abusing diarrhea medicine, limit on loperamide

Sometimes the FDA takes actions that make people nervous. Concerns about abuse of the anti-diarrhea drug loperamide (Imodium) have the agency considering restrictions on this over-the-counter product. And that has some folks worried about how they will cope without it.

Imodium for Irritable Bowel Syndrome:

Q. I’ve read that the FDA is going to make it harder for people to buy Imodium. This is bad news for people like me with irritable bowel syndrome (diarrhea).

I have controlled my symptoms for years with one Imodium tablet per day. Without it, I need to be near a bathroom within 20 minutes of eating, and I need to stay seated for 10 to 20 minutes. Not fun.

This has been a cheap and easily available drug for IBS-D sufferers. I guess I need to stock up now before it becomes both expensive and hard to find.

What Is Imodium?

A. Loperamide (Imodium A-D) controls diarrhea by slowing the muscular contractions of the lower digestive tract. The agency wants to limit OTC dosage packs to eight pills, enough to treat acute diarrhea for two days.

Some people have been using high doses of loperamide to ease opioid withdrawal symptoms. Others have abused the drug in an effort to get high. It takes such high doses that people may experience irregular heart rhythms or cardiac arrest.

We have heard from many readers who suffer from chronic diarrhea. They rely on loperamide to be able to work or travel. Like you, they worry that the new regulations could raise the price and complicate their lives.

More Stories from Readers:

A.M. is frustrated by people who make it hard for others:

“Once again, drug abusers make it difficult for people who really need it.”

Carol says the new FDA plan would impact her life:

“If I have to limit my loperamide intake ( 1 per day), I would never be able to leave my house.”

Sura agrees with Carol:

“This is ridiculous. As an Irritable Bowel sufferer I need it often if I have to leave the house at certain times. I use loperamide when I travel almost every day.”

Donna in North Carolina says this drug is essential:

“My husband has an ileostomy due to ulcerative colitis/Crohn’s so he is prescribed loperamide. He can take up to 9 pills/day. Without it he would become dehydrated quickly because of the watery stool.”

What Do You Think?

The FDA wants to limit loperamide packages to 8 pills, enough for two days of treatment. Share your thoughts on this plan below in the comment section.

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  1. Lia
    CA
    Reply

    I can’t find any where I live that are inexpensive. I have colitis since age 19 and I’m 50. I take up to 10 on a bad day.

    Because of a few people am I now going to have to stop living my life. See my family go out and me have to stay home. Thank you gov tell me why are we still able to buy booze and cigarettes.

    It’s not fair to us the people that jave real issues.

  2. Bender
    California
    Reply

    This is utter nonsense and another irresponsible move from the FDA. If people want to overdose on Imodium, let them. Those of us who actually NEED the drug to control our IBS are more important than a bunch of moron drug addicts. This drug is the only thing allowing me to actually function in society. Hey FDA, you want to pay all of my bills and rent because youre taking away my vital meds? Idiocy beyond compare.

  3. Ted
    California
    Reply

    I have had a complete colectomy and require at least two Imodium pills per day. My cost for 400 generic pills from Costco went from around $5 to $75. This is just another case of the tail wagging the dog. A minority of people who are abusers affect a great number of people who rely on this medication to live a normal daily life. I do not want to have to go to a stronger opiate and an expensive prescription in order to get the relief I require.

  4. Mike
    Ilinois
    Reply

    As a j-poucher I use a lot of Imodium. My surgeon recommends 2 before every meal and 2 at bed time. Sometimes I use more than that. I’ve been getting a 2 pack of bottles at a discount store for the best price, but I ran out the other day and tried to get some at another discount store. They would only sell me one of the two bottles I wanted! So it begins!

  5. Christina
    WA
    Reply

    This is a terrible idea. Any drug can kill you if you use it incorrectly. Tylenol for example will destroy your liver if you OD. Taking a maintenance dose of loperamide is one of the most important tools to control my IBS and give me something resembling a normal life. Restricting access to loperamide is not going to solve the problems we are having with opioid addiction and death. Access to medical treatment for addiction might. But that is another story. DO NOT RESTRICT loperamide, millions with GI disorders will suffer more than we already do.

  6. Donald
    Miami, FL
    Reply

    I have been taking 9 Imodium (generic) tablets a day for 30 years to control colitis related diarrhea. I am horrified to learn of this FDA action. How DARE they. Not having my Loperamide will mean that I cannot leave the house, work, or go to church. I might as well die.

  7. B
    Reply

    I too have an ostomy and I take loperamide daily. I have to take a lot, otherwise I’m just filling up with liquid sh!t all day. What cost me $10 for the month, now costs $70-100 or I could pay twice that for a prescription drug with lots of side effects. Thanks FDA Fuxing Dix of America. Way more people have died from alcohol and aspirin, but I don’t see you fing around with those. Go eat a d*ck.

  8. Lilleth
    wake county nc
    Reply

    Absurd plan. Not only do people with IBS need this mild drug. When people are sick with infections it can be a lifesaver. Ridiculous.

  9. Captainr9k
    Reply

    All I’m going to say is that your body wants that stuff out for a reason, and if you find yourself using Imodium frequently (with no easily identifiable reason or diagnosis), please see a doctor.

    • Chris
      North Carolina
      Reply

      I understand what you are saying as I have had food poisoning more than once, and yes “that stuff needs to get out” of a person. On the other hand, I also have Irritable Bowel Syndrome-D, which is a motility problem and nothing to do with “bad stuff” in your bowel. Thanks.

    • Margaret
      Reply

      Apparently you do not have microscopic colitis. It causes watery diarreah up to 20 times per day.

  10. Penelope
    Florida
    Reply

    It seems every time that bug Pharma finds a pill they want to sell, they find a way to proscribe a tried and true, inexpensive medication that is now generic! They are the most profitable sector of the US economy–on the backs of sick people and Medicare. How can we get them out of the business of being the fox guarding the hen house of our medical system?

  11. Pauline
    North Carolina
    Reply

    My husband has Pulmonary Fibrosis and is on the drug Ofev. It is a godsend and he is now off supplementing oxygen. Unfortunately, the main side effect is chronic diarrhea. Imodium is the best drug he’s taken for it. Even the generic Imodium, does not work as well. He takes it on an as-needed basis which is certainly not every day. However, it’s something we keep a good supply of on hand. I would hate to have to run to the drug store every few days to replenish our supply.

  12. Janne
    Alabama
    Reply

    There are SO many more responsible users of loperamide than abusers. 8/pkg is too few.

    • Chris
      Reply

      Well said.

  13. Laurie La B
    Arizona
    Reply

    I have a bad case of IBS. It rules my life. Can’t go out all day anywhere. I don’t like taking meds but if I get invited to eat out, Imodium is a life saver. Even then I only take 1/2 a pill.

    This is a terrible disease. I had a bad case if UTI that the drs. Couldn’t clear up. A friend cleared it with essential oils and herbs. And feels she can help with ibs. My dr. was very impressed with the results and said to stay on the oils. So there are different ways to help our health problems so we don’t have to depend on drugs.

    But Imodium is helpful and it is a shame that a few people have to abuse it, so it isn’t available to those who can’t find anything else that works.

  14. Richard
    Homosassa, FL
    Reply

    I have IBS controlled with 2-4 pills per day. My nearest pharmacy is a 2-hour round trip. Limiting my purchase will mean spending the rest of my life commuting to the drug store.

    In trying to abolish every substance that can be abused, FDA is acting like a Biased tyrant. If they really wanted to protect people from dangerous drugs they would limit access to sugar.

    Children can be abused. When is FDA going to limit human reproduction?

  15. Sharon
    California
    Reply

    Is this truly happening? Or just a proposal? As seen by these comments, this is an essential otc solution. Who can we contact to combat this ruling?

  16. Jorge
    Reply

    Is there an FDA website where people can post their concerns?

  17. Mary
    Raleigh
    Reply

    I am troubled with IBS and once I read in your column about peppermint oil I started taking that before meals and it really works for me. Better than taking chemicals.

  18. Doug
    Philadelphia Pa
    Reply

    We will NOT control drug abuse by regulating. We need treatment. A recovering alcoholic.

  19. Husie
    South Carolina
    Reply

    Hallelujah ! * I wished I’d found a penny every time I heard that said in conversations across this country ( USA ). The f.d.a. appears to jump up & down in glee every time they stop Americans from using proven old time remedies , especially if there’s a big pharma, prescription needed product available. American Citizens do not need a government agency to baby us !

  20. ray
    Reply

    Sounds like FDA has failed us again. It’s not like somebody is gonna take them if not need and be constipated. They should be more concerned with fast track med to market because big pharma gave some money.

  21. Anon
    U.S.
    Reply

    My mother has struggled with chronic diarrhea for 30+ years. Now that she has dementia and is under my care, I have consulted with her doctor and she is now taking 2 OTC loperamide a day, as PRESCRIBED. And when she had to be hospitalized last year and they didn’t believe she really needed them, well, they learned.

    I wonder if an Rx will be a way to get around the FDA recommendations.

  22. Julia
    Seattle
    Reply

    I have Crohn’s disease and an a high output ileostomy. Without 4-6 pills daily of Imodium I couldn’t work or leave the house. Will you please forward these comments to the FDA?

  23. Nancy
    Illinois
    Reply

    I have IBS which got so severe I was hospitalized. I am 76 yrs. old and the diarrhea became so severe that my potassium levels dropped to a dangerous level because of all the nutrients I was losing. I had to have potassium infusions to replenish and bring my levels within a normal level. The anxiety that ensues with the fear of having a bout of diarrhea is not “fun”.

    Loperamide is the only thing that helps to get the diarrhea under control. One can overdose on anything including aspirin and Pepto Bismol for that matter. The FDA should focus on more serious issues not Imodium. This absolutely ridiculous!!!

  24. Diane
    Houston,TX
    Reply

    It baffles..no..infuriates me that a diarrhea treatment, a vital quality of life med for so many, would be restricted.
    I have had occasional, (horrendous) bouts of IBS-D..as in being admitted to an ER for IVs and treatment. It can be dreadful and embarrassing.

    My husband recently died of cirrhosis, a horrible but avoidable death stemming from an addiction. I never noticed bars being closed or alcohol being made unavailable. This is why after 3 rounds of unsuccessful treatment last fall for a serious respiratory infection, that lasted many weeks, I was FINALLY given a scrip for codeine cough syrup..$170 a bottle!…and was told by the Walgreen’s pharmacist Medicare “doesn’t like” to cover cough meds!! Ridiculous.

    • Lilleth
      wake county nc
      Reply

      Amen.

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