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816 Balance Disorders (Archive)

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Most children love to roll or spin until they feel dizzy. But though adults may also enjoy amusement rides, unwanted dizziness is no fun. There are many potential causes, and diagnosis can be difficult. A leading expert on balance disorders helps us sort out the various types of vertigo and how they can be treated.

Guest: David M. Kaylie, MD, FACS, is Associate Professor and Medical Director of the Vestibular Lab in the Department of Otolaryngology - Head and Neck Surgery at Duke University Medical Center.

Dr. Kaylie suggests that if your physician cannot solve your balance disorder, you may need to look for a specialist. One place to look is: www.Vestibular.org
The podcast of this program will be available the Monday after the broadcast date. Podcasts can be downloaded for free for six weeks after the date of broadcast. After that time has passed, digital downloads are available for $2.99. CDs may be purchased at any time after broadcast for $9.99.

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55 Comments

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Thank you for exposing this, I now understand the science behind the dizziness and why it happens......

Excellent program. My husband has been suffering from dizziness since his stroke and cannot find the source. Your program will give him more information to discuss with his new physician. I have ordered the CD to aid in the discussion.
Thank You Thank You Thank You.

this program was very informative . my son has vertigo and has had for years
with very little help. has had ear problems since early childhood.

What was the name of the relatively simple treatment procedure for vertigo?
Could not understand it during broadcast.

PEOPLE'S PHARMACY RESPONSE: EPLEY MANEUVER

Thank you. This could be a life changer for my daughter, who has had severe vertigo more than 25 years. She has been to every kind of medical doctor even remotely involved in dizziness in this area--twice in most cases--and her efforts have resulted in the same progress--none. In fact, with very few exceptions, the doctors have treated her as a hypochondriac.

The visits with practitioners involved in the "natural" practice of medicine have had the same result. (Although they have been more sympathetic) As her mother, I have been very saddened, frustrated, and frightened at the length of time this has persisted.

You can imagine how my now 46-year-old daughter feels. She went to a well-respected ENT and balance specialist about 10 or 12 years ago, and I believe it would have helped, but her insurance at the time would only allow a few visits! Maybe now, with increased knowledge of the symptoms, diseases and solutions, we'll have success. (His clinic is on the website of vestibular.org.) Also, maybe now the insurance company will be more reasonable.

I love your program and only just discovered it since retiring and moving to Florida. I had a special interest in today's program on dizziness and balance. 28 years ago I woke up to a slight dizziness that has never left me. It is only slight but constant. I have sought a diagnosis for years but I have none to date. As a child and young adult I did a fair amount of diving (diving board), gymnastics, skiing and other sports requiring good balance. I find it very disconcerting and would love to get a diagnosis and perhaps relief.

I have had treatment for BPVP with no results, balance therapy with a physical therapist with no change, medications with no change. Testing in the past has revealed no inner ear problems but a noticeable dizziness upon eye movement and quick head movements. I continue to be active but always with this dizziness. Perhaps Dr Kaylie could give me the name of someone in my area who might be helpful. The only medications I take are Zoloft (since 1992) and a half tablet of an antihistamine. Thank you for your time and help. J. Kenney

Dizziness. In 1985, I was in an automobile accident and in the ER I experienced a feeling that the x-ray tech was spinning my gurney. I screamed at him to stop. Of course, he wasn't doing anything. For a year or so afterward I would wake up spinning which was devastating. This only happened if I was lying down. My family practitioner finally sent me to an audiologist who specialized in treating opera singers in New Orleans.

He gave me the following exercise which worked. Basically I was to make myself dizzy and tolerate it as long as I could, then stare at a spot on the wall until it went away. After awhile it did go away but presents itself again from time to time. I do the exercise for a few days and it is over. The last time I had it I was in my doctor's office for something else and told him how awful I was feeling. He had me lie down fast and said he could tell from my eye movement that I was dizzy -- and used the term benign positional (I don't recall the rest of the term). He sent me to a specialist who told me to continue the exercise, I did and three years later I have not had the problem.

Today on your show about dizziness, the question was put to Dr Kaylie what is the cost of this testing. he talked about insurance; saying that all insurance accepted this testing as valid. The question was not answered. HOW MUCH DOES THIS COST? Do you all now assume that No One pays for medical care out of pocket?

PEOPLE'S PHARMACY RESPONSE: THE COST VARIES DEPENDING ON THE AUDIOLOGIST, BUT IT WOULD RANGE BETWEEN $3000 AND $4500 OR SO. PRETTY PRICEY.

I had a mystery illness that called dizziness, nausea, extreme ear pain, and Bell's Syndrome. My doctors GUESSED that I had a viral infection in my right ear. It took months to recover. The virus was supposedly the Chcken Pox virus.

I am concerned that it may re-occur.

Does Dr. Kaylie know of this kind of infection?

Regards,
Anita

Non Pressure Hydrocephalus can also cause problems with balance. This is fairly unknown and is often misdiagnosed as Altzeimers. Would love for you to do a show on this. I may have it and would love to know more.

Jan

I was so happy to find out we have a specialist in neuro-otology right here in NC. I have a rare condition called Mal De Barquement Syndrome that I developed last July after riding water flotation device for a few hours three days in row last July. It usually occurs in people who have been on a cruise. I had experienced this a couple of times in my life after being on boats, but it went away within weeks. I continue to have a rocking sensation all the time as if I am on a boat.

I found one study that said amytriptilene might help. I am taking a low dose and it has helped me to be less aware of the movement sensation, but the rocking up and down feeling is still there all the time -- especially if I close my eyes or lay down. My balance has not been affected, but in the dark when I have no visual orientation to help me, I have trouble navigating. I'm hoping Dr. Kaylie may know of this condition and have some help to offer.

As a yoga teacher, I have had a small but important repertory of therapeutic balance exercises that I have incorporated over the years. I was intrigued to listen to this program and learn from Dr Kaylie that, yes indeed, we are capable of retraining and relearning balance, even with vestibular neuronitis. I avoid making specific health claims in my teaching, but am delighted when I find western correlates to yoga tradition. An excellent program. Thank you.

So nice to hear that there's hope for people suffering with debilitating vertigo! Thank you so much! I always love the People's Pharmacy.

Hi, It is so refreshing to hear from an ENT who knows about MdDS! June just happens to be MdDS awareness month.

Mal de Debarquement Syndrome (MdDS) or disembarkment syndrome is a rare disorder of perceived movement that most often develops following an ocean cruise, other type of water travel, or motion experience including plane flights and train travel. For a few, there is no known motion event; the onset appears to be spontaneous. MdDS persists for months to years.

Common symptoms include a persistent sensation of motion such as rocking, swaying, tumbling, and/or bobbing. This sensation of motion is often associated with anxiety, fatigue, difficulty maintaining balance, unsteadiness, and difficulty concentrating (impaired cognitive function). Often, the motion sensation seems to disappear when riding in the car or participating in other motion experiences.


Check it out at this site: http://www.mddsfoundation.org/


THANK YOU! I was diagnosed with vestibular neuritis 10 years ago, and told to live with it, although I was told meclizine was not the answer. I did some PT which helped slightly, but mostly it was "tincture of time". It still recurs, but not as severely. Wonder if there is a biological propensity, as my mother has this problem too.

It's The Epley maneuver.

It is called The Epley Maneuver.

I found this program very informative. You mentioned the effects of gentomyacin on the inner ear. I was given gentomyacin to treat a serious bone infection following a car accident. I ended up with kidney failure, loss of some hearing in both ears and a balance disorder which requires me to use a walker all the time. The hearing damage is already done - can it be reversed or improved upon? And what about the balance problem - is there any chance for improvement?

My elderly mother had re-occurring dizziness and a sensation of spinning which would stop almost immediately when given an injection of vitamin B12. The M.D didn't know why it helped her.

She was on heavy antacid medication for ulcers. It wasn't known then that antacids interfere with natural vitamin B12 conversion in the stomach. B12 might be a useful first approach for continuing dizziness.

Please explain the 'EPLEY MANEUVER"

thanks, Naomi B.

PEOPLE'S PHARMACY RESPONSE: HERE'S A LINK TO A VIDEO:
http://www.youtube.com/watch?v=pa6t-Bpg494
WE RECOMMEND GETTING AN AUDIOLOGIST TO HELP WITH THIS THE FIRST TIME, SINCE THERE IS IMPORTANT INFORMATION ON FIGURING OUT WHICH WAY TO TURN.

I found your program very informative and encouraging. The word "balance" was what caught my interest because one of my sisters and I have both been diagnosed with "sensory neuropathy." I do not feel I am dizzy, but my equilibrium (balance) is off, and I feel more like the description of the moving car. If I close my eyes, I will lean and probably fall, and I cannot stand on one leg for any amount of time. I have been told that my neuropathy can only be treated with physical therapy. I am very thankful that I don't have pain as in many neuropathies, but would still welcome more thoughts on the condition. Thank you!!

Is there anyway through e-mail that one could find an ENT doctor or an audiologist in Charlotte that knows the Epley maneuver? Also, what might it mean if I have a feeling that when talking among a group, it takes awhile to focus when I turn my head from one person to another?

This was a wonderful interview. The most important thing I would share is be persistent and don't wait for your doctor to get you to the right person for a diagnosis. Also get a second opinion if you don't agree with the first diagnosis. Using the right vocabulary is also very helpful. I wish I had known what I know now from the vestibular support groups when I went to Mayo clinic where I was given the diagnosis of "probable atypical Meniere;s disease". Thank you to all the health care professionals who listen to us crazy people and continue to look for the cause of our complaints and want to help us. Bless you.

In Kansas I went to an occupational therapist who had specialized in balance disorders. My family practice doctor scheduled an appointment for me. I would suggest calling hospitals until you find an OT who has been trained to do the Epley maneuver. Best Wishes.

I've got some, thanks for help. I hope we all get diagnosed soon mike.

The Epley Maneuver only works for BPPV - a small percentage of vertigo cases. I've experienced Mal de Debarquement, which is a brain-based motion/balance disorder, for 11 years. Usually comes from being on a cruise. I can't tell you how many times I've been "flopped" around to "help" me. Seems like that's the first thing doctors try. I've even tried it on myself before I knew what I had.

This interview has been very helpful and informative. May I ask the Doctor what are the possible causes of light headed/dizziness. My symptoms are matching with VN it has been 2 years since the offset, I was only given serc for the first month and unfortunately did not help, I got pregnant and had to wait 3 months after the delivery of my Baby to be able to see a ENT who has referred me to have an ENG test, the only other symptom that I have other than the VN is the light headed/sensation of passing out and would like to know if it could be part of the VN or if it can be caused by another problem.

Grateful for your advice. Thank you and Bless you.

FINALLY, after much medical testing and consultation, I heard on the radio a description of my experience of 2 severe vertigo episodes 11 years apart, the second of which resulted in permanent hearing loss in one ear. Now I have a name, vestibular labyrinthitis, and a probable cause, blood flow problem. THANK YOU! I am ordering a CD of the program! Pam

This article just out today about MdDS

http://bit.ly/kal104

Hi, this quite interesting. I have had balance issues for 16 years and even though 8 years ago I did balance testing and they discovered nothing, I went to another hospital last November and redid these tests and they discovered I have 21% vestibular loss in my left year (something affecting my semi-circular canals). They can't put a name to it and why I have it but was discovered when they did the water test. I have been doing Vestibular Physiso Therapy for 4 weeks now but feel no real difference plus home exercises.

It is very frustrating and creates more anxiety. Anyone else out there been down this road and how have you been "helped"? I was really hoping that this therapy would work. I am lightheaded all the time and spacey as well as floor moving (like walking on a boat)... not room spinning like many others I am sure have which would be horrible.

Regards,
Lynda

Hi Lynda,

I know what you mean about the "walking on a boat" feeling as opposed to the spinning room. I have the same trouble... along with the constant lightheadedness (I call it "swimmy head"!). I also went through the balance tests and ENG (Water test). Eventually I was diagnosed with Meniere's Disease. From what I understand, a salt imbalance and too much salt causes the endolymphatic sac in the ear to swell and put pressure on the cochlea and balance canals... resulting in the junky balance.

It may be something you want to research or discuss with your doctor. I had an awful time with it for a few months (big dizzy spells at least every other day). Since diagnosis, I have cut WAY back on my sodium (not more than 1 gram a day and no more than 150 mg every 2 hours) and it is a God-send.

Yes, I miss mac and cheese, but I certainly don't miss the dizziness! The diet didn't work 100%, so they added a diuretic (hydrochlorothyazide). It's wonderful! Not all better, but no big attacks! Hope it helps!

My husband has had dizzy, nauseous spells for weeks. A cat scan has revealed brain bleeds over the balance part of the brain. We are currently doctoring for the bleeds. Only anti nausea meds help at this time. Possible surgery if bleeds continue in that area.

I am a 45 year old woman and I too have been suffering from chronic vertigo/dizziness for 19 years. I was involved in a car accident in 1994 and bumped my head but not unconscious. I was examined and results were normal. I suffered from minor stiffness in my neck and received treatment from a chiropractor. About 6 months later at my daughters birthday party the imbalance started and to this day I continue to suffer.

Since then I was diagnosed with breast cancer in 2009 and the chemotherapy has heightened the dizziness. I use to think I was alone with my symptoms until I received my diagnoses today from the ENT. I will begin rehabilitation exercise and attempt to stay mobile, and with prayer "I know GOD will strengthen me"!! WE must remain strong in this fight for a cure.

After being hospitalized several times for dizziness, my husband was prescribed 16 mg. of betahistine and to stay away from salt and caffeine. He has Mennieres disease (spelled it right?) and takes a cortizone type drug and antinausea pill when he gets an attack. He has stayed out of the hospital for months now and I am very grateful. His attacks are minimal when he gets them and under control.

Before he was diagnosed, his head was spinning so much that the emergency personnel had to be called to take him to the hospital. He couldn't even walk by himself. The disease has caused hearing loss in one ear and he has to drink more fluids.

I've adjusted to the constant ringing in my ears...it's been present for 40years or more.

When I experienced light headedness that persisted, I recalled a friend who went to her family doc. She had no insurance; he did the Epley maneuver and she was fine shortly after...no further tests were needed.

So, I googled Epley and found a nice description. I did both sides a few times. And then, it was gone!!

I'm a nurse and felt comfortable with the neck/head movements; this may not be a self help treatment for anyone, though

Excellent show. Referring this to a friend who Dr. Kaylie could have been talking about.

On listening to your program this morning (4/07/12) about vertigo, Méniére's disease and other conditions involving balance with, or without, nausea my initial reaction was how these conditions are treated in quackery. When Joe mentioned experienced problems turning over in bed, a common case easily treatable by quacks (homeopaths), I thought of the remedy that would have brought quick relief.

As the program progressed into the discussion on vertigo, a subject that was prominent in my misspent youth as an AF pilot. Many student pilots experienced the condition during early training when learning to recover from spins and later in aerobatics. I unintentionally exposed a flight surgeon friend to vertigo when I gave him a ride for him to obtain flying time. As I recall it was during a few aileron rolls that many of used add variety to simply boring holes in air, i.e., flying without a specific goal beyond obtaining flying time for pay purposes.

Treating vertigo is a little more difficult to treat as it involves more different remedies and specific indications for their uses to obtain the simillimum (best possible remedy) for the evident symptoms. At my age, eighty plus, it is beneficial to be able to differentiate between vertigo, instability, and other problems causing staggering, falling, etc. when walking which I do for five, or more miles per day. The Epley maneuver that was mentioned as described in Wikipedia sounds a bit difficult to picture for the uninitiated. Your guest was appreciated for his approach to treatment with out excessive reliance on drugs – I enjoyed the program and feel that I benefited from it.
My advice to both Joe and Terry: growing old isn't for sissies.

My friend who recently was dizzy went to her chiropractor and was able to do a manuver to correct the problem.

My mother who was also having problems being dizzy one day fell bacwards and hit her head which corrected the problem. Seems crazy, but I think it probably corrected the problem by "accident."

The People's Pharmacy has brought so much information to people. Thank you Joe and Terry!!!!!!!

PEOPLE'S PHARMACY RESPONSE:

Thanks for sharing these stories. We would, however, not advise that anyone have an accident and hit their heads to overcome dizziness. We're glad it help your mother, but we do not want anyone else trying this at home.

Appreciate your kind words.

Need to check hormone balances (primarily female) for vertigo.

About 20 years ago, when I first met my to-wife who was in her mid 50's at the time, she would be stricken with severe vertigo and would be disabled for several days.

After some months, we determined that it was occurring on a periodic basis that correlated with her schedule of hormone replacement therapy dosages. The physician had put her on a schedule that tried to mimic the normal hormonal cycle. I had heard of estrogen dominance and that one of the symptoms was vertigo. What was happening was that stopping progesterone for a few days while maintaining the same estrogen dosage.

When the progesterone was changed to be continuous, the symptoms stopped.

We switched doctors in order to switch from the conjugated hormones (pharmaceutical) to bio-identical ones. Several times over the years, she has experienced minor bouts of vertigo (primarily when rising from bed in the morning) and in each case, decreasing the estrogen (to change the estrogen/progesterone ratio) cleared the symptoms.

IMPORTANT: We discovered the cure to this problem on our own - the medical profession was of no help and tried all kinds of prescriptions.

We listen to the show on KERA in Dallas, TX.

As your Saturday 4/7 program came on my NPR station (KERA-FM Dallas TX), I was in the throes of a 4-day "dizzy" spell, which I have always called "vertigo" from the first day I started having them - about 10 years ago. It's just hell!!

I've had 4-6 a year - never know when they're coming - lots of severe nausea, banging into walls, headaches, lethargy and at least two days getting back to normal. Have been given Meclizine (25mg)of course, and it seemed to help in the beginning, at least to allay the grinding nausea.

Then I discovered Original Dramamine; have even tried something labeled "Prometh gel" 25mg which you rub into a large muscle. Each one of these drugs has "seemed" to help from time to time BUT I think they all delay "feeling better." I try to avoid them.

I've used organic, strong, bottled ginger ale (helps the nausea), brewed ginger tea, (helps a little), sleep propped up on at least four pillows and try not to move my head AT ALL. Ringing in ears is minor (to me) compared to the hideous bouts of "vertigo."

Have seen four physicians....they had no solutions, diagnoses, or insights. Also was evaluated by the Dallas Ear Institute docs and an Occupational Therapist who came recommended as "the only vertigo expert in Dallas, TX." Former said I had a slight hearing loss in left ear and to "come back in 6 months." Latter said I "don't have a brain tumor" and gave me a "Dizzy Diary" to keep - for what purpose I'm not sure. No help with the dizziness from either one. I checked the vestibular.org website to find a specialist in my area but there is not one listed - I'm in Dallas, TX.

I would be so extremely grateful to have someone's advice about what I could do next.

Thank you, Rita C

You have been most helpful--I was very fortunate to have the Physicians
Assistant in Ear, nose and throat Specialist office to realize that I needed to have the Epley Manuver. One treatment has been effective. Feel that in a small town --and being 80 years old --my cost was just the office visit. Hope more people learn about this!!

I am fortunate that Dr. Kaylie is my Neurotologist. He has been a godsend to me.

For the others who seek a Physician with similar training as Dr. Kaylie, I would recommend checking for a Neurotologist through their membership list at: http://www.americanneurotologysociety.com/images/forms/10_11memberstate.pdf

I was so glad to hear this episode today. I have suffered for years now with vertigo and I'm so tired of hearing my doctor say there's nothing they can do. I must sleep on 3 pillows at night. I can't lay flat. I have trouble flying. At the dentist and doctor I can't go all the way back in the chair which makes it difficult. If I turn my head back quickly or to the side I have bad dizziness and nausea for hours. It has has gotten particularly bad when driving and I must be careful not to turn my head quickly. I almost had an accident due a spell I had recently on the highway. I have had to stop doing so many activities I have so enjoyed for so many years like whitewater rafting, backpacking, mountain climbing, etc. due to this condition. I'm at wits end. What can I do???

Rita,

Have you looked into Meniere's Disease at all? I was diagnosed about a year ago, and the diagnosis itself made all the difference in the world. Nice to have a name put to how you're feeling and something to start treating.

Here are some of the basic symptoms of Meniere's: 1) Recurring episodes of vertigo (lasting from 20 minutes to a few hours to a day or so. In severe cases, nausea or vomiting can occur as well), 2) Hearing loss and fluctuation (particularly in low tones), 3) Tinnitus (ringing, buzzing, hissing, roaring in the ear), and 4) Feeling of fullness or pressure in the ear. It is mainly associated with one ear only, though I'm pretty sure I have it in both.

The problem, in simple terms, is that the fluid sacs in the ear have trouble regulating sodium content, or don't do something right with the chemical balance, which causes the organ to swell, which puts pressure on the other small organs in your ear- cochlea (causing the hearing loss) and the balance canals (where the real fun happens! ...the vertigo).

The main "treatment" is to go on a severely reduced sodium diet...I'm talking around 1000 mg a day. (Start reading labels!) The important thing about sodium intake is to keep it low AND consistent throughout the day. I go for about 100-120 mg every 2 hours or so. I also take a "water pill" (hydrochlorothyazide). With those changes, I haven't had an attack in about a year. A God-send as I'm sure you can imagine. It's really difficult to get used to the diet, but there are a number of good low sodium products out there...and I cook from scratch a lot. One great cookbook is "500 Low Sodium Recipes" by Dick Louge. It makes life so much easier.

Give the low sodium diet a try....if you feel better, I bet you're on the right track. Good luck! It will get better. :o)

Rita, P.S. Check out an ear, nose, and throat specialist if there is one in your area...there must be?

Thank you for the information provided in this program. I used to experience a temporary roaring sound in my ears if I got up quickly and started walking after having sat for an extended period of time. This certainly alleviated my concern in that regard.

On the subject of hearing in general, several years ago I undertook an extensive project; audio transcribing interviews of holocaust survivors, elderly people with weak voices and very strong European accents. This required a level of very focused listening for extended periods of time. The result was very strong improvement in my hearing ability, as if that concentrated listening had somehow exercised my ears! It's been over a year since that project was completed and my hearing is much more acute today than when I started the project.

I was diagnosed two years ago with oscilopsia cased by bilateral vestibulopathy. Has anyone heard of this?

Hi all! First off, I would like to thank the People's Pharmacy for posting this thread! I am a pharmacist and a yoga teacher. I started with the "symptoms" almost a year ago, mostly when switching lanes while driving. I was misdiagnosed w BPPV based on the nystagmus, and, although I did have a brief resolution, it came back with a vengeance this past fall.

I had the constant brain fog, could not go in stores, hold a conversation, even look at someone face to face... my eyes were always shifting and I had a constant shakiness inside, causing horrendous anxiety. I didn't really "spin"..it was more like an overall disequilibrium. I was so depressed all the time and teaching yoga was quite the challenge. My neurologist had basically dismissed me and, finally, I went to an ENT who told me it was first migraine associated vertigo, then, when the Topamax failed to help, he sent me to a new neurologist, who told me he believed it was an inner ear thing.

Lo and behold, after rotatory testing and confirmed by caloric testing, I was found to have 62% vestibular loss on my left side and diagnosed with vestibular neuritis. Even though there is no cure, I think having a diagnosis that fits and finally makes sense has helped me start to overcome, along with the VRT that I go to weekly. I can now focus, the fog and depression and anxiety are gone, and I have found myself again. My joy is back! So, for anyone else out there who may be going through similar, be persistent, as you are the best advocate for your own healthcare. And, know that life as normal can come back!!

This program was so informative. My mother has been diagnosed with vertigo just recently. For the past few months we have had an awful time with it. She is 76, and we have been in the emergency room once because of it. I fear that she will fall and that could be catastrophic in an elderly person. But her present doctor (and I have been telling her to change doctors) has told her to LIVE WITH IT... when I heard your show last night and you said that you do NOT HAVE TO LIVE WITH IT, I was ecstatic.

It is so scary for me to see my Mom walking along the wall to get around. I just happened to turn to the station WBGO in NJ, and was like they are talking about VERTIGO. I arrived home and didn't get out of the car until the broadcast was over. I then immediately called my Mom and told her about the show, and that I was going to get her the CD. Because I am not certain the type of vertigo she has has been diagnosed.
THANK YOU .....THANK YOU ...... THANK YOU !!!!!!!

You might want to try "seabands". You can find them at the drugstore next to the dramadine. These are two elastic bands worn on the wrists. The bands have a plastic ball that rests on an acupuncture point for dizziness. I have found this to be the most helpful thing for BPPV.

I am that person Dr. Kaylie described. I walk with a constant "floaty" feeling waiting for my surroundings to catch up with me. I try to function like a normal person, but it's challenging to sit in a meeting or focus on one person for conversation w/out feeling like I'm going to fall backwards. Forget shopping-it immediately puts me in overstimulation mode and I have to hang on to the grocery cart for dear life.

And I can't sit on a bar stool in my own kitchen without fear of falling off. IF I didn't have a dog to walk me, I wouldn't be able to take daily walks on my own. The anxiety is something I never experienced until all of this started 5 years ago. My ENT & I have gone down a list of possible triggers and we've tried everything, from Epley maneuver to various drugs to chiropractic care and thinking it may be hypothyroid problem.

The ONLY thing that has worked somewhat is the birth control pill, even though I'm 53 yrs old and still getting periods. It took 3 months for any effects to show up but now after being on the pill for 6 months, my female internist & I have come to the conclusion that perhaps the 25 mg dose is too strong and now trying lower dosage. Still can't tell if this is migraineous vertigo as the roller coaster of estrogen/progesterone levels tend to cause migraines which do trigger fullness in my ears/head, difficulty working on the computer for long periods of time w/out feeling very "floaty", severe nausea and horrible anxiety. I will be calling Dr. Kaylie to schedule appt w the lab. I am fortunate enough to live in Raleigh NC.

I only noticed one comment refer to hormones. Has anyone else had success with hormone therapy as a solution to this chronic challenging feeling?

Susan- again sorry. I meant that the Sea-bands are elastic wrist band that have a plastic ball that rests on a acupressure point. I wear them for about 3/4 of a day when I get "wavy" and the dizziness goes away and stays away. I thought they were crazy but I bought them when I was desperate. They can be used by children who get car sick and are used for people during chemo too.

We need a cure of treatment that really works, this is a terrible disease!!

Wonderful interview. My husband has been suffering for 12 yrs. with vertigo. We have been to doctors from N.Y.City to Tampa, Fl. and every kind. Most have been understanding but not helpful and others not interested in getting to the answers. All expected him to live with it. Needless to say, our lives have forever been changed. He has had the tests Dr. Kaylie spoke of numerous times and brain scans. An ENT doc. has him on Meclazine twice a day. (he is now going to be off of it ) Same doc. put him on a tranquilizer and he took a bad fall hurting his ribs.

People do not believe he is so ill because other than too many red blood cells that he takes meds. for he has had numerous xrays, ct.scans, etc. and is o.k. physically. Tried to go to Mayo but they do not accept HMO'S or CASH. Two wks. ago we started with an new Neurologist who sent for his reports from said tests and we are waiting to hear from him. We recently went to a Vestibular Therapist but after 2 wks. suggested we do the therapy at home. Will look up Vest.org physicians. Thank you for the Dr. Kaylie interview. We can hope again. Mrs. McB.

The best source for information and referrals is the Vestibular Disorders Association of America (VEDA). They have and excellent website, a publication and list of practitioners nationwide who are skilled in the treatment of dizziness and vertigo and other vestibular disorders.

I have had BPPV ( twice), neuritis and another unknown balance problem. Also had 6 months of vestibular therapy (it literally saved my life). the information is invaluable.

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