself off lyrica and I am doing better in some things but cant sleep. I also take Turmeric.

It is likely that it has stopped working for you. I was on Lyrica for 8 years for spinal chord damage, spinal fusion and Hypermobility injury pain, ended up on 600mg then my pain started to gradually increase about 2 years ago from a daily average of 5 on the 1-10 pain scale to 9 or 11! I also started to get nausea, headaches, motion sickness, felt like a zombie, numbness, dry skin, unable to shift stomach fat etc etc. Long story short, a chemist told me using that drug at that level for so many years meant it had likely ceased to work as a pain killer properly. I only found this out a year ago after missing 1 dose on a long haul flight and convulsing, sweating and being in awful head, neck and upper body pain for 9 hours.

I then started looking into Lyrica and decided to come off it, I took my last dose 2 weeks ago. Withdrawal has taken 11 months, it has been hell. I went too aggressive at first, coming down 100mg a time for 2 weeks, eventually had to come down in much smaller amounts over a monthly cycle otherwise the shaking, sweating, nausea, anxiety, pain and rage were too violent. I wanted to kill my husband several times….he is fantastic, loving and supportive and has had me spitting and punching him several times through it all. I am not violent ever usually. We have been together 20 years and I am very lucky he did not leave me or have me locked up, but it was the drug withdrawal as I’m fine now. When you reduce your dose, within hours or days the pain increases but the pain is not from your condition (the reason you take Lyrica) it is pain due to the way Lyrica block calcium receptors….if you take opiates the effects are amplified and withdrawal is amplified too. My pain is not worse than a couple of years ago now and I am now looking at not taking any of these new synthetic drugs like gabapentin, or tramadol which nearly killed me when I took it. The worry part is that not many GPs know about the withdrawal but luckily my Dr did. I am compiling a list of people who want to tell their Pregabalin withdrawal stories and get the media behind this. It is a very widely prescribed drug and people who stop suddenly are dying or killing!

Last year, I was experiencing chronic pain in neck and shoulders. The pain was constant and I felt unwell. I could not stand the pain and started drinking after being clean and sober for over 20 yrs. After 6 months wait, I got into a pain clinic.

My doctor and other doctors could not figure out my problem after chest xrays, blood work, etc. The dr at the pain clinic injected my neck and shoulder with nerve blockers. I woke up the next day realizing I did not have any pain….first time in over one year. Because of this finding, my doctor prescribed Lyrica. I have been on it now for over one year and have been pain free!!

The only side effect I have is weight gain. I will take that any day over constant pain. I no longer self medicate with alcohol and enjoy life again!! Thank you Lyrica!!!!

Hal; Your Dr ordered “nerve block” when you were not diagnosed with ‘PHN’, or diabetes, or ‘fibro’ ? And if the ‘nerve block’ cured the pain, why the Lyrica? I am very curious as I am 3 days shy of 8 months into Post-Herpetic Neuralgia [PHN] . And I am now on Lyrica upon ‘graduating’ from months of Gabapentin and I am experiencing most of the listed ‘side affects’. I will see my pain mgmt Dr for the second time on Jan 25th. Good luck to you and I hope you stay pain at least until ‘father time’ takes over.

I’m thinking of going if lyrica been on high dose for 4 years what worries me is if my dr disagrees what to do then

I have been taking Lyrica for about a year after I had a double mastomony chemotherapy and radiation . now they told me to take three times day 50 mg or 150 mg a day. Now for past month. I have gained 20 pounds and am very irritated at the smallest of things. I go Monday December 4 to see Dr . I thought it worked at first but pain so bad now can’t hardly stand it.

Can’t cook fold clothes wash dishes or thing like that. I look at electric lines for my way out but don’t have long enough ladder. So now with no boobs I am gaining weight and dont like that. Headache and all round full body pain and i don’t know what to do. Where do I go from here???? So tired of doctors just throwing pain meds at me I am tired of it all.

If there is help I wish I could find it. Only thing that helps me know is beer so I can get some sleep. I feel sorry for people in such pain you try your best to make others understand but so hard to put in words how much you hurt when they don’t. Life is not good . All I can do is pray night comes fast so I can be without pain if only for a few hours a day. I pray for all here and pray your pain ends soon.

Longevity (Long Life)

“Standard of Care” may not safely address your specific diagnosis.

Don’t “Ingest” “Prescription Medications” until you’ve completely read the warnings, the how to use instructions, the cautions, possible side effects, prescription interactions, and be mindful of your “Medical History Does and Don’t.”

Remember, your safety, is your primary responsibility!!!

I was started on Lyrica for pain from multiple neck surgeries, chemo and radiation for head and neck cancer. I had been taking gabupentin ( for diabetic neuropathy) for 4 years and even upping the dose didn’t help so they put me on Lyrica. At first (the first month) everything went well then the disaster hit. I became extremely irritable (I was a happy person), became tired all the time (used to hike and have an abundance of energy) and just don’t care about anything, gained 20 pounds in 3 months and I don’t eat any differentely. I have an appointment on the 1rst of December with pain management and am going to tell them I want off. I would rather live with pain the with who I’ve become. If you’re not on it stay away!

I have been on lyrica for about a 2 years now, and have slowly weaned myself down to 75mg per day.
Today is my 3rd day off and I can’t sit still. I’m having cramps in my stomach, pains in my head and the worst foggy brain. Lyrica is evil and I have no idea why Dr’s do not take these withdrawals more seriously!
A few months back when I missed a few days I was in agony and was suicidal.
I have never felt so low in my entire life and I really regret thinking Lyrica was the answer to my chronic pain.

Agreed!!! Stay away and tell everyone you know. Its being prescribed for too many ailments, i have had every side effect there is, even one part of my body as well as the entire left side of my body was paralyzed for about 30 minutes, then it stops, this is insane that docs know nothing about this? Stunning.

Have been on 300 mg of Lyrica per day plus 50 mgs of morphine for a neck injury in May 2016. Since then my sight has gotten so bad I needed glasses I have gained 40 pounds. Between the stress of not being able to work and walking around in a constant fog life was getting bad.

I decided 3 days ago to stop taking my meds and get my life back on track. I am going through some pretty serious withdrawals and not sleeping, my wife says im to touchy the least little thing irritates me im cold and sweating and generally having a very rough time. Think twice before you take Lyrica.

Michael, I hope you’re better now. Could you please share how long the misery, depression, pain, and suicide thoughts persisted after taking final Lyrica dose? Thank you.

Has anyone experienced head tremors due to taking lyrica? I took lyrica for 19 months & I developed slight head tremors. I stopped taking it the 28th of September & I am still having slight head tremors & yet my doctor does not feel it has anything to do with lyrica. My pain has returned, yet I am afraid to take this damn drug again.

I started taking Lyrica approximately 3 months ago for nerve pain after surgery. All was good until I stopped taking it a few days ago. For no apparent reason started feeling very depressed. Went back to the doctor today to get another prescription. After reading all your comments think that the sooner I can wean myself off this drug the better.

Oh my do not restart, i too have had tremors, other body oarts and my brain too, like a loud vibrating air compressor, you will have success, trust in God, he will

Don’t want to sound negative but somehow I really don’t believe some of these comments…..if someone can’t spell Australia is it a real comment from someone from Australia????

I’ve been on Lyrica for years and have every side effect known….im in the process of weaning myself off….the side effects of coming off lyrica are so bad it’s scary….be aware…..do not go on Lyrica…..its a bad drug

I was on Lyrica for about a year for nerve pain, but wanted to get off of the drug because of the constant dizziness, vertigo, and weight gain it was causing me. The side effects were only making my nerve pain worse. I talked to my doc about any withdrawal side effects and he said your head might feel “off” for awhile. OFF!??!

Well … that was just the beginning, as I had no idea the withdrawal symptoms were SO BAD. Within a week of reducing the Lyrica dose 25mg’s I went into a DEEP DEPRESSION and I had no idea why I was feeling so terrible because nothing in my life was going downhill. I didn’t want to talk to anyone, didn’t want to do anything .. it was awful! I had already been taking cymbalta at the time, so my doc bumped my dose up 30mgs and after a couple of weeks things seemed to even out. Within a few weeks of being off of it, I dropped about 15lbs. I’ve never felt such vivid depression like that…it was so bad…! Please be careful if you take Lyrica!

Many patients wonder why Lyrica has such a detrimental effect on health and as I read the FDA’s information on Lyrica ingredients, the Titanium Dioxide caught my eye, and further reading revealed the following:
TITANIUM DIOXIDE PROMOTES INFLAMMATION
Given the size of titanium dioxide particles as well as the electrical charge, exposure to the mineral has been linked to oxidative stress and chronic inflammation (3). An increase in oxidative stress in the body stimulates cellular and DNA damage.
What are the ingredients In LYRICA? Active ingredient: pregabalin Inactive ingredients: LYRICA capsules: lactose monohydrate, cornstarch, talc Capsule shell: gelatin and TITANIUM DIOXIDE; Orange capsule shell: red iron oxide; White capsule shell: sodium lauryl sulfate, colloidal silicon dioxide. Colloidal silicon dioxide is a manufacturing aid that may or may not be present in the capsule shells. Imprinting ink: shellac, black iron oxide, propylene glycol, potassium hydroxide. LYRICA oral solution: methylparaben, propylparaben, monobasic sodium phosphate anhydrous, dibasic sodium phosphate anhydrous, sucralose, artificial strawberry #11545 and purified water. This Medication Guide has been approved by the U.S. Food and Drug Administration.

I took Lyrica for 6 years, from 2011 to 2017 until I had black-outs and hearing problems in conjunction with non-stop hot flushes, and then discovered I was being poisoned by Lyrica. I stopped taking it in July 2017 and my hearing is back to normal, my eyes can focus and I don’t have black-outs any more.

Hi Marilise, glad to hear you are feeling better after quitting Lyrica, but it must be a “horses for courses” thing, because I too was put on this following spinal surgery in 2010 and I also suffered the side-effects described by others, including the blurred vision and hearing loss. By coincidence I also quit in July and am still suffering chronic withdrawal 9 weeks later, including constant insomnia etc. Also, my vision has not yet shown any improvement and I have just had my hearing aids amplified! However, your improvement does give me hope that some recovery is possible so thanks for that.

I run a group on Facebook called Lyrica Survivors (Official) and we have thousands of people suffering from side effects and withdrawal from Lyrica. Many doctors are unaware of the withdrawal and refuse to believe patients, but it is all too real.

I went looking for Lyrica Survivors Facebook page and have asked to join….looking forward to having my say

My insurance stopped covering Lyrica and I was forced to stop it cold-turkey, it was the Labor Day long week-end. I started feeling like I was going to die. I got pains I did not think I could feel all at once…My feet hurt so much I could not walk long times…my eyes were affected too…blurriness…the joints in my hands hurt so bad that I could not do anything …open jars…do dishes…I also had periods of sweats, even though I was in ac….It has been two weeks and I still am not up to normal…especially my hands and feet….I had to go to my Rheumatologist and she changed my medicines for higher doses…But I did tell her I did not want to take Lyrica…I was taking 75mgs /twice for more than a year…and I take Cymbalta too…I have Sjogrens, Fibromyalgia, Diabetes 2, Asthma , osteoarthritis and am 68 years old.

Can you get palpitations on withdrawal?

I’m back with my last update. I’m very happy to report that I’m finally off Lyrica. After reducing my dose (see previous posts) down to 1 x 75mg per day I finally stopped. Sound easy? Let me tell you for the following week or 2 I was a train wreck. I finally broke down crying in desperation on the side of a road. I contacted a friend who helped and now I’m much, much better. If I had known what this drug does to the mental health of people I would never have started taking it. To anyone considering starting Lyrica or to those just commencing I urge you to please re-consider, consult with someone, ask more questions of your GP because once you decide to start the side effects and difficulty in stopping have proved far worse than any benefit the drug provided. (in my case)
Blessing to you all.

Tell everyone you know about this drug including the generic names, we can save lives

Nine days of no Lyrica after a year of cutting back. Got to 25-50 mg day but pain and crazy thoughts were so bad when I went further down, I was stuck. Then I waited until after an injection into spine for my back pain. When the shot worked I kept up all previous meds but the Lyrica. Even Lyrica couldn’t cause it’s pain against a powerful steroid. Plus a small Oxy.

My suggestion: taper very slowly. I have been taking Carisoprodol in the mornings which mellows out some of lack of Lyrica mania, that and the pain are hard to ignore. use a strong indica mmj, it helps with all aspects of quitting. i have terrible itching since i stopped, try a hot bath with baking soda and epsom salts.
eat good food and exercise! my garden is peaking now and i have a border collie, my biggest helper in this project. john

I started on Lyrica 75mg 2 at bedtime.for Restless Leg syndrome. This is a wonder drug. Had to up it to 3 a day months ago and I am great. However, I have developed a series of small bumps under my arm. 6-7 under left armpit and 1 faint one under right arm. They don’t hurt or itch but are a bother to me. In the evenings I have blurry vision, I am forgetful, and quit to anger. There is nothing else on the market to take for severe RLS. What can I do?

John, what is India mmj?

I was taking Lyrica 75mg twice daily for over two years mostly for severe burn in my thigh helped and helped with widespread body ache. I also take other med so not sure which constipated me REALLY BAD but, Iwhen doing a search for natural pain relief I came across something called CBD OIL which comes from the Marijuana plant but is legal in all states as it does not have THC in it.

At first I started with drops under my tounge and within two days of taking I had great BM. Anyway I started on capsules 25mg and and now 50mg as they say you have to find what dose works for you. I said all thus to say, one day I realized I was NOT taking Lyrica anymore and have not taken any for about 3 weeks now. When my leg burns, I take an extra 25mg CBD OIL as they say no one has ever overdosed from Marijuana or CBD. I did not have any withdraw from Lyrica at all except maybe a runny nose.

In 3 weeks I have lost about 12 pounds. I find that at the right dose of CBD, my burning is under control and my body does not ache near as bad as it did. Also helps with my spinal problems. I did not even realize I did not try to get off Lyrica nor had desire to, but one day I just stopped and I contribute that to the CBD OIL and God who of course created the Marijuana plant. CBD is expensive though but so is Lyrica without insurance.

The CBD I take cost $157.00 a month, but 30 capsule is half price. Without insurance, Lyrica would of cost me over 700 a month for poison as far as I am concerned. I also take suboxone and often find myself going a few days without it. I know this forum is about Lyrica so I am sharing how I stopped really without realizing it. Now I am going to take one poison at a time out of my life which is suboxone, serequel and colonzapam, all with the help of God and the Miracle Oil called CBD OIL which I purchase from discovercbd.com.

You have to be careful as their are a lot of rip off CBD around. I am also going to talk to a medical Marijuana Dr in two weeks. Regardless of how you feel about Medical Marijuana it is a natural God given herb that is even mentioned in the Bible in book of Genesis. CBD has no THC but it is a natural miracle for many of my conditions including newropathy. Just thought I would share how I just stopped the poison Lyrica.

As I was entering menopause, I also started to get symptoms of IBS and fibromyalgia. These symptoms persisted and got worse. After seeing various doctors I was put on Pregabalin (lyrics), and I was told to gradually build up the dose to 200 mg 3 times a day. I always ask if any of the drugs I take are addictive and was told no they weren’t. It did begin to work on the pain, and I was sleeping like a baby. However, I started to notice that I would have crashing fatigue, feeling as though I had no energy or ability to do even basic physical tasks. I would sleep a lot during the day. Luckily, I am retired so didn’t have to worry about work or looking after young children etc.

My memory became a bit of a joke, couldn’t even think of common words or names sometimes. I put on about half a stone, and my feet were constantly swollen. I remained on maximum dose pregabalin for about 18 months. Then it started to be less effective with the sleep and the pain. It all came to a head when I accidentally ran out of tablets at the end of my holiday and basically was going cold turkey. Nothing happened the first day but when I woke up the second day, I had a splitting headache which didn’t go with over the counter pain killers. My eyes found it difficult to focus. Worst of all were these burning flashes across my face and body and internal tremors. I had never experienced anything like it and literally thought I was dying. My heart was racing, and I had a terrible feeling of dread and anxiety.

I couldn’t think what it was but was feeling too poorly to leave the house to see a doctor. I started to google my symptoms and one of the matches came from alcohol or drug withdrawal. I put two and two together and phoned the doctors to ask them for a repeat prescription. My husband picked up my prescription and meds that afternoon. Within half an hour of taking pregabalin, I felt calm, sleepy, the tremors and hot flashes stopped and I was back to normal. It was then that I realised how dangerous this drug was. My body depended on it even if I didn’t crave it. I made an appointment with my doctor who was very sympathetic. She was not the one who had prescribed it, and we discussed coming down off the drug.

She told me I must do this very slowly over a period of a couple of years possibly. I was horrified that it would take me that long to get off it. I decided I would try to come down by 25 mg every 4 weeks, a bit faster that was advised but she did say everyone responds differently to this drug. I am now on 25mg each morning. Coming down has not been easy but I am coping and my doctor has been very supportive. I find the day after I come down by 25 mg I will have periods during that day and the next couple of days of hot sweats, internal tremors, mood swings, stomach upsets, am moody and irritarable but also anxious and scared.

Now I understand the symptoms will pass within a couple of days I have learned to cope better. I am not so scared when they hit me and as long as I have support and understanding from my friends and family I am fine. I have three more weeks on 25 mg and can’t wait to get this poison out of my system once and for all. I know all my pains from fibro have returned but I would rather manage with codeine and paracetamol than go back on any brain-changing drug like pregabalin.

For all of you in the same condition. Good luck, it is doable. You can get there by taking small steps. Feel good about your success in lowering your dosage, and don’t give up.

So I was put on Lyrica for anxiety. The first couple times I took it, it worked wonders. I was social, comfortable, and wanted to get out of the house and do things. I even joined my coworkers at a march on our Capital campaign to support X topic. However, this didn’t last long. My doctor specifically told me that this drug was non-habit forming (I questioned this when it required a paper prescription) but after my first incidence of my insurance not covering it when I ran out, the withdrawal was the worst.

I can remember one time, lying in bed all night long, shaking and sweating; my anxiety was through the roof, and I thought “Great. Thanks a lot. Non-habit forming but highly addictive.” I ended up being able to fill it at a 24-hour pharmacy about 5 am. I picked it up, waited a good two hours before feeling relief, and finally slept.

I told my doctor at my next appt that I wanted to slowly wean myself off, and I did. I had been taking 4, 300 mlg pills a day, as this was for anxiety and not fibro. I went off by taking 150 mlgs less for two weeks at a time. Sometimes I waited an extra week because I just needed an extra week feeling “ok.” It was a LONG, painful, constant withdrawal. It took me 6 months to finally be totally off of it, and that 6 months was the worst withdrawal I’d ever experienced; and mind you, this is coming from someone who first experienced withdrawal at the age of 13 from a high dose of Effexor. I also had a problem with OxyContin at the age of 24, which I quit cold turkey. And still, Lyrica was the worst and longest withdrawal I’ve ever experienced.

After I was completely off of it, I had even more severe anxiety. I still had some of my Lyrica leftover and decided to take it on a day of especially high anxiety. Again, it worked wonders. I realized right then, this drug works the absolute greatest, but you cannot take it everyday! Nor can you take it two days in a row. I take it only when I have high anxiety, and it is my miracle drug.

Unfortunately I’m starting to think that doing this is severely damaging my kidneys, and I’m afraid to talk to my doctor about this. That’s what I’m trying to look up right now before I just stumbled on this page. Does anyone know how this drug effects you if you only take it like every few days? When you have no dependence to the drug? What are the long term side effects then?

I should also mention, this drug effects me differently each time I take it. Sometimes I sleep all day, sometimes I have a motivational experience in which I get tons done, mostly around the house, sometimes I get really confused when doing simple tasks at work that normally I would never have a problem with, and sometimes all I want to do, all day long, is eat eat eat! Recently I forgot to pay my insurance copay and didn’t have my Lyrica for a month. Not the worst thing in the world as I don’t take it everyday, although I missed it terribly.

I ate McDonald’s for lunch every single weekday; usually a double cheeseburger and small fry, sometimes a specialty meal. During this horrible month of McDonald’s, I lost 20 lbs, since I didn’t have my Lyrica making me want to eat all day when I took it.

If anyone knows what happens when this drug is taken every few days rather than everyday, please let me know! When I take it I always do not use the bathroom ALL day long. Sometimes from 9 am to 8 pm. Nothing. Now, even when I’m not taking it, I really have to push down to be able to pee. Is this from the Lyrica and is it me, or is the really f**king with my kidneys. Thanks to all who read this!!

I was on Lyrica and it was scarying the people that I live with. Come to find I would be playing a game on my phone and I would fall asleep. As soon as I dropped my phone or the stylus I woke back up. I did this over a dozen times in an hour. I did not know that I was doing that. My fiancé brother and mother told him about it and he watched me one day. He took me outside and told me. I stopped taking the Lyrica and the withdrawal symtpoms are scaring me. I am so emotional.

I cry at the drop of a hat, I feel like everyone is watching me and then telling my fiancé not to trust me or be around me. I thought I was losing my mind, but then I figured out what had happened and it helps me a little bit. My fiancé has a lot more patience and is carefully watching me. The Lyrica has made me paranoia. I have never been that way and don’t like it. They are trying me on a new medication to see if it will help. I pray that it does.

The gaba receptors have already been compromised when u started taking it, your looking to take a breather from the wd effects which i understand, in my opinion you could be prolonging being 100 per ent better which takes time, be strong and have good courage, you can do it, just keep reaching out to others like us that are running this race, trust in God, ask Him for endurance, strength, courage, whatever you need, He is there, just believe and you will succeed, its not easy, no,,,but you have to

Peggy, your story is exactly like mine. In fact, I had to think real hard trying to remember if I had written it. I just got off Lyrica, 150 mg x twice daily. I cut down to 1 per day for 3 days then about 1/2 (used blank caps) for 3days and the withdrawals are horrific! My stomach hurts, I have horrible cold sweats and a headache. I still swell but my bowels are working better after only 5 days completely off.

My neurologist sent me to a spine D O. I have a hard pinkish support that we’re VERY expensive that I wear in my shoes and I have a perscription in my hand for the braces that help your ankle retract so you don’t trip. Please let me know what you are doing next. I have no balance either but if I forget to put my shoe supports in, I am probably going to fall. My feet are drop foot 2 and 0.
B. Y.

Lyrica detox – DAY 2 (reduced dose from 300mg p/d to 150mg p/d):
Not a great night. Took a long while to get to sleep and woke several times. I was in a state this morning with increased anxiety, ringing in my ears and a small headache. I’ve so far resisted the temptation of upping my dose again to get some relief. I can tell you it’s not easy so anyone else considering getting off these meds, prepare yourself for a battle. I’ll try and keep posting daily in order to help others know what they may expect. Not looking forward to the next several days as I try and wean myself of this medication. Need to stay strong. I’m hoping it’ll get easier if I can get through the 1st week. Wish me luck.

I’ve just read through all the comments to see what I can expect, as I’ve decided to get off these meds also. Currently take (took) 300mg p/d but yesterday dropped it back to 150mg. Been taking for ~3 years and sounds like I’m in for a torrid month or so. I successfully weaned myself off Xanax over a ~12 month period without any issues after taking these for several years.

The key in getting off was 2-fold. Firstly having a GOOD GP who listens, and secondly, tapering down in SMALL steps, very small. After all I’d much rather take a few months to get off without withdrawal than go through what a number of you are experiencing.

I feel terrible for all of you and the many thousands out there that must be going through the same thing. More so for those that are trying to do this on their own.
May God be with each and every one of you.

Thats it: STAY STRONG AND BE OF GOOD COURAGE you can do it. We are all going doing it together.

Good luck. Im on my 2 week and i feel so many different feelings like my skin is on fire and im about to have a seizure at any moment. I tried this b4 and lost weight daily. My skin started turning grey, i couldn’t eat,sleep or keep my thoughts under control so i started my 2 300 miligrams twice a day and now for 2 weeks ive been taking 50 everycouple of days.

Now, I’m completely out and im clueless on what to do besides go to the er and rake up medical bills i cant pay! I cant sleep im having stomach pains, hands and feet sweats,Insomnia and feels like pins poking me all over my body. I dont have health care so i have to do this with gods help n my wife’s help. I’ve lost my job bc i cant work like this therfore my stress levels have been thru the roof, agitated so many symptoms to remember, o yea n thats one of them as well. I dont know what to do except pray! Im trying so hard to live drug free but im 43 and i need about 5 or 6 surgeries and im in pain. Also i had been taking lyricas for almost years.

I was first put on cymbalta for pain in my body and anxiety. Took that crap for 5 years and gained weight, could not lose no matter what I did. During that time another Dr. put me on lyrica for anxiety and body pain. Now I have a bad knee from falling on the ice and have fell on it since again. They won’t do surgery until I lose weight. I have no nerve damage, migraines, Fibro that I know of so I am not sure that Lyrica is doing anything for me as far as pain. I take valium for anxiety. I got off the cymbalta and it took me about 10 months of tapering and have had no side effects after. I am going to start to get off Lyrica now. I only take 150mg most days. You also have to do it slow. You can google it and it tells you how. I am currently biking and have changed the way I eat and have thankfully a good Dr that gives me meds for pain. She did not give me the Lyrica and I am not sure I need anything other than valium and I only take 5mg a day most days. I am kinda lucky as I do not get addicted to meds and I don’t build up a tolerance for them. Addicted in the sense of narcotics which I really find that stuff like Lyrica, Cymbalta etc are just as bad, but Drs do not think so because the drug companies in the US make billions off that crap.

I have been on Lyrica for 10 years, starting at a dose of 50mg twice a day. I am now on 150mg x 3 a day. During the past year I have been more clumsy, unsteady on my feet on occasions and my memory has become shocking. I always prided myself on how good my memory was but am very worried about this right now.

My colleague is also on Lyrica and is weaning herself off due to cognitive impairment. I have trigeminal nerve problems which include facial parasthesia on the left hand side and a consistent 24/7 tingling and sensitivity on that side of my face. After reading some of these comments I do have a desire to reduce the amount I am taking but am worried about these side effects.

I am going to give it a go though. Do not want any more cognitive function deterioration. Good luck to everyone who has posted.

Good going, plz read about valium too, im sorry but i just learned that benzos (valium) are hard too, takes long time after stopping last dose to feel normal again, lyrica has same after effects, God bless and keep going, your going to get thru and be successful, tell everyone as to educate others to stay away

Hi, everyone. My husband has been taking Lyrica for a long time now, maybe 3 year. He was hurt in an accident and is paralyzed from his shoulders down. The doctor put him on Lyrica for his nerve pain from the spinal cord injury. Here recently he has been not sleeping–staying up for days, shaking his head, clicking, and asking people to help him from time to time. He seems to be better if he can get 4 hours of sleep but sometimes he goes for 3 to 4 days without sleep. He is talking to people that aren’t there. He is on several other kinds her medications. I am at my breaking point trying to figure out what to do. Do you think the Lyrica is what caused this? Please get back to me.
Connie, the desperate wife of a quadriplegic.

I was on the same dose and it didn’t help my pain. My dr suggested taking a higher dosage and I just can’t. I am off of lyrica and feel great about my decision. It was killing me.

Connie, I am a husband that’s the one taking Lyrica. I know its hard! Before I knew it after i started taking lyricas 3 years had went by and i didnt realize what was happening and then a friend of mine pretty much was like a son to me overdosed on other drugs but it scared me so bad that i threw all my meds out and that was a mistake.

Plz bare with him bc its not his fault bc this is a hard core medication that alot of people don’t have a clue about and the Dr’s are saying that you cant withdraw from this medication but of course you n i know otherwise. They dont have a remedy for the withdraws. Or maybe they dont want us to have it til the drs and start taking it but the Dr’s have one up on us THEY DONT RUN OUT SO THEY DONT CARE.

Tell your husband to hang in there and god bless you for hanging in there as well. I know its hard on my wife bc i know she dont want to see me in pain nand i dont want to let her see me like this. I shared my story further up the page.

You should check with his doctor about his medications. Lyrica can cause confusion, incoordination, tremor, abnormal thinking or memory impairment as well as insomnia and hallucinations. The insomnia is specifically in people like your husband with spinal cord injury.
https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=60185c88-ecfd-46f9-adb9-b97c6b00a553
Do not have your husband stop this on his own. He’ll need the doctor’s help in getting off it or managing the side effects better.

I was on Lyrica 150mg 3x a day for the terrible pain of shingles. It worked wonderfully well, helping not only with shingles pain but also with fibromyalgia pain. I slept deeply for the first time in years, and my colitis improved dramatically. However, l also experienced brain fog, weight gain, and incontinence. I tapered off of the Lyrica over about two weeks, and my shingles pain was gone. However, now I have night sweats, insomnia, headaches, and nausea. Worst of all I have severe clenching of my teeth ( this was not a side effect I read about). Has anyone else had this problem? My teeth and jaws really hurt, and I can’t seem to stop clenching my teeth.

Good choice!!!!

For Paula – I have experienced the exact same thing as far as clenching my teeth and jaw. my memory is horrible. i do get great pain relief for my fibromyalgia and I also think it is really helping my ibs-c/colitis, although I am wondering whether or not that is being helped by the Movantik that I was given with the Lyrica.

So, I’ve had a lot of help with pain. Fatigue is the worst symptom after memory problems and i have problems thinking and understanding what people are telling me sometimes. I have, however been gaining weight, my gait is different and I’m off balance a lot.

When my doctor gave me the prescription for Lyrica, nobody said anything about problems with withdrawal symptoms being like when you suddenly go off xanax. I have more depression, I am much more emotional (which my therapist may love). and the Lyrica also “disinhibits” me so I say what I feel without worrying about anyone else and engage in activity that i normally would not engage in because I am a Christian. I do not know what to do. Please feel free to contact me if you’d like just put Lyrica in the subject field.

ive taking lyrica 300mg twice a day , for damaged trapped nerves , it took a while to start working , but eventually it did work , but I am having problems with my balance when out walking , the pavement seems to go up and down , I’m having problems urinating , and can no longer reach a sexual orgasam ,
I think I would rather have the nerve root injection , although it only lasted for just over a year , at least I felt normal .!

A friend of mine in her 70s has had chronic pain for years and has been taking Lyrica and other meds…she has been having numerous side effects from these meds. She was allowed to go off of them except Lyrica before back surgery. She did well during surgery, however after giving her morphine during recovery, she was in a delirium-like state. After reading about the serious interaction effects of morphine and Lyrica I would suggest not using them together.

Hi,
I had been put on lyrica about 3 years ago, for back ‘nerve’ pain, 300-600mg a day. A few months back a slip from my Lyrica pack went missing. This left me short, obviously, and it wasn’t until then that the I experienced the harsh reality of the horrible withdrawals: the sweating, shaking, headaches, restlessness, hot/ cold flashes, feeling anxious, not being able to sleep, OMG!! I just wanted it to end. I couldn’t wait to get my hands on some, to make all those terrible feelings go away. But it was then that I knew I wanted to get off them. But going cold turkey wouldn’t be the way for me to go, so I have been weaning myself, lowering the dosage over time, still suffering some withdrawals, but nothing like I went threw before. Today is my second day with none. I still have a constant headache, terrible time trying to sleep and stay asleep, cold out of bed, but then roasting when in bed under the covers. Who knows how long this will go on, but I am so very glad to be off them. Never ever again will I touch them. No, thank you.

I suffered daily, all day every day with pain that felt like a white hot wire was in my arms. I have severe nerve damage in both of my ulnar nerves from my time in the Army. I have had a total of 7 surgeries to release the nerves from a thick layer of scar tissue that had almost completely compressed the nerves.

I went through 3 years of seeking help to no avail. My primary care physician put me on the Lyrica. I was still in constant pain that I felt completely hopeless. I too attempted suicide but it was because of the pain, not the Lyrica. Eventually I was referred to a pain doctor who looked at my Lyrica dose and increased it on two occasions to reach a therapeutic dose. It has not only changed my life, it saved my life. I am virtually pain free and I have no side effects.

Agree!

Hey Nora
I have been on 600mg of lyrica for over 3 years and am desperate to get off them…they are poison. Can u tell me how you tapered off them..how much per week etc. Many thanks

I was on 300 mg a day. The pain never went away so I weaned myself off, now I am depressed and full of anxiety. I sit and stare across my office for what seems like hours at a time. I have headaches and generally I feel like crap. Great drug. My Doctor is no help either. Going at it alone.

I had taken Lyrica for eight years with the only side effects being weight gain and water retention. Suddenly, I started having dark thoughts and the thought of suicide crossed my mind. This was completely out of the ordinary for me and so alarming I immediately went off the drug. Within one day of stopping it cold turkey I was in bed with chills, nausea, diarrhea and absolutely no appetite. This went on for a solid week. I checked the internet and read story after story of individuals who had the exact same symptoms when they stopped. Official literature by the drug manufacturer actually says these are the side effects of stopping it and that one should actually taper off of it. When I mentioned this to my doctor she said it wasn’t a narcotic and thus it shouldn’t cause this problem and she had never heard of it happening before. I told her to check the internet as there are horror stories all over the place. Next we’ll be seeing a class action lawsuit about this drug too.

Never felt this hopeless. So many health issues in my life, but never felt like giving up before. The pain and fatigue is relentless and I haven’t been able to take anything that helps that I can tolerate. Trying to find a support group thinking that would make it eaisier with no success yet. Had some real scary issues with some meds so I want to try Lyrica, but then I’m just really scared of ending up in an even worse place. Any one know about the numbers as far as the success rates go?

Withdrawal from Lyrica is a nightmare. It’s worse than anxiety, it’s akathisia. It feels like something is squeezing my windpipe and esophagus together, and the abdominal cramps are very severe. I become unable to eat, drink, or get up off the sofa except to pee. And just as it causes water retention when you’re on it, it releases all the excess fluid in your body, mostly through your sweat glands. I have a terrible time with keeping a normal body temperature and I urinate every hour until I’m essentially dehydrated. Wish I had never started this terrible drug.

Did you wean off the drug? I have same problem and the doc just had me stop the 100 mg I was taking, which lasted 2-3 days. I started to take a 50 mg still having withdrawals. Was on the 50 mg for 3 days, then I was on 25 mg for 10 days. Still having the withdraw symptoms but not as bad. Having to take ambien at night. Now, I am not taking the Lyrica and the doc gave me Clonidine 0.1 mg. This has done nothing and I have been on it 4 days now. I just learned you have to go off that drug slowly to. I am calling doctor on Monday to let him know this isn’t working. Need to go back on drug and wean better.

This is absolutely the worse medicine possible!!!!! The side affects are horrible. Plus, once off the medication I had to have eye surgery to have my eyelids fixed because it causes them to droop down over my pupils so I can”t see!!! I know two other people that have had this done

I was diagnosed Lyrica for Shingles as I was in agony. I found it so hard to get relief after 9 hours ( supposed to last for 12 hours). The dosage was increased to 150mg twice a day I was getting around like a zombie with no further relief.
It affected my left leg and I thought I would need a walking stick.
I knew I had to wean myself off this drug and yes, my leg is fine again.
I know I certainly needed some drugs for my intense pain and I still get ‘funny headaches’ which I’m not used to, hopefully it will clear.
When the drug was dispensed the Pharmacist told me to protect my Kidneys with adequate water intake.
I guess my body was in shock as I don’t need any other drugs.

Lyrica has been a NIGHTMARE!!!! Due to losing the bottle of lyrica, my Dr would not prescribe more. When I complained of SEVERE withdrawals, I was told Lyrica does not give people withdrawls. I spoke to my Dr, his nurse & the pharmacist but each time I’m told it doesn’t give you w/d’s.

That being said, I stopped cold turkey since I could not get more. I am extremely sick and I can’t do anything but sit day after day & night after night in pure hell. I am experiencing nausea, vomiting, high anxiety, I’m extremely agitated & irritable, hot flashes, cold sweats, can’t sleep, can’t eat & body pain worse than usual.

It has been 12 days now, and the symptoms are still just as bad as day 1. It’s not right to let someone sit like this because they don’t know enough about this medication & won’t take 2 minutes to Google it & see for themselves. These withdrawls are just as bad as benzodiazepines if not worse.

These are, hands down, not worth being physically dependant on & have no help getting off of because nobody believes you have symptoms. My Dr never should have let me sit with hardcore withdrawls this long because they don’t feel they need to research it. After all…..they know EVERYTHING.

God, I feel so bad for you. I know what people go through trying to get off Cymbalta. It’s crazy that doctors make people go through that. I would go to the ER.

I Have been diagnosed with Peripheral Neuropathy had all the tests MRI- ect Consultant’s cannot find out how I got the disease , So I was prescribed Gabapentin!! Only lasted a couple of days Teribal side affects so then went on to Pregabalin ok a low dose to start 150mg per day then increased to 300mg have been on them 6/7 weeks now and symptoms are getting worse i.e., walking, dizziness, sedation general well being.

Does any one out there have any ideas or recommendation that could help? By the way, I am coming off them slowly, not a good experience.

My doctor said that the withdrawals can last up to a month. Mine lasted about 2 weeks and yes it was the most horrible thing I’ve ever been through

I started on Lyrica 100 mg once a day a little over 3 months ago to help with nerve pain after back surgery. I didn’t like how it made me feel so I tried to discontinue it by a taper. I suffered intense withdrawal symptoms and had to stop. I am trying again with the help of a psychopharmacologist.

I can’t believe that there are commercials for this on television! I don’t even like taking Advil and now I am physically dependent on this drug! Every Dr. I have spoken to acts surprised by my experience and assures me this isn’t a common occurrence! It’s an inconvenient truth.

I’m getting off Lyrica slowly. I was taking 300mg twice a day. I am now feeling very depressed and having dreams about my brother that passed away 11 years ago. I wake up crying and find it hard to breathe. I don’t know what is ?
going on with me.Can anyone help me

Hello
I have just started lyrica for about 7 weeks now my Thinking is all over the place I’m still working I have a pitch nerve in my neck that’s why I’m taking lyrica I’m on 150 twice a day I have dry mouth weight gain I’m sleeping like I’m in a coma hit the pillow and asleep I’m worried about long term with this drug .

I just recently started taking this med and I have started with odd scary dreams: that someone is tapping me on my shoulder and thought I heard my son talking to me. Even though he is away on a trip.

This is really freaking me out and I am planning on starting to wean off tomorrow. Fingers crossed. I read online that this drug can cause hallucinations. Ive had a bit more of a tremor in my arm as well and feeling so exhausted.

I have been on 300mg twice a day for almost 2 years. This was for hip pain. I have now had 2 hip replacements and want to get off this stuff. I successfully cut down 75mg at night for around 2 months. I have just cut down another 75 mg in the morning dose but I’m finding this much harder. Pain is quite severe.

Anne,
What you are experiencing are withdrawal symptoms. They are scary and the depression you are feeling is part of it (even the dreams about your deceased brother). It seems like regrets and sorrows from the past revisit us in a vengeful way.

Do you have a Dr. you can contact to see if he can suggest another way to taper that might work for you? I ended up seeing a psychiatrist who has a specialty in addiction medicine. I am still struggling and tapering, but know you are not alone.

I was on Lyrica from November 2005 until April 15, 2017. I was prescribed Lyrica because of a synovial cyst on my sciatic nerve which was removed twice. I still have periodic intense and unrelenting neuropathy. My dose was 50-100 mg 2 x day.

The withdrawal symptoms are unbelievable and although I feel better the TINNITUS is the worse. I did not have tinnitus before withdrawal and it’s to the point I think of going back on Lyrica to get it to stop.

Would that work? Any other suggestions?

I was prescribed 300mg/day Lyrica to go with 800mg Tegretol, with magnesium infusion 1/month, to deal with trigeminal neuralgia. The TN had been so severe that I could not talk or eat. On the plus side, this combination puts down the pain very effectively for me.

Side effects, however, have been bad. Confusion and forgetfulness. Lyrica makes these worse, along with losing balance and severe drowsiness. Will fall asleep suddenly, even if well-rested. Will sleep through alarms, weekends sometimes don’t even get up. Sometimes so bad that I will drift off at meetings, when parked or when stopped at red lights, so suddenly I have fallen out of chairs. If I drive more than an hour I have to stop. Have to be careful. Makes my job difficult. Magnesium infusion buffers these a bit, and resolves the constipation issue. If I try to taper off, my TN comes back worse than ever.

My solution is to go ahead with the microvascular decompression surgery soon to fix what apparently causes the TN and therefore avoid the need to take these drugs. This major surgery involves many risks, but I am a good candidate and is my best hope to resolve the TN and get off the drugs. Wish me luck, with your hopes and prayers!

Due to complications during my cervical spine operation. I am currently on Lyrica. I tried stop taking it twice abruptly. Due to stomach issues. The symptoms I had after stop taking Lyrica were muscle aches diarrhea joint pain blurred vision and lethargic to name a few symptoms.

I can only speak from my experience. But both times I stopped taking it I had the same type of with drawl symptoms. If anyone else has experience the same symptoms please let me know.

I ran out of my prescription and thought this would be a good time to stop taking Lyrica. It was costing me so much and with the restrictions. I have been on Lyrica for 17 years. I have had 2 back surgeries and been burned from the waist down. When I stopped I was unable to sleep at night. I lost my appetite and felt extremely nauseous. The fifth evening I woke in the night with shaking and dry heaves it was awful. My blood pressure shot thought the roof and my heart rate as well. I felt like I was going to have a heart attack. I restarted taking the Lyrica and the symptom passed except the heart rate. I feel this more from anxiety and fear. I am going to my heart doctor today and will not go of this medication without doctor supervision. I feel this the only way to stop this medications side effects.

I have tried to suddenly stop Lyrica several times and due to the migraine head aches, diarrhea, bones aching and feeling of almost like I’m going to die, I start up again. I have felt like killing myself because of this Lyrica addiction because of the withdrawal symptoms. My doctor laughed at me when I told him what’s happening to me. He said he’s never heard of anyone going through this. I’m so sick of this. I need HELP !!!!

I want to stop this meds but I am worried if I do i might take fits dose anyone know if this will happen

Does any one know if the side effects and/or withdrawals of Lyrica (Pregabalin) can be permanent after completely stopping the drug?

I have had CRPS type 2 in my arm which was caused by a bulging disc in my neck at c6-c7. For many years I suffered neck pain, headaches etc. Over time the symptoms got worse, first a frozen should which had to be decompressed, then pins and needles 24 hours a day, which was diagnosed as damaged ulna nerve.

So, another operation but still the same. Each time I questioned doctors about my neck which was always bad before these episodes. Then the burning started, sweating, purple hands and it got so bad my consultant tried all sorts of pain relief from patches to infusions and nothing lasted more than a few days. Still no link made to my neck problems but he said I can fix this for you, you have two options, a high dose of morphine where you won’t know what day it is and we will bring you off this slowly resetting my nervous system or Lyrica.

So, I opted for Lyrica and over time got to 800mg per day. At this level the pain was numbed. However after a few years the side affects got so bad when I missed a tablet (sickness) to double vision so bad I could hardly walk. So I visited my doctor and he agreed that I should come off the tablets. However his knowledge of the affects were not great nor was any of the doctors I saw after. He told me to half the dose for a week then half again and then stop taking it.

A scary withdrawal with suicide a real prospect. I had planned everything it was a fear of my children coming home from school that stopped me. At my lowest my manager at work spoke to me and got me to call a counsellor, this was the turning point, someone who understood that every sense in my body from hearing to smell to touch to sight were all overloaded feeling like they were running at 150%. A clear understanding of withdrawal from prescription drugs helped me get the support I needed.

Three years on, I now wear glasses, my reading distance changed over night, I have been diagnosed with acute bi-lateral tinnitus and have had 3 operations for my neck, the first to replace the joint that caused the nerve damage, the second to fuse the replacement disk that failed after 6 weeks making the nerve pain even worse. Then I have had a spinal cord stimulator fitted to help block the nerve pain CRPS. So why am I sharing this information? Well I have had some tough learnings, firstly my local GPS is just that, he is no specialist.

Private health cover is not always the best route, each time I went to see a specialist they appear to have fitted my symptoms to what they treated rather than taking a holistic view and looking into the source of the issues which was my neck. I have very little neck pain since the operations. I have read many forums and people can appear to advise others on treatment, medicines etc. My personal view is we are all unique what works for one person does not necessarily work for the next, be careful to monitor the medicines and the affect they have on you, if you are unsure don’t accept the specialists view, get another view and do your own reasearch. Having worked since I left school I, have now to face that I can’t use my left arm without serious flare ups of crps. This has stopped me working aged 50.

With regards to Lyrica for me it was the only pain relief that worked but the side affects and withdrawal nearly cost me my life. My manager saved that and it might sound soft etc. but it the rope had been sorted and I really believe I wouldn’t have carried on another day with my nervous system in overload.

Be strong and remember to question and if in doubt talk to a counsellor.

One other thing is my problems appear to have stemmed from using a laptop overlong periods prior to docking stations and flat monitors. Please please don’t ignore your ergonomic setup. Correct seating, monitor height and keyboard / mouse. Too many people ignore the original cause of their need for these pain killers.

Linquiring about the drug lyrica and side effects of not taking it

I have been on Lyrica for a while now, just titrated the dose up from 400mg daily to 450mg daily to treat nerve pain in my right leg that presents as a burning sensation. I have started getting bad headaches, wobbly head like vertigo symptoms and I feel really unwell. I have also developed a burning abdominal pain, I am peeing loads and thirsty all the time. I am starting to doubt whether the trade off between the benefits and the side effects are really worthwhile

hi ive been taking 2x 300mg for 5days and 1x 300mg for the last 2 days for opiate withdrawals and i was just wondering if i will withdraw of that?? please reply :) thanks

Hi all, I am a paraplegic that was put on Lyrica after suffering severe neuropathic pain in my legs. For about a year everything went quite ok, although I still suffered the pain on a regular basis but I thought: Hey, probably without the med’s it would be worse…

Then about two years ago I had my wake up call. One day I didn’t have any Lyrica-pills left anymore and I thought that it would probably be no problem if I went without it for a few days. Two days later I woke up in the morning and found myself in a living hell. Severe neuropathic pain, headaches, extreme depressive thoughts and the inability to communicate are just a couple of the things I was experiencing. My sister was visiting me and I was not even able to explain her how to get from my house to the beach, which is like three streets away. That day I realized that I wanted to stop Lyrica since it obviously was not as innocent as doctors told me it was when I started to take it.

A look into the side-effects quickly made me realize what kind of poison I was taking for years. The toughest one, it made me cry, was realizing that if it were to have children while on Lyrica they might be born with a disability as labtests with mice indicated that Lyrica/Pregabaline get’s passed on through your reproductive system, in my case my semen.

Now two years later I am in the last phase of my quitting process and I must warn anybody who is coming down from a high dosage (I was on 300mg in the morning, and 300mg in the evening) that you must take it slowly and talk about it with your partner, family, employer or the people that you live with since it is a hard thing to do. I wake up almost every morning with feelings of anxiety and depressive thoughts and find it hard to communicate in a good way a lot of the time. Discussions in my relationship often are difficult for my partner and me since I get upset, and verbally aggressive quite fast. She is very understanding in all of this but that doesn’t make it any easier for her.

I did it in several stages, every time lowering my dosage by 75mg a month. Leaving enough time in between – several months – in order to give my body, and my partner the time to get over the tough detox month.

A thing that I learned really helped is getting enough physical exercise, as the endorphins that get produced by exercising have an uplifting and naturally painkilling effect which counters the withdrawal effects. Also being outdoors in nature seems to help for me.

I wish everybody who wants to quit this addictive and, in my opinion useless drug, a lot of courage, perseverance and good luck. It will not be an easy ride to get it out of your system but it’s most definitely worth it!

I want to stop taking Lyrica because I feel I don’t need it I have drop foot and nerve damage in my leg I don’t feel it will help but inam afraid to stop.

I am so glad to have read your story! I have been on Lyrica for almost 10 years for nerve pain in 85%of my body, but have been thinking it’s time to get off! I have found exercise helps the pain too. I also have found CBD oil helps a lot too. I am going to try to get off this poison. I will follow you lead and do it slowly and with support. Thanks

I have a crushed nerve in my neck that causes pain, numbness and tingling and allodynia in my left hand. I have had several surgeries, but they have not corrected the issue. I was on gabapentin for several years, and was a walking zombie. Lyrica has been a godsend for me. It helps with the pain and numbness.

The only time that I stopped it was when my incompetent insurance company screwed up my authorization and I was without it for ten days. My only symptom was pain, and I had no other withdrawal symptoms. I understand that some people have issues with it, but it helps some people too, and people have to decide what is best for them.

I have been given lyrica, 75mg x 2 per day . I have taken it for 10 weeks and have had no appreciable difference in my sciatica pain which comes from herniated discs. Over the past two weeks I have taken myself off lyrica completely and am now only taking cocodamol for pain. However, the withdrawal side effects are horrible. Depression, over emotional, absolutely exhausted most of the time and memory loss. I hope these will diminish in time. Lyrica has NEVER made any difference to my pain. I am 65yr old female and completely well in all but 4 herniated discs. I will never take lyrica again and think that drs need to think twice before letting this horrid drug loose on the public

I’ve been on 400mg of pregablin for 2 years , I dropped my dose by 200mg the side effects where awful nerve pain down my back the worst pain in my head sweating pain in my ears sometimes I think my head will explode such a nightmare, the depression and anxiety is terrible I feel like I’m going to die I wish something could help .

I just started taking lyrics just one day 50mg and stop same day I’m having pain in my stomach already I didn’t no it had all this side effects the doctor didn’t tell me I looked it up it’s not for me

I started Lyrica for anxiety and its worked wonders it has also cured my restless legs and my chronic leg pain that ive seen so many specialists about without result. It has been my miracle!! Pain free and anxiety free, im a new person!

There are definitely withdrawal sysmptoms, when i stopped for a few days i had night sweats muscle pain and my leg pain felt worse then ever (but could be I forgotten how mych it hurt in the few short months ive been on it).

I had a mastectomy six years ago and went on Lyrica Two years later. After my copay went skyrocketing to over $400 a month I told my MD that I wanted to quit. I was put on gabapentin as a replacement and I took both at the same time while I tapered off the Lyrica. I feel like I just went from the frying pan into the fire-literally.

The horrible side effects of being on Lyrica (constipation, trouble urinating, memory loss, tremors, sweating, odd appetite- to name a few) pale in comparison to coming off of Lyrica. I shake uncontrollably, itch, itch ITCH!!! And my stomach feels like it is eating itself. I still sweat, not “glisten”, SWEAT, LIKE A LUMBERJACK!!!

My nerves are on edge, I’m cranky and exhausted. I’m not saying that Lyrica didn’t help, I’m just saying that the side effects are much worse. I have had five operations because of breast cancer and the disfigurement it caused, and I can honestly say that I would rather go through that again, than continue on this Lyrica path to hell- yup….it’s that bad.

My 94yo dad was put onto Lyrica 3 months ago for cellulitis pain and skin graft. I found out yesterday at the aged care facility he was still on it. The RN has withdrawn it until Monday when I speak to the GP. It would explain his severe depression and suicidal thoughts, breathing difficulty, swelling in feet, sudden onset dementia, disinterest, conjunctivitis and eye tremors, insomnia, dizziness and leg cramps.

Specialist told me last week, this is as good as he will ever be… If I had known then what I know today I would have taken her to task.

Reading all your comments are terrifying. I may have done the wrong thing by suddenly ceasing it? Might have to halve the dose over time but sounds that doesn’t work either.
What is wrong with doctors? Don’t they listen to their patients?
Your stories are terrible and this is not fair.

I have been taking Lyrica for about 3 weeks Took 50 mg for two weeks, an now I started, 2 days ago, taking 50 mg x 3 times a day. Now I can’t see very well and have a few dizzy times. So will go off these.

Please let your doctor know of your reaction.

In two years of being on Lyrica for fibromyalgia and intense, still undiagnosed, muscle and bone pain with RLS, I have experienced very very little relief with quite a few side effects. My doctor insists there aren’t many treatment options and it’s basically lyrica or nothing. Two years ago I weighed 128. I now weigh 171 and am not happy. I was put on Effexor to alleviate some of the depression, but… Still not happy.

My client was using Lyrica for diabetic pain and was told to stop Lyrica cold turkey and onto another drug. Immediately, he suffered a grand mal seizure. Any similar events?

I have been taking 400 mg. lyrica for a couple of years now. I managed to stop over 2.5 months but was so sick i started again. it take much long than a week to quit? It has taken me over two months to go from 400 to 225. You must go very slowly or all hell breaks out with stomach cramping and the runs. Plan on staying home if you taper too fast.

When I asked for help, my doctor told me to just go ahead and quit. I asked about the withdrawal problems and he told me it wasn’t addictive. I went to the town neurologist who really seemed out of it. She tried to tell me it was all imagined on my part as Lyrica wasn’t addictive, sounded more like the oxy mini I take daily to her (I must have quit the oxy without knowing it…). She referred me to a shrink!

So, yes you probably will be on your own. try cutting back just a tiny bit each week by dumping some into a shot glass. if you get stomach issues you are going too quickly, take a little more for a day. when i get down to say 2.5 caps, i take an empty capsule and dip some in it so you are not throwing it away.

MMJ helps tremendously and I grew it for this reason. A nurse suggested soma and I have some. Soma seems very similar to Lyrica in how it works. 125 mg, half a tab is plenty for me but it is very addictive so don’t take it unless you get stressed, and you will get stressed. The MMJ, an indica is very helpful. I use a vaporizer made just for that purpose. get some exercise, take walks, etc. I have a dog so I have to do that anyway.

So, go slowly. if you can cut back 100 mg a month you are doing well. i have read 10% per month and I have been pushing 25%. good luck, tell the people around you and explain how you will be kind of crazy for awhile and why. john

What drug was he taking instead?

This scares the living crap out of me. How many other drugs are so dangerous when stopped cold?

I have seizures and my neurologist put me on lyrica 50mg 3 times a day along with ativan and zonisimide. I haven’t had a seizure for 8 months but really want to get off all these controlled substances starting with the lyrica. I too get the night sweats really bad even when I’m not trying to taper off and when I do try to taper off which I’ve done multiple times I have seizure symptoms. This all started three years ago when I developed swelling on my brain which led to seizures and now I’m stuck on seizure medicine for the rest of my life and I’m sick and tired of living my life like this tired all the time depressed and on all this medicine!

I’ve been taking a Lyrica for a rare nerve disease. I take 200mg 3 times a day. I’m scared to get off it, it’s been 6 years what should I do?

I am so so sorry. What are some seizure symptoms you’ve had? I really don’t know what to look for. Please and thank you!

Well, (after being on 13yrs.) I am on my 11 week of “LYRICA WITHDRAWAL HELL”. The burning & tingling is not as bad, insomnia is better but not going away, still having some night sweats. I wish it would just hurry up & go. My nerves can’t take much more.

* Be nice, and don't over share. View comment policy^