Prednisone (and similar corticosteroids) can be a life saving drug. It saved my sanity when I developed sudden hearing loss in one ear. That was a really scary experience for someone who depends on hearing to be able to do live radio.

The ear, nose and throat specialist diagnosed my deafness as “idiopathic sudden sensorineural hearing loss.” In other words, he didn’t have a clue what caused it. He did prescribe high doses of prednisone and within a few days my hearing returned.

Similar corticosteroids like Prednisone include

  • Cortisone
  • Dexamethasone
  • Hydrocortisone
  • Methylprednisolone
  • Prednisolone

There are many conditions for which such drugs can be extremely valuable, even life saving. Here are just a few:

When Prednisone is Helpful

  • Very serious allergic reactions (bad poison ivy for example)
  • Anaphylactic shock (life-threatening allergic reaction)
  • Brain tumors
  • Inflammatory bowel disease (Crohn’s disease)
  • Severe asthma (usually to help control acute flare-ups)
  • Severe nausea of chemotherapy
  • High altitude sickness (when there is brain swelling)
  • Traumatic brain injury
  • Addison’s disease
  • Rheumatoid arthritis, lupus and polymyalgia rheumatica (PMR)
  • Multiple sclerosis (MS)
  • Giant cell arteritis

As useful as corticosteroids can be for a wide range of conditions, the drugs can also cause an extraordinary number of serious side effects. Some people have likened this to a deal with the devil. Even short-term use can cause problems.

My personal experience with Prednisone

The week or two that I took prednisone for my hearing loss I couldn’t sleep, became incredibly irritable and hard to live with, and felt as if I had turned into someone I didn’t know or like. A study in the American Journal of Psychiatry analyzed data from hundreds of thousands of European patients over an 18 year period.

They discovered that people taking corticosteroids were more likely to experience neuropsychiatric symptoms including depression, suicidal thoughts (and actions), delirium, disorientation, confusion, panic and manic episodes.

The authors conclude that: “Glucocorticoids [another term for corticosteroids] increase the risk of suicidal behavior and neuropsychiatric disorders. Educating patients and their families about these adverse events and increasing primary care physicians’ awareness about their occurrence should facilitate early monitoring.”

I can relate. I certainly felt disoriented and out of control on the relatively high dose I was taking. The trouble is that patients and their families are not always warned about such side effects.

Scary Prednisone side effects that have been reported to us

“Years ago I was given prednisone in the emergency room for a severe anaphylactic reaction that affected my ability to breathe and caused massive hives. Although the treatment may have been necessary, I too had a severe psychotic reaction and when I finally went to my own doctor and had blood tests, my blood chemistry was all over the map. I had to continue the tapered dose till I was done but I wish someone had warned me of possible side effects so at least I wouldn’t think I was totally crazy.

“I questioned my ability to drive, slept constantly, and was quite volatile. I had to take a day off from work. Knowledge is power! People should be warned about possible side effects so they have the information should side effects occur.”


“I was on 20mg twice a day of prednisone for a sinus infection. Had I known anything about this horrible drug I would have never taken the meds and let my sinus infection clear up on its own. That would have been better than these side effects.
“I was not told to taper the dose, so I took as prescribed 20mg twice daily for 7 days. The day after stopping my whole body hurt to the touch, as if I was black and blue all over. I was swollen, red and had a lump on my neck, not to mention being very disoriented. I went back to the doctor and he insisted this had nothing to do with the drug.
“I checked myself into the ER where they put an IV drip with benadryl and the like. I was discharged that day. No change. Next day, didn’t hurt to the touch anymore. New side effect – rash from head to toe and severe indigestion. Following day, rash subsiding, indigestion getting better. Still feeling a bit loopy, but I am told by next week I should be back to myself again.
“I am warning everyone i know not to ever take a steroid unless your life is in danger. It is a very scary feeling – all for a sinus infection.”

“I’m having Prednisone side effects. My doctor prescribed this drug last Thursday. She prescribed 20mg twice daily for five days. I was sleepless for three days in row. On day 4 after a short nap I awake feeling so nervous. I am crying, my hands are shaking, and my heart is beating so hard. These are awful feelings.
“My doctor told me I will feel that way for about nine days. She didn’t show any care about me. She also said I can go back to work (and drive a long way) the next day. But the way I was and am feeling I’m not daring to drive even one block.
“I do not understand why she prescribed that medicine, without any warning, for a small allergy I had. I mean the medicine was worse than my illness.”

“My wife had sleepless nights when on prednisone and the doctor said that she might do some odd things that she normally wouldn’t do. He was right. One night she got up and tore down the wall paper in our bathroom :-) We still get a laugh over this one.”
-Bob K.

“I am experiencing high blood pressure, agoraphobia, panic attacks, light headedness, confusion, weakness, intolerance to heat, IBS, shaking, etc. These side effects all started the day I stopped the drug. It has been 7 days with not much improvement. I was hospitalized for 3 days. I pray I do not EVER have to take prednisone again… EVER.
“I am hoping I get past this. My quality of life stinks. I took 30mg 1 day 20mg 2 days and 1 mg 2 days. Absolutely HATE this.”

These are just some of the messages that have been posted to our website. Feel free to add your story or comment below. We find it astonishing that some prescribers do not warn patients about the possibility of psychological side effects brought on by prednisone and friends. Even a short-course of high-dose steroid can precipitate symptoms. And not warning about gradual tapering borders on bad medicine. To protect yourself and your loved ones from such medical mistakes we suggest our latest book, Top Screw-ups Doctors Make and How to Avoid Them.

We want to emphasize that corticosteroids can be very valuable. Some people must take them for the rest of their lives because of a very serious or life-threatening condition. And NO ONE should ever stop taking a drug like prednisone suddenly. It must be phased off gradually under medical supervision.

Other side effects associated with corticosteroids like Prednisone

  • Fluid retention, edema
  • Insomnia
  • Irritability, nervousness, mood swings, mania, depression, psychosis
  • Disorientation, confusion
  • Hypertension
  • Loss of potassium
  • Headache
  • Dizziness, vertigo
  • Muscle weakness
  • Blood sugar elevation (diabetes)
  • Irregular menstrual cycles
  • Swollen face
  • Hair growth (including on the face)
  • Itching, rash, hives
  • Increased susceptibility to infection
  • Weakened bones (osteopenia, osteoporosis)
  • Tendon rupture
  • Glaucoma
  • Cataracts
  • Ulcers

The higher the dose and the longer someone takes a drug like prednisone the more likely there will be side effects. Make sure your physician is monitoring things like potassium, blood sugar, bone density and psychological well being. And never stop a corticosteroid suddenly!

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  1. Wendy

    I have been on prednisone for about a year and a half. This isnt my first time on it. I have been on and off it for the last 17 years to treat my crohns. I have always gotten the moon face and always felt hungry (that is both a blessing and a curse with Crohns) I would get spasms in my neck and back and my skin would hurt to the touch. Almost like I was bruised everywhere. I wouldn’t say I ever got the extra kick of energy that some people talk about but I did get the sleeplessness. Well this last time, the past year and a half, I have had every symptom imaginable. Including some long term effects that I cant reverse, weak and breaking teeth and osteopenia. At this current moment I am dealing with the following side effects all at once:
    moon face, hunger, muscle spasms, skin hurts to the touch, restlessness, Fluid retention, Insomnia, Irritability, nervousness, mood swings, depression, Disorientation, confusion, Dizziness, vertigo, Muscle weakness, rash, weaken immune system, Increased susceptibility to infection, shaking, cold sweats, always hot, increased heart rate, and nausea. I think I may have named all of them. For as much as the drug helps the flare I don’t know how much longer I can deal with the horrible side effects.

  2. pookie

    I was prescribed prednisone for inflammation in my eyes due to sarcoidosis 20mg, I have had every symptom possible from this drug. Sleepless nights increased axiety, depression ,irritability you name it. I tapered off and wow ive been having heart palpitations, insomnia ,I gain a bunch if weigh but the oddes thing is I seem to have something pressing agaisnt my diaphragm which makes it hard to breath at times has anyone experienced this I’ve had exrays and nothings was there my doc says its from stress. Oh did i mention Ive taken prednisone twice before with no complications!

  3. Loralee
    Northern CA

    Thank you, Joe, for this site. I had been prescribed a short, tapered dose of Pred. for a possible pinched nerve in my neck, with the symptoms being a mere sore shoulder and arm. When the dr. mentioned giving me Pred., I my radar went up because I’d heard it was a nasty drug. I went ahead and got the prescription, because it was cheap enough that I wouldn’t feel like I’d wasted my $$ if I didn’t take it after all. I was about to take my first pill this AM, but decided to do more research before taking it, and found your site. I am NOT going to even think about taking it right now!
    So, again, thank you for proving the info, especially the forum for others to tell what they’ve gone through!

  4. Moe
    Tinley park,il

    I had a bad experience with prednisone. & then 2years later took it again. But I stopped it too soon. I was still fine the whole time. But a week later decided to finish the prednisone. Now I feel worse like the time I took it 2 years ago. I tried my multivitamin make it extremely bad. Now I have even more physical side effects. Does anyone have any good remedies to counteract the side effects?

  5. Classless Noodle

    I was diagnosed with ulcerative pancolitis just over two years ago, and after four months of shot gunning medications to see what stuck, my doctor prescribed prednisone. For a month or so I was on a standard 20mg dose, and feeling all the usual side effects. But it didn’t really help, so the dosage was upped to 40mg for nearly 7 months before I switched doctors. After weaning off of prednisone over the course of three months, I was put on budesanide or something and eventually got into remission in spring of 2015 and off of steroids by that June, but not after having to withdraw from my first year of college due to immunosuppressive and perpetual illness. Now that I have started college over as a freshman at 19 years, I still see after effects of prednisone that really effects the way I do work, creating inconsistencies in: focus, thoroughness, memory, anxiety, irritability and more. As if there was a shadow of the person prednisone twisted me into.
    Did prednisone save me from a lot of terrible side effects? Definitely. Was relief from those side effects worth the damage that may have been done on my brain by side effects? Only time can tell. Regardless, it’s my burden to carry now, so I may as well try to keep going.

  6. Rebecca

    I was prescribed Prednisone 20mg twice daily for 5 days (no taper) for muscle tension. On the 5th day, I took the pill in the morning and started becoming very jittery, had heart palpitations, and very blurry vision. Decided not to take my last pill. The next morning (yesterday, actually), I woke up with heart palpitations again, blurry vision, confusion, shortness of breath, and tightness in my chest. I went to the ER, at the same hospital where I was prescribed the Prednisone. After 4 hours, and EKG, head CT, Chest XRay, and numerous blood draws, I was diagnosed with “anxiety”. It is now 4:52am, and I have been up for 2 hours with severe muscle soreness (it hurts all over to the touch) and a splitting headache. I’m hoping this will go away over the next couple of days. I consistently asked in the ER if it could be Prednisone withdrawal, and they were adamant that it was not possible. I will NEVER take this medication again, even if my life depended on it. It is definitely not worth it!

  7. Brenda

    Yes this is a drug with very mixed blessings. My partner has been on and off oral steroids 20 years with very horrible side effects and most definitely should be give out with better warnings than at present. G.Ps are far to dismissive of thes problems.
    Due the changes in my partners mood, he has become very bad tempered and aggressive and seems to be in semi permanent state of rage, this has brought our relationship the point of collapse because he’s now so irrational and in denial that we can’t communicate. My advice is don’t leave it to long to report bad side effects to a medical person.

  8. Jandee
    South Carolina

    I am so glad that I found this site awhile back. When I was on prednisone I thought I was loosing my mind. Hot sweats, red face, no sleep, irritable, shakes, didn’t want to go anywhere or see anyone. I was either crying being mean! I was taking 50mg for about 3 week the 40 for a week the 30,then 20. When I got to 20 mg I broke out in BIG hives all over my body. It was awful. Dr. put me back up to 40 for 2 weeks and they went away but he then had to start lowering me back down again. 30 for a week,20 for a week, 10 for a week 5 for a week then 2.5. When he took me off all together I thought Woohoo I am done…not so..for the next 4-5 weeks I had the shakes, dry heaves, slept all the time, still had hot a cold flashes, and could not eat. I had gained at least 20 lbs. while I was on it but with the after affects I lost it all but looked like the walking dead and was glad I live alone so no one had to put up with my crying spells then my anger. Now after being off of it for 5 weeks I am finally feeling more of myself thank God. My Dr. never told me about the effects of this drug so I started to do some research and found this site and It saved my life because I realized I was not alone in this battle of the “Devil Drug”. I told my Dr. that unless I was on my death bed I don’t want to every be on this again! A shout out to all of you who have written in telling of your experience because it made a whole lot of difference in my life and helped me get through this. Thanks to you all and good luck

    • Donna G.

      Thank God for this website. Others going through the same thing help assure me I am not alone with theses reactions to prednisone. My fears are quieted as long as I do exactly what my Dr. says. DG

  9. Mary

    I’ve only used this medicine for 10 days due to severe asthma attack. The emotional side effect that I experienced was so bad. Sleeplessness on first night, then I was just too lazy to do anything. I thought it was just my asthma. I have been thinking lots of things. I was anxious, depressed, and my limbs also hurt. I am suspicious of everyone. I think I’m going crazy. My eyes looks sleepy the whole time. I am sleepy but I couldn’t sleep. I was just staring on blank walls.

    I continue to live my normal life, but I have suicidal thoughts. It became worse after a week. I couldn’t feel anything, physically or emotionally. I am numb. I don’t have emotion, I just want to die. My doctor did not warn me of the side effects. I researched and found this site, and it helped me to understand what is happening to me. It made me feel better knowing I am not going crazy at all, and that I am not the only one experiencing this things.

  10. Mary Ellen
    Upstate NY

    I have a lung disease called BOOP. It’s mainly chronic pneumonia and bronchitis. I started out with dry coughs and losing my voice.

    My family members made me see a doctor as they were tired of me coughing or clearing my throat while talking to them on the phone. I had a lung biopsy to rule out cancer. Which they did. I had xrays which showed popcorn like things on both lungs. They put me on 60mg of predisone and then tapered off til I was totally off it, which took about a year.

    I had just about every side effect you can imagine during this time. Then I was ok til the following year around September again when I had problems breathing. I would have bad days that I couldn’t breathe and would need to use my breathing machine.

    I again had xrays and again they saw signs of the popcorn stuff in my lungs. When this happens they told me that if I don’t go on steroids, the lungs start developing this stuff on them and it could take over where I wont be able to catch my breath and would just die from not being able to breath.

    The steroids help keep this mass off my lungs. I do get the side effects and I have to learn to live with it. The doctor has told me that if I get xrays and it shows this stuff on the lungs I take the steroids or death will occur eventually due to the mass taking over my lungs and I wouldn’t be able to take a breath in or out. So steroids it is because I am not ready to die and not being able to breath sounds scary.

    The side effects are endured with the help of my husband and family. As I am typing this its midnight. I am starting the not so fun night sweats. I change my clothes a couple times a night. I retain so much fluid that I think my head is going to bust and my elbows hurt so bad. My elbows, feet and hands are so swollen they hurt. When I go to bed I move so much that I don’t fall asleep til 3 and some times even 5 or6 in the mornings and want to sleep til noon. I am that tired. When I am in bed and cant sleep, I think. Like how tomorrow I will eat better so I can lose the weight I have gained from eating like a pig. But then the next day I am hungry and my eating better goes out the window with drinking less pepsi and drinking more water.

    I take a diaretic so I can get the fluid off me so it doesn’t hurt. But I have to stay home close to a bathroom so having a life outside of the house is out of the question. Looking in the mirror at my beautiful fat reddened face depresses me. I also have this totally round belly that I cant do much about. It just gets bigger and more rounded.

    I get to buy new clothes but have to buy one or two sizes bigger just isn’t much fun. My heart loves my husband and family, but my mind just wants them to go away until I get down to five mgs of steroids at least. I get headaches. I love to read books and go online but my eyes feel too much pressure so I go on for a bit then get off for bit. And that goes with watching tv too. It’s hard to watch for a long period of time. A show or two at once is enough. Well this is my life in a nutshell. I am alive with the steroids whatever that entails. Take them and do the side effect time or don’t take them, have a breathing episode and die. I guess I take and just get by. Gods speed to you all.

    • Loralee
      Northern CA

      I just read your story, Mary Ellen, and I really feel for you! I just wanted you to know that I will be praying for you, that you would either be healed, so you don’t have to go through this at all, or that at least it wouldn’t be so bad for you, that the popcorn stuff wouldn’t grow, and that the side effects would greatly lesson…. You’re not alone! Somebody cares besides your family! (And thank God for them, right? =) )

      • pookie
        Alameda ,Ca

        Im so sorry your going through this praying for you

    • Donna G.

      I have the exactly same side effects as you! was in hospital with pneumonia and bronchitis. While in hospital, was on high doses of decadron IV. Sent home on tapering down prednisone dosage and I take it exactly as prescribed! I have a swollen face, neck, belly, and thighs due to fluid retention. Prednisone makes me more active and increased eating; but the fluid is why I have the weight gain.

      Steroids make me hyper and I talk and talk too loud. The most troubling side effect is the night sweats that SOAK my pajamas, pillow, and bed clothes, my hair. I don’t know till I wake up freezing wet the next morning. Prednisone helps the breathing problem, but also have jitteriness, spells of irritability, some mania. like you, I don’t know what size pants to wear; but it’s the fluid and not actual weight gain! Tapering prednisone down 10mg every 5 days. I had no idea steroids could do this to me. I will still follow dr’s orders and dosing. Just good to know I am not alone with having theses symptoms.

  11. Berkley
    Medford, OR

    On yeah it causes cataracts. I’m 27 and have to have surgery in both my eyes. Until then I’m legally blind

  12. Berkley
    Medford, OR

    Ah prednisone horror stories. I have to take prednisone everyday. I have had to for five years straight since my bone marrow transplant. I have to take a dozen other drugs to counteract the side effects of both short term intensive doses and long term use effects.

    It’s a miracle drug when you absolutely need it. I would be either dead or slowly dying from the very painful effects of graft vs. host’s disease.

    This article shows short term effects of high dose steroids. It can also cause edema in your extremities. It can cause you to have both bleeding and clotting issues.

    Joint pain is common due to swelling as well as osteoporosis. Fungal infections are common and can occur pretty much anywhere on or in your body. It can cause infertility.

    As with any drug prolonged use can cause damage to the liver and kidneys. It helps the body fight off certain things but makes it weak for fighting off other problems. So as long as I’m on prednisone I stay alive,I just have to take a high level of pain meds, muscle relaxers, antifungal for oral thrush and to protect other areas, inhaled steroids for breathing issues, amphetamines to improve focus and keep me awake, sedatives to sleep.

    I have also had to have lots of tests and surgeries to deal with some of the issues. Last year I was hospitalized when blood clots formed in my legs and caused my lungs to fill up with multiple embolisms. So I now have to take blood thinners.

    Prednisone also thins the skin making it easy to tear or rip. I’m covered in stretchmarks from swelling. It can cause spasms in the intestines and an overactive bladder. It causes severe heartburn and nausea. There are a lot more side effects out there too.

    • Loralee
      Northern CA

      I’m sorry you’re having to go through all of that, Berkley… =( I will keep you in my prayers…

  13. Janice

    I have known for several years how my body reacts to Prednisone. The most irritating one is sleeplessness, and by this I mean excessive sleeplessness. I cannot sleep, day or night. I see every hour on the clock all night long for as many days as I am on the medication. I could get up and clean but I would disturb everyone in the household. Therefore, I just stay in bed and toss and turn.

    I had never associated my anxiousness or mood swings with the drug. I am glad I read those others posted. I have been pretty calm and even tempered lately. I am on Prednisone 25mg., 2 for 2 days. Then tapering one each day for 2 days. I also experience weight gain and bloating.

    These were enough side effects for me to tremendously dislike taking the drug. I have congestion in my lungs. That is why I was prescribed Prednisone. My doctor knows that I detest this drug but he continues to prescribe it.

    I have a bottle from my last upper respiratory difficulties that I never took because I felt like I was recovering on my on and did not need it. I was and did recover in a day or two after that doctor visit. This time, I awoke to a growling in my lungs that I felt as well as heard. My dog heard it as well and promptly jumped from the bed and ran outside through her doggy door and started barking. I got up fairly early and waited for the office staff to start receiving calls for the day at my doctor’s office. I saw him at or shortly after 10:15 a.m. He first told me he was going to prescribe a Z Pack. I can sleep while taking that.

    However, he came back into the exam room and said he had sent Prednisone and Azithromycin to my pharmacy. I was too afraid of what was going on inside my lungs not to take the drugs as prescribed. I went to bed last night at or around 11:00 p.m. I was able to sleep until sometime around 3:00 a.m. I lay there and tossed and turned until 4:30 a.m. I got up and took my meds and have been here on my computer.
    I guess I did not start to experience the sleeplessness until 3:00 a.m.

    If past history proves true, I will be awake all night. I am now very jittery feeling, maybe from 2 cups of coffee or maybe from the drug. I usually drink 2 cups in the morning with no ill effects. I do not ingest caffeine later in the day though because it can keep me awake at night also.

    After reading the side effects other people have experienced I will be paying close attention to my emotions. I am a fairly rational person but I have experienced panic attacks, had suicidal thoughts, anxiety, anger, frustration in dealing with people, etc. I was in psychotherapy back in my 30’s for extreme depression. So I really do know something about those symptoms. I just never associated them with having taken Prednisone. So I am on alert now. I hope I never have to take Prednisone again and my heart goes out to anyone who does. Wishing you all no more side effects and speedy recoveries.

  14. Sara

    As the author states, high dose steroids is no joke and can wreak havoc on your body for weeks during and after treatment. I am a severe asthmatic and have to rely on steroids to keep my airways open. I have taken inhaled steroids, been administered IV steroids (those are the worst in my opinion!) and oral. I have experienced everything from aggressive behavior and uncontrollable shaking to hot flashes and severe body aches as described above. Oh and insomnia, which is why I’m on this site in the early hours of the morning.

    It is essential that you discuss with your doctor how necessary steroids are to your treatment and if there is a way to avoid sudden withdrawal. I take an oral steroid, when I have to, that starts with a full steroid dose and slowly tapers off. I no longer experience severe body aches (which got so bad I cried when anything touched me) and my volatile mood swings, while still present, are less severe and manageable.

    You must be your own advocate and don’t be afraid to question your doctor. Obviously in a life threatening situation this is not possible, but when the initial crisis has passed don’t be afraid to speak up for yourself! The best advice I can offer to others is ASK QUESTIONS. Ask about side effects, how to minimize them, what the medication is for and if there is another, less severe, option. Doctors are very busy, but it is their duty to make sure you understand the care you are receiving. They are not gods, and they don’t want to cause you discomfort so help them by telling them what side effects you’ve experienced in the past. Trust me, they are usually more than happy to discuss other treatment options. And if that doesn’t work, there is no reason you can’t get a second opinion or a new doctor. Now if anyone knows how to curb the crazy appetite that accompanies steroids that would be helpful :)

  15. Eva

    Avoid sugar, fats, carbs, high sodium and side effects won’t be as severe. I developed “drug induced immune hemolytic aneomia” from an over the counter supplement, and required 6 units of blood and a long, slowly- tapering prescription of prednisone, to save my life. So prednisone (stopping the immune response of my body attacking my red blood cells) was NOT optional. Started at 60 mg for a week, then 40,20, down to 10 for 2 weeks, then will be 5, on down. Besides some insomnia, restlessness, lack of appetite, and feeling somewhat volatile/irrational at times, my side effects have been mild, and no weight gain so far. However, one of my doctors said the worst physical effects are diet related. Eat very little sugar, carbs, sodium. Increase potassium, calcium, protein. It’s worth it.

  16. Loreen
    Tacoma, WA

    A few years ago I was having allergies. My nose was all stuffed up, and I was coughing. The doctor said I had asthma and put me on prednisone. I got so sick. My back hurt so horribly I was having my granddaughter beat my back to loosen congestion. I couldn’t breathe. I went to the ER. They gave me a breathing treatment and sent me home with orders to follow-up with my primary care provider. Every Time I went back to the doctor I was a little sicker.

    I ended up back in the ER. They gave me another breathing treatment. They were going to send me back home when blood result showed potassium levels dangerously low. I was admitted to cardiac care to make sure no damage. Had a huge IV bag of potassium. Still prednisone kept coming. Blood pressure was so high the machine couldn’t read it. My blood sugar was so high I developed neuropathy in my hands. Got control over that, and they sent me home to follow with primary care doctor again. We talked about what had been happening. He said to stop the prednisone now and not to taper. Do it now.

    It took a couple weeks to withdraw, meaning that I slept pretty much all day. But eventually everything straightened out. No more pills. Needed nasal surgery not prednisone. Doing great now. Will always refuse to take prednisone.

  17. Seth

    My fiance was prescribed prednisone for a severe allergic reaction to hair dye. Not only were the doctor’s instructions far less than clear (confusing in fact) but there was NO warning about possible side-effects. For an individual who already suffers from several emotional issues, it would have been very helpful to know that. Due to the misleading dosage information, she took three doses at once the first day. Needless to say this caused quite the reaction.
    Bottle reads:
    Take three pills daily for 3 days
    Take two pills daily for 3 days
    Take one pill daily for 4 days
    Take with food
    Perhaps this would make sense to others, but we took it to mean that she was to take three pills (at once) daily for three days, two pills (at once) daily, etc. In fact she was supposed to take three pills three times a day for three days, two pills two times a day for three days, and one pill for four days. Shortly after taking that first dose she became itchy and broke out with a mild rash, swelling began in her face, she became extremely irritable, aggressive, argumentative, and (by her own admission) irrational. She thought she was losing her mind. She lashed out at family and friends who knew nothing of the medication or side-effects. To them, it seemed as if she was “losing it”. Thankfully everyone was patient and listened to us when we tried to explain the reaction with our limited knowledge. You would think the reaction would diminish after she finished the prescription, however the effects continued for almost two months after. Doctors need to be held accountable for these things! Especially when suicide is so likely with individuals with preexisting emotional issues.

  18. Lindsay

    Well I started having bad side effects to steroids about a year ago when I had gotten sick with a sinus infection, my face turned completely blood red like a lobster and felt like I had just crisped in a tanning bed for hours, doctor said that happens a lot that it will go away!

    So I’ve been sick twice since then having to have steroids, mind you they know what they do to me but say it’s one of the more normal symptoms, well this time I have pneumonia!

    After reading everything I have on prednisone side effects this past week I’m honestly freaked out! I have had every worse side effect possible due to this medicine and just read that if I had this and that which was almost every single one listed I should have stopped the medicine already and called my doctor, but I’ve already been making myself take this crap for a week! Started with a shot in the hip and then three days later I had to start taking prednisone 20mg two pills a day for five days! I just finished today!

    I still of course have had the red lobster face every single day and the heat that I absolutely cannot stand consuming my face, but this time I’ve had so many terrible side effects along with that, that every single night I’ve stayed scared to death and unable to even sleep because I’m scared to go to sleep.

    After reading the side effects that I should have stopped due to immediately has me scared to death, have I harmed myself or put my health in danger? I have three beautiful young babies to care for and be here for, I honestly don’t know what I would do if this would consume me any longer!

    I don’t know about you all, I’ve read a few of your posts and we all sound similar in ways, but here is what has happened to me since taking it, and not to mention like I said it says I should have stopped this medicine immediately when this happened and called my doctor! So at night I start getting really anxious and have shortness of breath, I have this dry hacking cough where I feel like I can’t get anything up or relief, I feel swimmy headed as if I’m half way out of it, my heart races, I’ve had headaches, and the anxiety is immense!! I’ve had numbness in my arms and legs, and of course the burning and tingling in my face, and I’ve also noticed my taste to things has been compromised!

    So all of this because of this stupid steroid! I’m honestly now scared to death cause I’m also reading that you can have even steroid withdrawal when they are stopped! If it gets any worse then this I may lose my mind, this has me scared to death honestly! I find it so hard to breathe right at this time of the night, this is when it always gets really bad for me! I’m scared to lay down because of how I feel, what if I don’t wake up or something, and now I’m scared if this is gonna cause any long term affects on me! I’m praying it doesn’t! But this steroid has had me so messed up and for a while there I thought I was crazy n just letting my anxiety get to me but it’s not that at all, it’s these pills!

    I’m luckily done with them as of today but not I’m scared theres more to come! I’ve never heard of something as simple as a steroid causing things like this, it blows my mind! I never had trouble with them when I was younger this honestly just recently started about a year or so ago, and now I’ve been researching since all of this has been happening to me to find out that I’m far from the only one! I just pray this doesn’t continue and it goes away and they I have no long term affects from it, and I pray it doesn’t compromise my health it anyway! I just couldn’t wrap my head around why this pill that was suppose to me making me feel better from pneumonia was making me feel so much worse! I mean I was short of breath and having trouble with my lungs before but taking his has made me feel ten times worse!

    I don’t recommend it I really don’t! If u start having any symptoms I have listed above when you start a steroid id advise you to stop them immediately because I promise you, you don’t want to go through this! I wouldn’t wish these feelings on my worst enemy and that’s the truth!! So sorry to all of you who have had to go through this as well, it’s not joke and very serious and nothing to mess with!

    • Joan
      Trenton, NJ

      I was where you are now a few months ago after taking prednisone five+ months. Your story sounds so much line mine and I am here to tell you that you will get better and recover. it may not be easy but you will be yourself again. I never thought it would be because that’s what this medicine makes you think. Just hang in there
      …you will be o.k. and just keep hugging your babies.

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