burning mouth syndrome, burning tongue

Q. Four months ago I woke up with the tip of my tongue burning. My doctor prescribed antifungal drugs, first Diflucan and then Mycelex, which provided no relief.
Now the roof of my mouth is also burning. Do you what causes this or what can be done about it? I have had zero success with prescribed medications.

A. You may want to ask your doctor if you could have “burning mouth syndrome” (BMS). Although this condition is mysterious (no cause or cure have been identified), researchers have noted that it is associated with lower levels of magnesium (Journal of Oral Pathology & Medicine, March, 2009) and vitamin B12 (European Journal of Medical Research, Sept. 28, 2001). Acid-suppressing drugs have been linked to lower levels of vitamin B12 and BMS.
Ask your physician to measure both magnesium and vitamin B12 to see whether your levels are low. If so, perhaps dietary supplements might ease your symptoms.

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  1. Alex

    My burning tongue issues started when my father became ill. As soon as I took anti -depressants 2 years after his death, the burning went. I believe in my case, it is related to anxiety. I am off the anti-depressants now and rarely get it. I have been managing my stress/anxiety/depression with meditation and good exercise. Sweet things do aggravate it but only occasionally which makes me think it depends on my mood. Also I relate sugar with bad health so psychologically this may be a trigger (all relating to my fathers illness). The nervous system is complex and still mysterious. Some things we have to deal with in life can fray our systems and even though we think we are ok, inside the body is worn. Try meditating everyday for 20 mins and learn to deep breath everyday. Make this a priority in your life. Plenty of techniques on line. It may take a while but if it’s kept up it will help. I would try and avoid SSRI’s if possible. Hope this helps someone.

  2. Diane

    My burning mouth started after I had a crown that had palladium in it. However, a person can be allergic to other metals used in crowns. Got the crown taken off and it went away. Had to get a root canal because of trauma to the tooth. It is not doing very well. Then the dentist and I talked about what to use in the new crown. He said 1 to 2% palladium with the rest gold probably wouldn’t bother me. When I went to place crown, he said the lab had another formula gold, silver, and only 1% palladium. The burning mouth started up that very night. I have now gone to allergist and have metal testing done. I don’t know how to tell my dentist as he has washed his hands of me. I get the results tomorrow. I know the crown must come off and then more pain in the rc. I’ll probably have to have another dentist do it because I have a feeling he will not believe me.

  3. Jeanette

    I have burning mouth of my emf (electrical sensitivity). My mouth is burning more close to wifi, cellphones, computers etc! I got chemical sensitivity in 2007, and emf in 2013. My mouth started to burn 2 months ago close to the computer. It is better in the night when I turn of the electrisitivity in the house. Jeanette Norway.

  4. Pamela

    I have had burning gums and a tongue for 5 months now.. started with oral thrush and still not sure if this is gone completely.. but the burning in my gums.. oh my.. it’s so bad.. and depressing.. and days I have no idea what to do. The only relief I get is if I have really minty gum in my mouth.. so I am thinking dry mouth as well. Dr and Dentist totally useless.. saw an ENT and he is puzzled.

  5. Tracey K

    I’ve had BMS for nearly two years now and can only add to everyone else’s comments that this is a living hell that no one else can even begin to understand. I’ve seen various doctors and consultants to no avail and am usually treated like some kind of idiot who is making things up. Anyway, being the kind of person who refuses to give up (and fortunately can afford the supplements) and truly believes that there is a cause (even though the conventional doctors don’t know what that is yet), and didn’t want to become an alcoholic since alcohol was the only pain relief I could find).

    I would advise anyone with BMS to read up as much as they can about “Leaky Gut Syndrome” and “Candida Overgrowth”. Also look at the list of symptoms potentially caused by these – do any of them sound familiar? I was suffering from a lot including: spasms in my lower legs; hyperacusis; intermittent tinnitus; digestive disorders (bloating, nausea); arthritis; dermatitis; intense itching on shins; pain in joints; palpitations and extra heartbeats; brain fog; dry eyes; interstitial cystitis). I am convinced these all relate to the gut (which starts at the lips and ends at the anus) and imbalances in the microbiome (something mainstream medicine is just starting to understand).

    I believe that I am salicylate intolerant (possibly because of leaky gut) as I found that a lot of foods high in salicylates were making the burning worse (e.g. almonds, dates, avocado, wine, herbs, spices).

    I have embarked on a dietary regime to heal leaky gut. (you also need to consider parasites if you wish to go down this route, and treat for these too). The diet is HARD. very hard. You have to give up gluten, alcohol, caffeine, sugar, fruit (for the beginning at least) at the same time as supplementing with antifungals and antiparasitics and also taking gut-healing supplements, whilst also avoiding all painkillers (NSAIDS are linked to causing leaky gut) and antibiotics unless in dire emergencies (these are also linked to causing disruptions in the micro biome).

    I have also been taking Alpha Lipoic Acid (since early on after BMS started) and did receive some relief.

    After initially cutting down on high salicylate foods and then starting the strict dietary regime, to my amazement my dermatitis has almost disappeared, the cystitis is non-existent, my itchy shins itch no more, the painful leg spasms have gone. The BMS has improved but not gone. I have read that leaky gut can take years to heal but I consider it worth the trouble. Things can also get worse before they get better (what is known as a healing crisis, die-off, or Herxheimer reaction).

    Read all you can on these subjects: leaky gut syndrome, candidiasis, salicylate intolerance, oxalate intolerance and see what seems to fit you and then pick your dietary and supplementary regime to fit (I looked for commonalities in all these sources along with what sounded relevant to me to come up with my dietary regime. I’ve read books by John Pagano, Alejandro Junger, Kathryn Marsden along with many internet sources. Some claim to cure you within weeks but other sources say it can be years (which initially sounds very depressing and you have to get your head around that fact).

    Also of help – EXERCISE and get those endorphins flowing (this temporarily dulls the pain). I didn’t feel like exercising as I was that miserable but I pushed myself. MEDITATE: this helps to relax and refocus the mind away from the ever present thoughts of the pain – there are great guided mediations on youtube. RELAX THE MOUTH: I found the pain was making me suck in my cheeks and tighten my jaw – working on relaxing the tongue, jaw and mouth helped me (I had a gum guard made to stop me clenching at night – some doctors will try to dismiss that the clenching “caused” the BMS but I only started doing this after the BMS).

    Hope this might help some of you. the journey will not be easy but hey, anything is better than this pain?! I think this needs looking at holistically and needs an attack from many angles. If any of you have access to holistic or functional medicine practitioners, maybe seek these out for help (we don’t seem to have many in the UK).

  6. Judy
    Henderson, Nevada

    I diagnosed myself with BMS after reading about it on the internet. I had been suffering from depression and had also had extensive bridgework. For months I didn’t want to leave the house because of the pain. It became so bad I decided to try Advil which immediately eliminated the pain. I am also on the magic mouthwash which really is magic. I never ate very much but now I can eat less. Some days I live on ice cream. At least I am functioning better now. My B12 is also low and I have to go for shots. I can’t wear lipstick. Does anyone know what to do for that?

  7. Janice

    I am an extremely healthy person but for this 11 month nightmare with BMS. Like many of you I have tried everything just to rule out any auto immune diseases. I am just coming to believe that I may have to learn to live with this which is depressing.

    My biggest challenges are talking and swallowing and my fear and disappointment is that no one has been able to help me. I never feel like going being in social situations which is hard for my husband.

    A research biologist has helped me more than any doctor. We are working on getting toxins out of my body and keeping acids as low as possible. This syndrome seems to be caused by nerve damage and I have no idea how we heal nerves. I use very pure vitamins purchased online. Among the things I take is ester-C (sold at Costco) alpha lipoid acid (R-ALA), 7-keto DHEA, and 5-HTP which helps with bowels and sleep.

    Foods to avoid are coffee, wine, soda, spicy food as well as citrus fruits.

    I have worked hard to be healthy. My diet is good and I take no medications. I have also spent lots of out of pocket money trying things such as juice fasts and Chinese herbs. My only conclusion is that every person is different and we can’t get really depressed or we may stop trying things which may prove helpful to at least some of us.

    If only doctors would understand how debilitating this syndrome is. I can’t begin to explain to them how much my life has changed as a result of BMS.

  8. lisa
    Syracuse, NY

    Has anyone here with BMS experienced Chronic Dismotility? I have had Burning Mouth Syndrome for 3 years now and just recently I have experienced intestinal dysmotility- I figure it is all happening in my intestinal tract and wondered if the two were related. Best wishes to all.

  9. Jose


    The tip of my tongue has burning for 2 weeks now and I have a strange feeling like some one is passing a cotton on the back of my tongue. I have started to take B12 complex and Magnesium to see if it will improve

    My life is not the same anymore, I am really sad and depressive with bad ideas about this problem

  10. Barbars
    Liberty Hill. TX

    My BTS started about 3 weeks ago after I had an attack of diverticulitis. The hospital gave me Cipro and an anti-bacterial called Flagil. Apparently the Cipro can cause nerve damage, and the Flagel can cause burning tongue. So I’m pretty much stuck. Diverticulitis is a chronic condition, and I am already on the second round of medicine for it. I’ve had all the blood work to check for vitamin deficiency and thyroid problems. Everything was supposedly normal. Haha. I did read that several studies showed success with alpha lipoic acid taking 200 mg 3 times daily so I’m going to try that.

    • Jan
      Rochester, NY

      Hello – in all of the reading I’ve done, Alpha Lipoic Acid seems to be the “treatment” that is brought up the most. I was just wondering if you had started it yet and what kind of results you have had. Thanks.

    • Pam
      New Zealand

      Hi, Barbars

      My husband has suffered from chronic and severe diverticulitis since his early 20s and was hospitalized several times because doctors could not diagnose it accurately in the old days. Conventional treatment has been ineffective. 10 years ago he self-medicated with 1 T slippery elm and 1 T psyllium husk taken in 500 ml of water first thing each morning. After about 6 weeks his condition started improving and has stabilized. After about a year he stopped taking it, and every morning has 2 T of freshly ground linseed (flax-seed in America) in a smoothie. His last colonoscopy greatly surprised his specialist who wanted to know what he had done, since his colon was looking healthy even with the diverticular damage. My husband believes that reducing gluten intake has also helped.
      I hope this helps.

  11. Pattie
    Mays Landing NJ

    Hi I have been dealing with this for 7 or 8 months I had a molar on my left upper side pulled in October Right after that I broke out with fever blisters inside my mouth. Which hurt so much I went to the regular doctor he put me on antibiotics and fever blister pills( I can’t think of what they are called right now). I got an implant put in where my molar was pulled and all of sudden my tongue started tingling on the side where my implant was put in. Then the tip of my tongue then the middle of my tongue
    then my palate started burning I have gone to 7 Doctors for this including an Gastroligist I had an endoscopy done and they said I had Candida on my esophangus I was treated a few times with anti fungal medicine. Still no relief My mouth still burns. I have cut out Sugar,White flour, and Alcohol. I stated taking vitamins and exercising again thinking that maybe my immune system is low I still have BMS. I went to an Infectious disease doctor she did some test, now I’m waiting on the blood test I’m am seriously thinking about pulling my implant out of my mouth the dentist does not think this is the reason But this all started a couple of months after I got the implant put in. It’s very Frustrating. I hope I get relief again Does anyone have a similar situation? Tks

  12. Janet
    AL, USA

    Hello Everyone, my name is Janet. I am from Birmingham, AL and I have just been diagnosed with BMS (Burning Mouth/Tongue Syndrome. I have had this for over 12 weeks now. It happened after having a tooth pulled which was terribly infected, so they placed me on real strong antibiotics before they would pull it, then from that I got Thrush in my mouth and took all types of anti-fungal medications. I took 2 or 3 rounds of Diflucan, 4 bottles of Magic Mouth Wash, 2 bottles of Ninatatin Mouth Washes, several other types of anti-fungal drugs, Lidacaine Mouth Rinse.

    I can’t tell everything I have been through during all this illness until finally going to an ENT doctor who knew actactly what it was and both my and my husband’s mouth dropped. We just could hardly believe it and it was very upsetting especially too me. I have been reading a lot of the comments and stuff about it and what others have tried and say helps etc. However, can anyone tell me anything else about it and perhaps a diet to follow? I wish I’d never would have this, but I’m sure a lot of you wish that too. I am just weird I guess, cause I can have or catch the most complicated medical problems I’ve ever seen or heard of.

    I also have a disorder called Adductor Spasmodic Dystonia, which took 15 years to find out what was wrong with my voice. I could not speech much above a whisper for 15 years. I went through doctor after doctor and medicine after medicine until one day I found ADSD on the web and found out about these specialist ENT Sugerons in Los Angeles, Calafornia who did a micro-scopic surgery called SLAD and at that time I’d had no voice for 3 months after taking Botox which I took Botox Shots in the throat for 2 years. So I figured after a lot of research on the surgery, I had nothing to loose. So off too Los Angeles, CA My husband and I flew out there for an eval appointment with these doctor’s. Dr. Blumin and Dr. Gerald Berke’s had designed themselves and had done over 200 surgeries with successful results, but only for the Adductor type of Spasmodic Dystonia. So in June of 2001 I had this surgery (a nine hour surgery) We flew back home and in 3 months my voice began coming back in a low tone and as the days passed my voice got stronger and stronger on the next weeks and one day I went through a drive thru at McDonald’s and expected a soft voice and them not to be able to understand me, but low and behold out came my strong voice. I came home happy as a lark, talking 60 to nothing and shocked my family when I began talking to them in my normal voice.

    Praise God and thanks to Dr.’s Blumin and Berke’s I continued speaking and still am talking with a normal voice until this day. But there is a possibility that it could come back again, but so far so good. And I hope and pray it never rears itself again. Please pray for me and I’ll pray for anyone with BMS. My heart goes out too all of you who suffer with BMS. Does anyone out there know of anything that will help BMS or perhaps a diet I need to follow now. My prayer is for all of us to get relief and hopefully find a cure soon. Does it go into a remission like at anytime or does anyone know if it will ever go away. Any help or replies would be greatly appreciated. I’m so sick and tired of being in terrible pain and not being able to eat or do anything good anymore.

    My Best of Wishes to you all and God Bless each and everyone of you who have this or any type of painful debiltating syndrome or disorder.

    Regards, Janet

  13. Ricky

    Similar problem from last 9 months.

    • Christy

      I have had BMS for almost 3 years. I take Librium 10 mg 4 times a day and gabapentin 300 mg 3 times a day. It helps but not entirely. I still feel it every day but I have good days and not so good days. It does not make me cry anymore or want to kill myself. It’s usually worse when I am menstruating. I tried antifungals and antivirals. I think I am going to try ALA. Also, I have starting eating foods that are high in lysine and low in argininge (sp?) I see a crainial-sacral therapist. It is better than it was, but I am not giving up and finding more relief. My sister has it also. We are both in our forties. We try and keep each other positive. Believing that it is a temporary condition keeps me going.
      My heart goes out to all of you! Maybe if we keep bugging our doctors the researchers will do some more studies and find out how to help us.

  14. cheryl
    Philadelphia, PA

    This sucks! I also had a tooth pulled right before this happened. I am freaking out trying to stay positive. I’ve only had this burning mouth of ten days. I am going to try as many suggestions as possible. I’m usally a very happy person but this has changed me very much at work but my kids keep me going. They are older–nineteen and twenty-two–so they notice the change in me. I am trying not to let it beat me. If I find something that works I’ll post it.

  15. Cher

    i think I may have this terrible syndrome as well! I have been experiencing the symptoms for approx 2 moths now. The burning tongue and also the roof of my mouth. I went to my Dr. Over a month ago and they thought maybe it was “Thrush”, so treated it with a “Magic Mouthwash”. It definitely wasn’t Thrush, I wish it was. So where to go from here? I am reading everyone’s comments and it is really depressing me thinking that there is no cure for this! How many people have tried B-Complex and Magnesium? I was researching it and thought I would try. I am in tears thinking that my mouth will always feel this way and now reading the comments here. God Bless You All and I Pray we can find relief quickly

  16. Janet

    My BMS started a year ago. I went to see several doctors and dentist. Mine started with a blocked salivary gland. I also had part of my jaw bone dissolve, from which I lost a healthy molar. After months of research I stumbled across BMS. I am not alone, I am not crazy. It does exist, and it does have a name.
    Research says it can be brought on by stress and menopause. That would be me. Stress has been huge in my life for a few years now. And of course menopause started as well. The stress of BMS has added immense stress as I am sure every one on this site is well aware of. I started to experience heart fluttering. It felt like my heart was going to kick it’s way right out of my chest. I wore a heart monitor for 48 hours. I do have an extra beat now, but the fluttering has calmed down.
    Food and beverages are a definite factor as to how bad my mouth feels. I have found that I have to avoid all carbonated beverages and fruit juices. I avoid all mint and cinnamon and acidic fruits. I started taking oil of oregano gel caps. I use toothpaste with no mint. At this moment my mouth is tolerable. My mouth is no longer full of sores, and I do not have a vast amount of fluid coming from my upper gums and the burning is greatly reduced. I suck on butterscotch candies to ease the dryness and I found a brand of gum that does not have acid listed on the ingredients.
    I am a smoker, I am cutting down. I hope to quit completely in the next couple of months. I do know that smoking does irritate my mouth. I have given up so much now, but I will give them up as well if it will help. Right now I have to use a plastic tip on my smokes as my upper lip cannot tolerate the feel of paper. Now how odd is that?
    I hope some of what I have tried will help you out.


    • Lori

      I have had BMS for a few years now. I start out in the morning, not bad and it worsens by the end of the day. It is very frustrating to say the least.
      I am also menopausal and that is where it came from, I am so hoping that when I get through the menopause this will subside. Like women dont have enough to deal with menopause.

      Most people you tell about this havent heard of it and think you must be making this up. I hadn’t heard of it myself until one day I wake up with a burning tongue.

      Hang in there people, what else can we do.

  17. Di

    Hi, I’ve suffered with BMS for 4 years. Having tried everything imaginable, I have finally found some relief. Aloe Vera is used for burns. A naturopath suggested I try eating this. There is a lot on the Internet about it and even a study on BMS and aloe Vera. The plant must be the medicinal type. Taken 3 times a day – just trim the spikes off the leaves, remove all the green skin and eat the inside. Sounds crazy but I have had relief using this. I’ve been taking it for about a month now and it gets a little better each day. I’d be really interested in hearing from anyone willing to give it a try. Good luck.

    • Keith
      Chester U.K.


      I found chocolate was creating my BMS.

      Hope this helps some of you.


  18. Chris

    Had this horrible bms for 2 months, 1/2 teaspoon of baking soda in cooled boiled water and mouthwash when mouth really burns takes the edge off. Liponic acid tablets 200mg 3 times a day. I am Waiting for allergy tests my doctor is clueless ! I’ve always be fit healthy man came on after stressed out with the baby being really ill, hope these tips help someone. Carent believe there isn’t a simple cure. Well things could be a lot worse. ?

  19. John
    London, UK

    My burning tongue started in late 2009. I tried everything, What helped me from summer 2013 was taking Rich’s MSM (Methylsulfonylmethane) Max, 1200mg 3 times a day after food, Wholesale Nutrition’s C-Salts, 1/4 teaspoon (approximately 1000mg vitamin C) dissolved in a quantity of water to be drunk between meals and sunbathing in just trunks in the midday summer sun for, to begin with, very short periods of time (5 mins each side). Do not dissolve the MSM in water as it will quickly evaporate. I stopped noticing my burning tongue after 6-12 months. My skin and nails improved too.

    An unexpected side effect was my vitamin B12 status rising to within the low end of the normal range after having been chronically low since 2009. Sulphur is needed for good skin and it has always been assumed we get enough in our diets. Maybe industrial farming methods has impacted on that. I took the view that the protocol I used improved my skin on the inside, which includes the tongue and digestive system.

    NB When we expose our skin to the sun it actually makes vitamin D sulphate, and cholesterol sulphate which is needed by the heart (look up Dr Stephanie Seneff).

  20. Henrietta M.
    sydney Australia

    Just adding my thoughts to this conversation. I have had BMS for years, and was only diagnosed after many doctors visits. I’m not sure it came on after anything specific but I am post menopausal due to an opharectomy, meaning my hormones went suddenly out of whack. I have tried everything and at times I do get periods of relief. The best thing for me is distraction, chewing gum for instance plus wearing an Invisalign mouth shield. Somehow the discomfort of the aligners seems to take away the pain. I take 20mg of Endep at night which seems to help but not totally. I am off tomorrow to try Vitamin B12 and magnesium. I find acupuncture and kinesiology can sometime give soem relief too.

  21. Emily
    Chicago, IL

    I’ve had BMS for a year. It started as a burned tongue sensation which progressed to a very dry mouth and a metallic taste. Particles of food stuck to my teeth after eating. Most foods were tasteless. One morning, I awoke with the tip of my tongue stuck to the roof of my mouth. I did a lot of internet research. I tried some remedies suggested by a youtube video. I changed toothpastes. I ended up with a nutritional regimen suggested by a nutritionist at OSU. I also saw my internist, an oral surgeon and my gynecologist. I was prescribed a very low dosage of HRT. Together, the vitamins, fish oil and HRT, work. I still have a touch on the tip of my tongue that feels numb as tho it was burned (there’s no neuropathy) and food can still stick to my teeth but I can taste food and the metallic taste, like I had a mouthful of copper pennies, is gone. I am on triamterene for HBP and simvastatin for cholesterol. I take no other medication. As vitamins have run out, I noticed which ones seemed to be most effective and for me its B12 and magnesium.

  22. panda

    I have also been awoken suddenly with the tip of my tongue burning like if you were to touch a burning ember to it. It has happened on several occasions now & have been starting to wonder why, I hope its just the lack of vit b :)

    • Pat
      Scarborough, ON Canada

      Hi there… I am doing some research for my aunt who has been experiencing BMS now for a year. Can you tell me if your BMS started after any dental work? ie root canal?

  23. Grace

    I started with burning lips and tongue when I had new crowns put in my mouth along with a root canal. I then had the crowns replaced with a different material since I thought it was allergy to the material. I then had so many various treatments including a bloodtest to see what I am compatible with and now am having very expensive holistic crowns put in. Since I have temps now I don’t feel relief at all and very very sick of feeling this and thinking about it day and night.

    • Sylvia

      I am researching this subject. Did you have allergy testing for specific dental materials such as acrylics, glues and bonding agents?

      • Catherine

        Sylvia, I see you are researching BMS, have you found ways to help, or do you have this?

    • Yasemin M.

      My one also started after having a crown. I was going to have it removed and have a new one which doesn’t cause allergic but after reading your post I don’t know what to do.

    • Ellen

      For 3 years I have had BMS Direct result of dental work pulling my upper teeth which should never have been done. I now have implants but this started 2 months after teeth were pulled. Scale of 1-10 in pain I am a constant 10. Dentists kept telling me there was nothing wrong. This saliva change was normal and taste change. Never sick a day in my life I ended up going to the mayo clinic and being tested for everything turns out diagnosed with BMS. Been tested for autoimmune diseases allergies to dental materials you name it. BMS I am miserable. Came home saw other Dr’s hoping they were wrong. Had mouth biopsy done everything comes back normal all the time. Every test done. I have no idea how I’m going to live with this pain. I have tried everything. The only relief I get at all is chewing sugarless gum and it doesn’t last long. I’m on zanex and anti depressants which I have never taken pills before. Saw 2 neurologists put me on a number of drugs to see if anything helped lyrica, amtripaline numerous drugs, dosages and milligrams. No help. I have to work I can not believe how my life has been ruined by a dentist. I have no one to blame but myself but I trusted the dentist and foolishly listened. So to answer this question yes 100% happened to me from dental work. I still cannot believe it. A nightmare. I’m reading thru here hoping to find something I haven’t tried to help me. Thanks for reading this and taking the time.

      • Sarah

        Same here. Mine began in the midst of having several dental procedures at the same time my dad was dying, so I was under enormous strain. Started as a “preventive” measure for two molars that were just fine, but had large fillings that weren’t looking solid. So he suggested they be crowned in order to prevent ever having a crack in either. I was very hesitant to do both at once, but he talked me into it for “convenience”. Worst and most regrettable mistake I’ve ever made, to go along with that. In my gut, I knew it was a mistake but didn’t listen to my gut. Turns out, I’ve now lost both molars because of the crown prep!

        Because the teeth were next to each other they put one temp crown on for both teeth and it stressed the teeth out so they then cracked. I went from having a normal mouth with no tooth pain or otherwise, to constant pain. It’s been 4 months, and thousands of dollars, and lots and lots of appointments with endodontists, periodontists, and doctors, all for me to get worse. I was FINE before. 100%. Happy go lucky person. Now, I hate every day that I have to live with the burning tongue and lips. It all started with a cut feeling on the back of my tongue, on the same side where all the work was being done (upper left back molars). I had had 4 injections for numbing and it was after the fourth one that I got the burning/cut sensation in my tongue. My dentist brushed it off, as if the dental work had nothing to do with my pain. It’s been 2 months, and nothing helps. I’m on Neurontin, alpha lipoic acid, and just started Clonzepam rinse. I’m half awake. Oh, and did I mention that I’m a radio personality!? I told my dentist, jokingly, before he drilled “My mouth is my money maker, so don’t screw it up!” My smile has always been my best feature, and since I’m in the public eye, I sort of need a good smile. We had a good laugh over my joke at that time. The joke was on me.

        So, this pretty much has ruined my life and from everything I’ve read, only half the people with BMS ever get better. It’s so depressing. While my dentist has gone on his merry way, I’ve lost two good teeth and thousands of dollars. He gained, I lost. Never again will I do anything “preventive” to my mouth.

  24. Shirley

    Hi Jason, I’m just curious how things are for you now? My burning mouth/sore tongue started in early sept this year, I think it was because I took cinnamon from a spoon, didn’t realize it would cause a reaction. I’ve had blood tests, allergy tests, ENT, acupuncture, a herbalist, no avail! I don’t know what to do next, am I after starting off a downward spiral that I cant get out off, I’m desperate.

    • Jennifer

      Hi I have also been suffering with burning tongue syndrome. I won’t get into the whole thing as to when it started and what I was on, but I’ve been to 4 different doctors (dentist, walk-in, general, psychiatrist) no one helps at all. I have FOUND RELIEF (not a complete cure) with Orajel -mouth sore gel. I use it a lot (definitely more then it says to) the first few days and then when I feel the burning coming on. It seems to almost take it away after a few days of repeatedly using. I wish I knew about this the first 9 months I had it and suffered-so I figured I would pass it on. Good Luck!

      • cheryl
        Bristol, PA

        How do you use it and how much? I was a happy person before this happened, and now I feel awful. I’ll try anything that has worked. The burning mouth symptoms just started ten days ago. People don’t understand how awful it is.

  25. Russell
    Austin, TX

    I got severe mouth ulcers following an extremely stressful week back in July 2014. My doctor started me on antibiotics and referred me to an ENT specialist. He spent 5 minutes with me, diagnosed it as Aphthous Stomatitis (viral-mouth ulcers) and told me to stop the antibiotics to avoid a yeast infection. He said the ulcers would eventually clear up & sent me home. They did but I still got a yeast infection.

    As the yeast infection cleared up, my tongue started burning. After 3 weeks enduring my burning tongue, I went to my dentist because I thought my bite guard could be a factor. She said it was probably a B-Complex deficiency & sent me home with a 30 day sample of ACTIVATED B-Complex (I have been taking a standard B-Complex supplement for awhile). It has been just 3 days now & my tongue has quit burning!!! I hope this helps at least some of you.

  26. OhMy

    I’ve had this for at least 3 years. I’m 49 years old. When I was a young woman I had terrible canker sores in my mouth. I was at the end of my rope when I read that Vitamin B complex helped some people. I started taking high-potency B Complex and the sores went away, as soon as I would stop they came back. That lasted for about 3 years before I could taper off the B Complex.
    When the BMS came, I figured it may be the B deficiency, so I am on a B Complex and I also take 1000-2000 B12 sublingually. At first, this helped. Now, not so much. I’m going to try the Klonopin. I have had issues with my trigeminal nerve in the past and I wonder if this is some kind of nerve damage. I just hope it goes away.
    I feel so sorry for those of you above who seem to have this affect them day in and day out. Mine is relapsing/remitting. I’m also curious if anyone else feels the need to bite their tongue. To me it feels like I have blisters inside of my tongue on the edges of the tongue. In fact, when I do bite the tongue sometimes I get a pop sensation and feeling of relief (like a burn blister) painful but relieving.
    My tongue is a mess and I’ve noticed it causes bad breath no matter how often I brush/gargle.

  27. Hanne D.

    Its awful! I know exactly how you feel. But I have only had it for 3 months. I take Neurontin 300 mg (Gabapentin)+ paracetamol+ibuprofen twice a day. It works for me. Best wishes! You are not alone.

  28. Sdp

    My bms is back on and off. Sensitive toothpaste helps a lot and I think keeps it at bay as long as I also avoid some varieties of potatoes. I try and eat no more than two helpings a week and mash parsnips with a little of the water I boiled it in as a substitute at meals.
    I think some face creams and other body lotions I use on my skin are to blame for it too so I use things sparingly whenever I can and avoid them totally if my mouth is sore.
    I recently stopped eating all types of crisps because I couldn’t work out which ones made my mouth sore and now eat corn snacks instead if I want some thing savory.
    I am not taking any supplements at the moment.

  29. Crystal W

    I’ve started a Facebook group called burning mouth syndrome. Please feel free to join!

    • Dolores

      Have been digasoned with BMS recently. It is so annoying no one seems to understand and knowing what to eat is terrible . The pain is unreal at times.Took this after bad infection in tooth,was on antibocotic and pencillen, then had tooth out.Any help greatly accepted. THANKS..

  30. nancy

    Susie, the tears flow from my eyes as I read this and live this 24 hours a day….I want to thank you so much for sharing what so many of us are experiencing. In the past I have written several times my frustration for lack of cure…. and continue to do so.
    I award you kudos because I thought 8 years was over the tops. I keep telling myself it’s the season, weather, climate, food etc. etc. AND remedies “prescribed” by the good doctors do not help. Unfortunately for all of us, there has not been the “ahaaaa” that has happened yet. BMS is one of so many unknowns….I will not go to another doctor tomorrow!!
    I want so hard to keep trying to stay positive but these days have become very challenging to the point of even talking for any length of time.
    I want to keep this positive so let’s look at the sun shining each day even when the rain is falling….there is a rainbow out there guys…so please keep in touch and I will continue to try what you recommend and will share my real “ahaaas” of day to day survival.

    • barbara
      las vegs , nevada

      I have had BMS for 7 years now. I wish someone would do a research study. I have been to doctors from A to Z. I had dental implants put in right before the burning I feel like it is nerve damage. I also have MS and take many different medications. I am at a point now that I can not eat anything and I have lost 25 pounds in the last 6 months. I get so sick and tired of the burning it just wears you out. My Neurologist is sending me to a immunologist . I know there is no cure but all I want is some control. I have found that sugar and carbs and hydrogenated oils cause it to flare but it is hard to eat as so many of our food contain these ingredients. Some days are better than others but I want to have every day be a good day.

      • Sylvia
        North carolina

        Did you have dental work done prior to onset of symptoms? I am researching this subject-Thanks.

    • Sylvia

      I am researching this subject. Did you have dental work done prior to the onset of your symptoms?

      • Sarah

        Yes, I did. Crown preps that went wrong and required several visits that included novocaine shots in the upper cheek. Burning started after fourth visit in a two month period.

    • Angie
      Bismarck, ND

      BMS has been with me since Nov 6, 2005, that is 10 years now and I am totally frustrated. Have seen every doctor in the fields available and all to no avail. I have tried several meds and avoided foods and then reintroduced them and no changes. My last visit with a doctor was Homeopathic and was muscle tested and found I am to refrain from eating Nightshade veggies which include tomatoes, eggplant,white potatoes of all kinds. Also sulfides and corn products and corn additives in processed foods. Sure can make it difficult to prepare meal at times. I have chewed sugar free gum and as long as I am chewing it is ok but does not last.
      I first noticed my burning and swollen tongue after a trip to Tucson, AZ. I did not have Valley Fever which is what my thoughts were. I too am at a loss as to what to try next. I have read the testimonials and realize I belong to a large group of suffers from this debilitating problem.

      • Claire
        Grange sa

        Well I am post menopausal at 60 had rear right molar pulled out after months of a crown then a root canal and then a dry socket I had had enough pain .i had 2 new opinion as dentist saw nothing amiss with my mouth neither did 2 nod opinion fellow.
        I was sent to a specialist but in between researched on Internet and yes BMS was diagnosed also by my symptoms.
        I was already on Lyrica so was suggested to try Clorazopam as a mouth wash
        Dissolve 1 morning and night in mouth later spit out the saliva and drug.
        This originally helped really well but after a few weeks lost the effectiveness so much .i was on holidays and more research later I stumbled onto an acupuncturist wh specialises in the facial points and was that a relief my pain dropped down after several treatments to 2/10 however back home it has been awhile with no treatment I tried 1 lass for acupuncture but to no avail mind you she had never heard of the problem either
        So the next day I once again I stumbled onto an Asian lass who has other patients with BMS so hooray the treatment was slightly different but a success so far
        She suggested no oily foods ,sugar ,spicy hot and relax and sleep well .i have 2 nod app.in 3 days so hopefully it subsides again.
        Thinking of u all and may you find my treatments helpful for yourselves

        • Maureen

          I have had BMS for 5 years. It came in after having a front tooth bonded. I asked the dentist if I might be allergic to the composite and he said I already had some of the same and there was no issue. I he bonding required me to hold my mouth open for a long time and I wondered if that triggered nerve issues?
          Has anyone tried anti viral drugs for this condition.
          I use a very small dose of benzos either Valium 2mg or .5 mg of clozanapam once a day to make life tolerable.
          I prefer the Valium as I don’t feel any sleepiness as with the other.
          Probably will have this forever… I am 64.

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