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Q. I've had extreme chronic pain in my lower back, pelvis, hips and legs for nearly four years. Lying flat was agony so I had to sleep propped up on a love seat.
I went to many doctors who said there was nothing wrong with me. Then I found a rheumatologist who checked my vitamin D and found it was extremely low.
I've been taking 1,600 IUs of vitamin D a day and have been feeling much better and happier. At this rate I think I’ll be about back to normal in six months. It's terrible that anyone should suffer for so long from this. If in doubt, get your vitamin D checked!
A. Vitamin D deficiency is common and is often underestimated as a cause of chronic pain. Low levels of this vitamin can contribute to arthritis, cancer, diabetes, osteoporosis and high blood pressure. In a high-tech society where most people work indoors and wear sunscreen whenever they are outside, vitamin D insufficiency may be far more common than most doctors suspect.
We discussed this topic in depth on our radio show with two of the country’s leading vitamin D experts, James Dowd, MD, and Michael Holick, PhD, MD. They provide a detailed discussion of testing and treating vitamin D deficiency.









Yes, leg pain is one sign of vitamin D deficiency. There is a test 25hydroxyvitamin, which will give the Dr. your Vitamin D level. Mine was 16 (half of what it should be). I was given 4 pills of 50,000 units of Vitamin D (once a week for a month) and it brought my level up to 42. Now I take 1200 mg daily. The leg pain is gone. You need Vitamin D to absorb calcium, otherwise you can develop osteopenia.
I READ THE ARTICLE ABOUT VITIMAN D. WOULD THIS BE EFFECTIVE FOR FIBROMYALGIA? IF YOU HAVE ANY MORE INFO PLEASE PUBLISH. I HAVE HAD CHRONIC PAIN FOR OVER 20 YEARS AND WAS DIAGNOSED WITH FIBRO IN THE EARLY 1980'S
THANKS
I have post polio syndrome that affects lower back and hips. I was in such misery it was hard to sleep back in November. I started taking 4000 IU of D3 daily and within DAYS I was feeling better. And now that the sun is hot and I'm out gardening with few clothes I am suddenly feeling really great.
As for fibromyalgia, definitely try D3.
A young friend had such bad Chrohn's disease he had about given up on life. I suggested he take D3. A few months later, he was engaged and he and his finace had enrolled in doctoral programs at Chico State. No more Chrohn's!
I have been having intense leg and hip pain that comes and goes, but seems to be hanging around now. A couple of months ago through a routine blood test my doctor found I am low in Vitamin D and prescribed me meds. To this day I did not purchase the meds. After reading what I found here I am out to get the meds. I will provide a follow-up after taking the meds for awhile. Thanks for everyone's input.
I get this intense leg pain while I am sleeping at night, and then I cannot find a comfortable spot to lie in, nor a position. I am on heart medication and I just thought that the diuretics would be the culprit in the cause, so, I just started taking potassium, and eating bananas again.
The pharmacist explained to me that I also need to have my bloodwork checked periodically to monitor my levels to see where the deficiency is; that is kind of difficult when one has no decent health insurance. What could be the primary cause of this issue? The waking me up at night, is so aggravating and annoying and it hurts like the dickens!
PEOPLE'S PHARMACY COMMENT: TAKING POTASSIUM PILLS WITHOUT MONITORING COULD BE VERY DANGEROUS. PLEASE FIND A WAY TO HAVE THIS CHECKED ON A REGULAR BASIS.
I have had 15 years of back, hip, leg and sciatic nerve pain. Last week was checked for vit. d defficency which was low. I am on 1 pill a week for 12 weeks, then 1 time a month. In less than 1 week I am almost pain free and am so thankful as I thought I would need a wheelchair soon . I just wish this could have happened 15 years ago. Has anyone out there recovered this fast??
My 16 year old son has severe spine pain and leg pain and weakness.
he has low vitamin d, he took 50,000 units one a week for 8 weeks, it dropped, then he started calcitriol, my daughter is also deficient and has back pain as well as leg pain and weakness, So I decided check my level and I'm low as well, just not as severe as my son. He has severe pain and he does not seem to get better. Even his pain Dr doubts him and this is very frustrating. He states his deficiency has nothing to do with his pain, which I do not believe. It has everything to do with his pain!! Anyone out there in this situation?
I was so glad to find these postings. I've had chronic lower back and hip pain for 3 years and this past February, began having awful upper leg pain as well. First in my left leg, then spreading to both legs. Burning, aching, bone deep pain that never goes away. Some days were worse than others, bringing me to tears and putting my stress levels thru the roof! I'm a single mom of two little girls, one with severe special needs. To say that I don't have room in my life for pain is a huge understatement. I finally went to my Dr. and demanded every test possible be run. Luckily, I have a great Dr. who spent time studying with a Dr. in Alaska who was a real proponent of Vitamin D deficiency testing. She tested and sure enough, I came back registering a 4, almost non-existant vitamin D level. I've been taking 2000 IU of D3 for several weeks now and there is real relief. After a bout with a rotten stomach virus that kept me off my D3 for a few days, I noticed the pain almost doubling. I'm a believer.
After being on a steroid inhaler for asthma, protein pump inhibitor for acid reflux and cholestrol lowering meds, I have developed a Vit D deficiency.
For several years now I have experienced leg pain, cramping in feet and extremely bothersome fatigue, which I describe as debililtating. I have developed this even with the consumption of 1,400 IU and lots of fortifed skim milk and yogurt.
You can develop a deficiency, even with adequate levels of supplementation, especially with D depleting meds. My advice to all who are experiencing major fatigue is to please have their Vit. D level checked. My GP, who is awesome, thought to do this and now I am starting on 125 mg. 2/week and am hoping this will give me back my enegy. If only I had known!!!
Wow. Dr just called me and said my level was 17! I have had two hip replacements at 41 and 42! If this taking this RX for Vit D, decreases my pain, I will be sooo very Thankful!
Update on my 16 year old son and daughter, my son's pain level is improving, his latest bloodwork is pending, one level is slightly low and I'm waiting on the vitamin d 1,25 level, my daughters still pending, and mine is normal now.
Its been a long road, but finally my son is noticing his pain is decreasing a little, I knew that this was going to take time since I believe his deficiency started a few years ago, I had notice for 2 years prior to diagnosing him that he was having weakness, aches and pains, not feeling well here and there. but hang in there you will see results some sooner that others, but hang in there.
My husband has had major problems with leg cramps since he was a teenager. He has gone to many doctors to try to get relief for this problem, or at least figure out why it happens. At the age of 64, he was prescribed 1000 mg of vitamin D per day and his leg cramp problems have disappeared. We regret that it took so many painful years to figure this out.
I had severe leg pain during the night and day for about four months. I went to my Doctor, and she did blood work. My Vitamin D level was 8, so I was prescribed 50,000 IU's/ week for twelve weeks. They leg pain is almost non-existent.
I have had constant leg and foot pain for about a year. can barely stand -even when I am not standing I have the same pain. I have just found out after blood test l have vit D deficiency I have just finished taking 2 -50,000 ea tab a wk for a month - no help yet. but Dr suggest 2 vit d eac week for at least 3 more months. During this time my Dr sent me to get diagnosis regarding possible nerve damage in legs results ...no pinched nerves.---- BUT, due to back surgery 2 years ago possible scar tissue causing nerves to stretch?? could cause leg and foot pain? Have you ever heard of this .... SUGGEST- steriod shots in back in scar tissue to soften scar tissue......Has any one ever heard of this diagnoses?? Please respond, next step to get shot in scar tissue...........
my mother has recently been diagnosed with a vitamin D deficiency and has had similar symptoms to everyone else that has posted comments. The only difference is that she is experiencing tingling in her hands like as if her hands were asleep, she describes it has a "pins & needles" feeling. Does this have anything to do with her low vitamin D??
I have leg pain when walking, hip pain at night, my hands also tingle at night. I have a vitamin D level of 14. The doctor says I have bursitis in my hips, x-rays show chondrocalcinosis in my hips and spondylosis in my neck and back. Is it too late to take Vit.D?
The tingling feeling may be related to low calcium levels. After thyroid surgery, I was warned to be on the look out for this as damage to the parathyroids which are critical to calcium, is not uncommon. Vitamin D is related to calcium absorption. Definitely worth checking on with her doctor as it may be easily fixed!
I am a 58 year old female and have had aches and pains for the past few years and thought it was old age. For the past 6 months I have been having extreme pain in my legs to the point I would be brought to tears as I climbed stairs. I have had MRIs, xrays, and a vascular workup and nothing was found. I insisted on a complete blood workup of anything we could think of and the only result was my Vitamin D was a 9.
I began taking the D2 50,000 weekly pill and trying to eat very nutritiously. After 3 months my Vit D level is up to 20. My pain level is so much less that I feel blessed. I continue to lean against a wall while waiting for an elevator and have to sit and rest my legs as I walk to the cafeteria but over time it is getting better.
I continue on the 50,000 D2 weekly and have added 1,000 D3 daily and get out in the sun for about 20 minutes at a time when I can. I live in the DC area and that is not daily for sure. I had pain in my hands and thought I had carpel tunnel, but now that pain is gone. And for the first time, feel really optimistic about being able to walk on a beach again. Tell everyone to check their Vitamin D levels!
Oh my gosh, I have had hip and knee pain for several years and seems to be getting worse. My dr thought it was bursitis, then found arthritis in my neck and back (like that of an 80 yr old) and also now they found chondrocalcinosis in several of my joints. Blood work came back and showed a def in vit d. She gave me Citrical for the calcium and vit d.
I can't believe that this may be the answer to all my severe pain. Your story sounds so much like mine. Has the vit d helped?
I wrote a comment on July 9 and it is now a month later. I no longer lean on the wall while waiting for the elevator and I can walk much further before needing a rest. I no longer have "pain" as it now feels more like a bruise. I have been taking large doses of Vitamin D for almost 6 months and I am so happy to say, it has saved my lifestyle. I will continue to check my level to make sure I don't have an absorption issue with vit d, and continue taking some vit d everyday for the rest of my life. I do not want to ever go thru this pain again!
That could be a calcium related issue. When I had my thyroid removed they specifically told me to notify them of any tingling as it is often related to parathyroids which can be damaged during thyroid surgery. The parathyroids are calcium producers if I understand it correctly. Calcium does require vit D for absorption, so both should be checked.
I went in for blood work thinking I had hypothyroidism about 2 months ago. I was depressed and had hip pain when walking after I sat for awhile. After getting up to walk from the chair, the longer I walked, the hip pain would gradually go away until the next time I sat down. It was like my joint had to get warmed up. My doctor decided to test for Vitamin D also and I was low. The level was 19. I have been taking 50,000 mg of Vitamin D once a week for 8 weeks now.
3 days ago I realized the hip pain was gone and I have been crossing my fingers that it won't come back! It is wonderful to be pain free. I thought I was going to have to have a hip replacement or end up in a wheel chair. Anyway, thanks for sharing your experience with Vit D. I now think the hip pain was caused from the deficiency.
I was having major back pain. Went to the spine institute and had a MRI done. The doctor told me that I had some bulging disc but it was not bad enough to really do anything. He agreed that I might get some relief from getting some epidurals done. After having 2 and they did not help, I was at wits end.
For one year I fought through the pain. Then my legs started hurting and my arms. I went to my regular doctor and she said she wanted to check my vit D. It came back extremely deficient (I was taking 2000IU's over the counter D3). She prescribed 50,000 IU's once monthly for 6 months. The back pain went away. I am still having problems with my legs.
I will be going to get my levels checked again in a couple of weeks. I think she will most probably have to change the frequency of taking the medication. I really feel if you have unexplained pain that seems like it is not going away, do yourself a favor and have this test done. The medication is very inexpensive, but I would have paid anything to get some relief.
My vitamin d level is less than 4, the only thing my doc put me on
is 2000iu daily D3. My legs are still hurting.
PEOPLE'S PHARMACY RESPONSE: PLEASE CHECK BACK WITH YOUR DOCTOR ABOUT THIS ISSUE.
I've just recently been suffering from bedtime leg cramps which I usually have to walk off. I'm concerned because I am having foot surgery next week and will be confined to bed for 2 weeks. I am very confused by all of the solutions my docs have given me and by all of the remedies listed on this web site. I've been drinking tonic water and taking magnesium ( recommended by 2 docs). I am still getting the cramps.
Now the docs want me to triple the amount of calcium I have been taking, continue with the magnesium and tonic water, and begin taking vitamin D.
This website was recommended to me by a friend but it confuses me. The gin and golden raisins, the soap under the sheets, coconut milk.... Does any of this stuff really help? I cannot see myself in bed with a cast and getting those horrible cramps. I won't be able to walk them off.
After 3 long years of low back pain and intense leg pain (sciatica and burning feeling in the foot) my husband finally has a diagnosis of Lyme disease! Not great, but along with it a low vitamin D. I am hopeful he will have a similar response as the pain is intense.
I have rheumatoid arthritis and have been on Remicade for about 6 years now and am a Type II diabetic. About 2 years ago my GP put me on Vytorin for Cholesterol, even though my total levels were below 130. He believes in treating all his diabetic patients as if they have heart disease so he gives statins.
About 18 months ago I started having very bad leg pains in the muscles of my shin at night when I lay on either side. If I rolled onto my back the pain would almost instantly stop. Since then it has slowly gotten worse to the point that the after pain leaves me sore through most of the next day.
About 6 months ago my rhuematologist had me go on 2400mg of Caltrate with Vitamin D, because of extremely low Vitamin D levels. My last blood tests showed my Vitamin D levels still below normal. I wonder if it is the Vytorin that is causing my problems? My total Cholesterol numbers are now below 90, that's right less than 90 total. I hate to increase Vitamin D to a truly massive dose because I heard that too much is highly toxic.
PEOPLE'S PHARMACY RESPONSE: PLEASE TALK THIS OVER WITH YOUR RHEUMATOLOGIST. ASK HIM IF YOU COULD HAVE A TRIAL OFF VYTORIN FOR A MONTH OR TWO TO SEE IF IT CHANGES THE MUSCLE PAIN.
ALSO, YOU ARE GETTING MUCH MORE CALCIUM THAN VITAMIN D IN YOUR CALTRATE WITH D. 2400 MG CALCIUM IS QUITE A LOT. WHEN YOU TALK WITH YOUR DOCTOR, ASK WHETHER IT MIGHT MAKE SENSE TO TAKE THE VITAMIN D SEPARATELY, AND ASK FOR A BLOOD TEST TO SEE IF YOU ARE LOW OR NOT.
Stephen, You need to see an internal medicine doctor that can manage your many illnesses. Statins can cause muscle pain and there are many cholesterol lowering drugs out there not in the class of statins that work well. I don't take statins at this point so I only know from my friends that their doctors usually change their medicine if they have muscle pain.
Vitamin D-if your level is low you need more Vit D than what is in Citracal. Hopefully the internal medicine doctor you go to won't be afraid to treat you. I went to an Endocrinologist for treatment and she put me on 50,000 units each week of the D2 type and 1000 each day of the D3 type. This was about a year ago. I now take 2,000 units of Vit D each day (and not the weekly D2.) I also take the Citracal with Vit D in it, and when the weather is good, I get some sun.
I am no longer in all the pain I was in and feel like a younger person. I am back on my treadmill. Read up on the Vit D information on health sites and you will find it is hard to overdose on D. It takes a lot of effort. A good website is the Vitamin D Council.
I am aged 38 and my vitamin level is 10.0 pg/ml and my husband's is 16.2 pg/ml. Cholesterol levles are high, thyroid levels are high. What could be the reason?
My legs have been aching and feeling weak for approx 2.5 years now, approx around the same time I started on statins to lower cholesterol. Doctor didi a vitamin d test 4 months ago and said it was 8. I'm now on something called alphacalcidol, but my legs are still aching and weak every day and night! Does it take a long time to actually work? thanks!
Craig, Go see a doctor not afraid to treat your low Vitamin D aggressively. I recommend either an internal medicine, endocrinologist, or rheumatologist. You need to be on some Vitamin D. It took me almost a year and I was taking big doses of D2 and D3 type of Vitamin D. Even after I got my level up to about 50, I continue to take 2000 units a day of over the counter D3. You must fight for yourself as not a lot of doctors understand Vitamin D as it wasn't taught in medical schools until the last few years. Read up and arm yourself with knowledge. After a year, I am pain free and am back on the treadmill. I thought I was going to end up in a wheel chair.