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Dealing With Vitamin D Deficiency

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Q. I've just learned that many people over 50 are vitamin D deficient. My doctor called with my test results: I have about 7 percent of the recommended amount of vitamin D in my body.

I've got all the symptoms but attributed them to arthritis and age. For years I've taken a multivitamin and two calcium + 400 units of vitamin D daily, so my low levels came as a surprise. My doctor said he's begun testing all women over 50 for D deficiency. He prescribed 50,000 units of vitamin D to be taken once weekly. Is this much vitamin D dangerous?


A. If you were taking that much vitamin D daily, you might well get into the toxic range. Your doctor will be monitoring to make sure your vitamin D levels stabilize with treatment.

Research evidence is mounting that 400 international units of vitamin D daily, the currently recommended intake, is inadequate for many people. Vitamin D is essential not only for preventing rickets and building strong bones, but also for a healthy immune system that can fight off infections and cancer.
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1 cup of milk is supposed to provide 25% of required vitamin D. I have at least two.

If you regularly (daily) include milk and milk products (and multi-vitamin tablets) in your diet, work out in the yard, and enjoy some tanning sessions in the sun in summer, what's the problem?

I am 60 years old and feel great. My annual physical shows all elements are within parameters.

I too have a very low level of vitamin D as shown in recent blood tests. I take 1600 units of calcium citrate with added D and magnesium and have been taking supplemental D. I am concerned that my levels remain so low. I am going to increase my supplementation of D to 2000 IU daily. This must be a pretty universal problem! I hope the added dose of D will help me.

My Vitamin D level was low and my doctor put me on a prescription Vit. D pill (which is D2), which I took once a week. I recently checked my Vit D level again, and it was still not adequate (after 3 months on D2).

After reading about Vitamin D, I am now taking an over the counter D3 (cholecalciferol), which appears to be much better and more effective than D2. I am taking 2000 IU daily.

I was not aware that in order to raise Vit. D levels, there is a difference in the D2 and the D3. This is something to consider when supplementing with Vitamin D. I am hopeful that in a couple of months, my Vit. D level will be adequate. I do get out in the sun and eat a healthy diet, but it is still necessary for me to add the Vit. D supplement.

Last winter, my doctor put me on 50,000 units of Vit. D. weekly. My blood level in the beginning was 20, the lower limit. After 3 months, my blood level was up to 50, so my dose was reduced to 50,000 units twice a month. This winter I'll be tested again to see where I am.

My doctor has prescribed for me to take 1000 MG daily. I had a brain hemorrhage when I was about 26, then I have had non-bleeding strokes in 91, 95, 99 & 2003. Each time I had to spend time in the hosp. I have to take dilantin & phenabarbital as I now have secerias because of the original stroke. My doctor said because of these medications for all this time it has caused my problem. What are your thoughts about this?

I'm a woman in my late 40's who has never had any health issues. I recently found out I had osteoporosis (it runs in my family so, against my GP's advice, I took the dexascan just to get a baseline).

I immediately took a Vitamin D test and found out I was deficient, with levels at 18 ng/ml. My doctor put me on a regimen of 50,000 IU of ergocalciferol (D2) per week for 8 weeks. I was retested and my levels had come up to only 24 ng/ml.

I'm disappointed that the results are not more impressive but I'm also encouraged that the levels have increased. I am now considering ordering the 50,000 IU D3 product from a company called BioTech. I am also considering ordering a UVB lamp.

What I am finding is that most general practitioners, however well intentioned, know very little about Vitamin D deficiency and are not quite sure how to treat it.

One thing's for sure--the days of depending on your doctor for the maintenance of your health are long gone. You have to be your own advocate and do your own research. You have to bring the research to your doctor and educate him or her. If you have a good doctor, he or she will appreciate this as mine did.

My doctor just prescribed me Vitamin D 50000IU. I am to only take two pills a week so I have decided to take them on Wednesday and Saturday. I wanted to know if any one has had side effects from taking the medication.

LT is absolutely correct. It is essential that patients become well enough informed to take control of their own health care. My PCP was after me for a while to take statins because my total cholesterol was 220 (HDL>50). I politely declined his offer and began a regimen of plant sterols, Lecithin and fish oil. At my last blood test, total cholesterol was 201 and HDL was 54. The doctor was impressed and no longer tries to have me take statins. As an aside, my mother had total cholesterol of over 300, never had a heart problem and died at 87 of a septic infection from cataract surgery.

If the modern prescription drugs are so wonderful, why did so many of our ancestors live to be over 90 without them.
RB

Just over a month and a half ago, I was released from the hospital. I have cystic fibrosis, and malabsorption problems. I was made very ill from being given Cipro in the treatment of Cf, and after that could not eat for three weeks. Therefore my blood levals were all down, and by the time I got to the kidney doctor, they told me that my vitamin D was also low.

The doctor called in a perscription of 50,000 units of vitamin D and ordered me to take it once a week, which I did for two weeks on Sunday. Following the second dose on Monday, by that afternoon I noticed I was not urinating right, and made several trips to the bathroom as I could not hold in my bladder. What I found was large amounts of red blood all through the urine, and clots started to form, and it was beginning to get cloudy.

I must have had stones formed by taking magnesium for tummy aches, and now I do not have any appetite at all, temperture at 99.3, and feeling over-all sick in the stomach, but urine is back to normal.

I read that 1500 is the top amount that should be given to prevent deficiencies, but also to take with calcium, which he has not prescribed. Now I wonder if it was the vitamin D which caused the cloudy blood to appear in my urine, and did this cause stones which were very painful to pass?

What are the signs of low vitamin D?


i recently was tested for vitamin D levals, which were low. Dr put me on 50000iu once a week. i had to stop taking high dose as it cause gallbladder problems i now take 1000iu every day until after my gallbladder testing. Vitamin D is a fat soluble vitamin and sensitive gallbladders may react to high levels.

I, too, have just been told by the endocrinologist that she is concerned that the vitamin D levels shown were very low, l4 whatever, and I already have severe symptoms of chronic dehydration. Looked on websites about the vitamin D, and discovered there is concern about parathyroid tumors with this condition. Also, I take tums, 2 to 3 times a day, for stomach pain.

I think all of this is related, but don't have any answers. I am VERY concerned about taking 50,000 units of Vitamin D at once. This is April 14, 2008.

I have been diagnose with low Vit d and put on 50,000 of D once a week for 8 weeks. Then 400 for two week. My current test show my level went from 11 to 18 only and now I'm going on my second doze of 50,000. I've had gastric bypass within the last two years and was wondering if that causes this problem or if it is my hyprothroid problem. Please let me know if anyone else has had problems simular--thanks

I have low iron and vitamin D,my doctor prescribed me an iron supplement and 50000iu of vitamin D to take "daily", is this too much? thanks

@ RB:

The fact is, very, very few of our ancestors lived past 30 or 40, biblical accounts notwithstanding. Many of our current health problems occur simply because we weren't really designed to live as long as we do now. We're not succumbing to diseases, accidents, and predation like we used to. Osteoporosis, arthritis, cataracts, menopause, etc. are the result of not dying at a "normal" age.

Some of us (like ACL) are blessed with genes that minimize these problems. But for the rest of us there's nothing wrong with modern medicine helping us accommodate with our prolonged lifespans, as long as we also modify our diets and behaviors to help out this process.

I was found to have a vit D level of 11 following a wrist fx. I was placed on 50,000 units of vit e 2x/week and had to reduce it to 1x/wk after having gallbladder symptoms. (However ED ruled out gallbladder and dx gastrointestinal flare up.) On off days I took 1,000 mg of vit E. Now my level is 4 and I am trying the 50,000 units 3x/wk per the doctor. I am feeling discouraged and wondering if all this is hoopla or if something else is the problem.

I was diagnosed with MS, and several other things, until they found that my D level was 8.3 (dangerously low). I'm on 50,000 iu twice weekly and can tell you, it makes a difference!


KIM

I was tested for low Vit D because I was having horrible back pain. I was extremely deficient. My doc put me on 50,000 iu, one pill each week for 12 weeks. After 11 weeks I have tested and my Vit D is now up to 40. My doc now wants me to take 1,000 iu daily along with a calcium supplement. I am 48 (female) and haven't hit menopause yet, but since I was so deficient in Vit D, she wants me to start with the calcium, too. Also, I have to have a DEXA scan to test for osteoporosis. I have the beginnings of a dowager's hump, and this is indicative of osteo. Do not take 50,000 iu of Vit D per day! That would be very toxic!

I want to thank everyone on here for sharing since I was looking for some feedback about the 50,000 IU dose of Vitamin D (which I have resisted). In April, after 3-4 years of telling the doctor that my bones hurt... she finally ordered a Vitamin D screening. My level was down to 20. Right away I went out and got 2000 IU supplements and took one a day plus the calcium or multivitamin which has 400 IU of Vitamin D. That means I was taking 16,800 IU a week.

After 2 months of this my level was at 27... getting closer to the normal range. The doctor still wants me to do the 50,000 a week, but I noted that I would increase my own supplements and get retested in 6 weeks. So now I am taking 3400 to 3800 IU a day equal to about 23,800 - 24,600 IU a week. I am hoping that my number will come up again so that I can cut this daily supplement back down to 2000 IU's.

Many thanks to Betsy who spoke about the difference types of VIT D. I also read about D3 and the importance of that!! I'm really glad I came across this site, because I am more sure than ever that I don't want to take 50,000 of D2 a week. :)

I was diagnosed with a vitamin d defiency in jan 2008 with a level of 5. my doctors have given me different levels of vitamin d, they put me on 50000 iu and now i am having severe cramps and muscle spasms. it feels like i have been a punching bag, so now they have taken me off it all together for a month or two. i dont know what to do, the vitamin d defiency also caused a thyroid problem, which has gotten better, but now my hair is falling out. so i recommend being very careful with the levels they give you. i dont know what is next but i hope i dont feel this way anymore.

June 2008 I was diagnosed with low levels of vitamin D.
I was given a prescription for 50000 iu vit D. I still breastfeed my son. Is this toxic for the both of us? I have been c/o joint pain for 3 years and am now 41 years old. I have had some hair loss prior to vit D diagnosis. I am afraid to take. Doc knows I am breastfeeding and suggested that I ween my son.

I was recently prescribed 50,000IU of Vit D2 to be taken weekly for 12 weeks. My level was a 23 and I was having bone and muscle pains. Other causes have been ruled out.

I took one dose and did not feel well. I was sweating and very tired. So, I am now taking 3000 IU D3 daily. I am hoping this brings my levels up.

It has only been 2 weeks and I am noticing I am having much less pain. The rheumatologist told me that low Vit D is common in women who have thyroid disease...which I do. Personally, I think GP's should check everyone for this deficiency.

I have been told by my doctor that I have low vitamin D. She wants me to take 50,000 iu of it. After reading the blogs above it worries me. Also, I am trying to get pregnant. Could this be dangerous for me or the baby if I get pregnant? My prenatal vitamins have 400 iu. How much more can I safely take per day to insure the safety of me and the baby should I get pregnant, at the same time allowing my body to get what I need to be healthy?

PEOPLE'S PHARMACY RESPONSE: PLEASE TALK WITH YOUR DOCTOR OR OBSTETRICIAN ABOUT YOUR CONCERNS. 50,000 IU ONCE PER WEEK WORKS OUT TO A LITTLE OVER 7,000 IU PER DAY. THAT'S A HIGH DOSE, BUT IF YOUR VITAMIN D LEVELS ARE REALLY LOW YOU MIGHT NEED THAT MUCH.

I'm wondering if taking 50,000iu 2x per month will up my changes for kidney stones. i have had a stone in the past.

46 yr. old, osteopenia, blood test show Vit. D level @ 30, was prescribed 50000 Vit D weekly for 6 weeks. Took pill Friday evening, suffered severe headache, nausea and vomiting the following day. When asked, my doctor told me Vit. D wouldn't have that effect and to continue to take it weekly. I am very concerned. Is this a sign of toxicity?

I have a level 8 and my dr. has ordered me to 50,000 iu every day for 30 days, what would be the side effects?

Re: comments on side effects from 50,000 IU Vit D taken twice monthly. I took first dose 5 days ago. Have notice higher levels of body wide pain, much higher than my usual Fibropain. Barely slept at all last night due to the high pain in muscles & bones.

Have been in bed all day with strange skin sensations, nausea, no appetite. blurry vision, cold extremities, severe muscle spasms, feeling so faint, I'm afraid to close my eyes to sleep, very dry mouth, voiding excessively, tummy cramps, dizzy. Should I contact my GP? How long can I expect these 'symptoms' to last? Will they go away? How long does this Vit D stay in my system? I'm already not liking this at all.

I was just tested for Vit D and my results came back at 18ng. Like everyone else I was put on the 50,000 IU 1x a week pill. I have noticed side effects too; edgy, body racing, feeling hyper, nausea, not much appetite.

I have only taken one pill and will probably not take another. I also had my gall bladder out and take HBP pill with a diuretic. Could there be some kind of interaction. All I know is that I feel worse than before. I had a DEXA scan and have no signs of osteopenia etc. I am a female 54 and weigh 100 lbs.

I had the vitamin D, 1,25-DIHYDROXY test, and my doctor said under 50 is low, mine was 44. She wants me to take 50,000 IU Vitamin D daily. And she did not say when I needed to test my levels again. Isn't this much Vitamin D taken daily toxic?

I am a 62 year old female who was diagnosed with osteoporosis in my thirties...the diagnosis later changed to osteopenia, but as of a year and a half ago, my lumbar region has just moved back into the osteoporosis range.

Anyway, a friend's doc recently tested her Vitamin D level and found it practically nonexistent. The doc prescribed 50,000 IU a day for a week, followed by 50,000 IU once a week for three weeks. At the end of that time, she was retested and was still dangerously low. The treatment was repeated and she has just moved into the lower end of the acceptable range. During this time, she was also advised to get 15 or so minutes of sunshine a day. She never experienced ANY ill side effects.

I had my D level tested last week and was informed that mine is 16.9. The lab that did the test had a desirable range of 32-100. My doc has prescribed the same regimen as my friend was on...50,000 IU a day for a week, followed by 50,000 IU once a week for three weeks. I took my first gelcap yesterday and felt a little nauseous after, BUT that happens to me sometime depending on what I eat and my body that day so I can't say that the D caused it. I took my second dose a couple hours ago and have noticed NO nausea.

I'm sure everyone's body is different and some people probably absorb more of the dosage than others. The trick is to carefully monitor blood levels and symptoms. A low D level is also very dangerous to a person's health...and sometimes what is perceived as a side effect of a new med is actually caused by something else.

I went to the dr.because I was feeling extremely tired, had some dizzy spells and at time I would come home from work and just shake because I was so cold. I was tested for Vitamin D deficiecy and it came back a 21. I was told to take a Vitamin D pill daily. She never told me how much to take or even suggest that I come back in a few months to be re-tested, I bought the pills and they are 400 IU, Am I getting enough?

I work for a hormone doctor.
50,000 IU once a week for 8 weeks followed by 5,000 IU once a day for two weeks is the regime we use in our office. We've had no complaints about side effects. Once they're done with the 2 week regime, we have them take 2,000 IU per day for maintenance.

After having a checkup at the Cleveland clinic in OH I was told i should take 1200 mg calcium and 800 - 1000 iu vitamin D daily, I'm now taking Caltrate twice a day with minerals. I am interested to know if anyone else taking the Caltrate with minerals in these quantities has experienced occasional sharp stomach pains and a fairly constant dry mouth? I have become an egg and cheese vegetarian and started the diet about the same time as these pills.

I just wanted to say that not ALL Vitamin D deficiencies are due to inadequate intake of your daily dose of vitamins through food or sunlight. A lot of people on here have misunderstood that there are plenty of other causes for having a vitamin d deficiency. I was diagnosed with Celiac Disease upon finding my Vitamin D was very low.

I am taking the 50,000IU's of Vitamin D now. But I will have to do so my entire life because my body is not absorbing the nutrients like it should because of the damage in my intestines done by eating gluten/wheat products. I would recommend that everyone be tested for Celiac after finding out about your Vitamin D deficiency. It's a very dangerous disease that causes a 25% increased chance of getting cancer on top of the cancer increase by the Vitamin D deficiency. 1 in every 132 people in the world have Celiac so take it seriously when someone tells you your vitamins are low. It may not be all that it appears. There are plenty of underlying causes of being deficient.

I have (2) coronary stents in my right artery, I have COPD and Emphysema along with Fibromyalgia and with all of these conditions, I am on 17 medications daily and no longer work at age 57.

I too, was recently diagnosed with Low Vitamin D level and was prescribed 50,000IU weekly, but have not started taking the medicine. I am not comfortable with taking this quantity of any medication. This same Rheumotoid Doctor diagnosed me with Fribromyalgia this year. She previously prescribed (2) different medications for the Fibormyalgia. One side effect caused breathing problems and the other medication had a warning that said it could cause a heart-attack. Needless to say, after paying for the medications and reading the warnings, I was not taking any of it.

I think it is time for each of us to take an in-depth look at our condition (s). The Doctors reply was Tylenol can give you breathing problems.

I am thoroughly disgusted with doctors that charge you a fortune and actually put your life in danger..... I would advise all to listen to your inner mind - if it says don't take it - DON'T DO IT!!!!!!!!!!!!!

My endo just called and wants to put me on 50,000 units of D2 once a week. I took D3 with calcium several years ago and had stomach cramps, so won't be doing the D2. I suspect my malabsorption problems are because of high fructose corn syrup, and I have about 99% eliminated the fructose from my diet with remarkable improvement. I will stick with an over the counter D3, and think tests will improve by January, now that I may actually be able to absorb nutrients again. It's my body and side effects can be deadly.

My 38 yr. old son's blood tests revealed Vit. D levels at 6.4, 1st test & 8 on a re-test he asked to have done. His drs. ofc., not his Dr., called to say he "needed to get some sun", and called in a prescription for 50K iu of Vit. D 1x weekly with a re-check in 12 weeks. He is single, works out and eats right. Shouldn't other tests be done?

I have CPMS and recently completely collapsed in front of the grocery store. I was not only having a major MS flare up but the dr put me on vitamin D 2X weekly 50,000 units each dose.
I am now having more trouble than normal sleeping, and have been having sharp stomach pains. Is this a normal side effect? How is this much of a dose broken down in your body?

Re. Brenda S, September 4, 2008 comments "I had the vitamin D, 1,25-DIHYDROXY test, and my doctor said under 50 is low, mine was 44. She wants me to take 50,000 IU Vitamin D daily. And she did not say when I needed to test my levels again. Isn't this much Vitamin D3 taken daily toxic?"
According to the vitamin D council website the test for vitamin D3 is 25-hydroxyvitamin D, not 1,25 dihydroxyvitamin D. See
http://www.vitamindcouncil.org/vitaminDPharmacology.shtml" rel="nofollow">http://www.vitamindcouncil.org/vitaminDPharmacology.shtml

I have been in severe body pain since my pregnancy. I'm 39 and nursing a three-month-old baby. My D level was checked and I'm @ 26. The pharmacist advised that the baby be closely monitored. I checked with her pediatrician, and she said it is fine to take 50,000IU/week. Any other breastfeeding moms who have encountered this? I'm getting conflicting advice.

PEOPLE'S PHARMACY RESPONSE: WE COUNT ON PEDIATRICIANS IN SITUATIONS LIKE THIS.

I was particularly interested in the comments by the person who has celiac disease. I was diagnosed with celiac disease 37 years ago (I am going to be 80 in a couple of weeks). I was also diagnosed with osteoporosis a couple years later, and with Hashimotos thyroid disease in about 1991. I have taken calcium supplements and thyroid medications. I was diagnosed with low Vitamin D when I saw the doctor a couple of months ago and have been taking 50,000 I.U.'s once a week to hopefully build it up. I have had no side effects so will be checked again in about three months. I have been taking Forteo for almost two years now and hope that my bone density will improve. The reason that I have been taking the forteo is that my bone density had actually decreased, even after taking all the calcium. So possibly the lack of Vitamin D was the cause.

I spoke to Dr Michael Holick, leading Vitamin D expert in the world and author of numerous papers on Vitamin D (see sample link below)
http://www.savvypatients.com/NEJM%20Vitamin%20D%20Review.pdf

Summary of few things from our conversation:

*** 6 years of research have helped him successfully treat Vitamin D deficiency in his patients with 50000 iu weekly for 6 weeks and then 50000 iu maintenance dose every two weeks thereafter forever.

*** Vitamin D treatment is known to initially aggravate bone pain and cause other side effects but bone pain and weakness should improve over time

*** Target blood levels for Vitamin D should be between 40-60 and that can be accomplished with the treatment doses he suggested

I spoke to another leading endocrinologist specializing in Vitamin D as well (you don't want to follow the advice of doctors who are not subject matter experts on Vitamin D deficiency as they will keep on doing trial and error experiments on you as mine did and with Vitamin D deficiency which is known to trigger many autoimmune disorders and the like you don't want to go unsuccessfully treated by someone who has little knowledge on this). He said he has successfully treated patients with 50000 iu weekly for 6 weeks and then 5000 iu maintenance dose daily thereafter forever.

Addending to my previous post:

For anyone with Vitamin D deficiency, here is my recommendations based on my experience and talking to experts:

1. Talk to your Physician about following treatment method suggested by Michael Hollick in previous post: 50000 iu weekly for 6 weeks followed by 50000 iu every two weeks thereafter
2. After the first 6 weeks of above recommended treatment, recheck Vitamin D levels again. If not normal, recheck again after another 6 weeks. If it does not correct by then, see ONLY an endocrinologist who is an expert in Vitamin D deficiency - not all of them are and Vitamin D deficiency is serious enough to leave unsuccessfully treated for too long.
3. If above treatment is successful, then develop a plan to check Vitamin D levels periodically as agreed by you and your doctor.
4. Also, make sure you are not consuming too much calcium (but do consume about 1200 iu of calcium or so as recomended by your physician) as consuming so much Vitamin D and excessive calcium at same time may lead to calcification of organs, kidney stones and the like.
5. Vitamin D treatment initially replaces lost calcium from bones - so early during treatment you will notice lots of bone pain depending on how much bone calcium you lost that is being replaced (if you have vitamin d deficiency when you are pregnant or lactating, you will lose more calcium from your bones as the bones are the body's calcium store and they are used as a last resort if dietary calcium is not made available due to vitamin d deficiency - vitamin d helps in absorbing dietary calcium, with deficiency, this won't happen and so bone calcium is used up)
6. Vitamin D deficiency is serious - triggers all kinds of disorders and illness - so please consult with someone who is an expert and get it corrected soon

My vit d levels came back a week ago at 5.8. I have CFS. I am also dangerously low B12. I am seeing a hematologist soon for further testing. Just wanted to add that my doc and research has told me the vit d needs to be d3, very important. I am taking around 40,000iu/week. Taking d3 everyday instead of once a week can help with side effects. The prescription that is often written is for d2, which has not shown the same effects in all the new clinical tests. Please be aware and research your docs advice. I am hoping to feel better just with the supplements. I hope.

Hi i also was tested for Vit D and my level low 4 ,i'm 58 yr old female ..dr also wants me to take 1.25 mg soft gel pill once a week for 12 weeks ,not sure that comes out to 50,000, not knowing a lot about this dose when his nurse called she just said take it, i have no knowledge about this large dose and i have a phobia about pills still haven't taken it. i am panicky everytime i try ,i'm afraid to call my dr's office back. i don't know what to do, what if I can't tolerate that large dose what else can Dr do help bring levels up? can someone help i feel so scared and confused. thank you.

50,000 IUs per DAY seems VERY excessive. I was put on it once a week for a month, then once every two weeks. My numbers went from an 8 to an 18, so still deficient, but not as bad. I found I had increased energy and haven't gotten sick since I started taking it (I'm around kids all day, so that's a huge deal!). I love the Vitamin D, but you need to make sure you're on the same page as your doctor, as well as doing your own research. Listen to your body!
I did not have any side effects besides feeling much better than in the past. I'm also lactose intolerant, so getting Vitamin D through diet really wasn't possible. I try to maximize my time in the sun, but put on sun screen after in the sun for 10-15 minutes.

PEOPLE'S PHARMACY RESPONSE: WE AGREE. THE USUAL DOSE IS 50,000 IU WEEKLY. SOME PEOPLE CAN THEN GO TO TAKING THAT DOSE MONTHLY.

Hi y'all!

I wanted to share my experience with my first dose of 50,000 IU of Vitamin D (I am supposed to take one every 6 weeks).

I was so hesitant/scared to take such a large dose so I have avoided filling the prescription for nearly seven months now!

I tested a 16 back in May which was not a huge surprise given that I have Osteoporosis. I was diagnosed when I was 28 and I'm 34 now. My Endocrinologist prescribed the 50,000 IUs but it freaked me out so much that, like I said, I refused to take it.

Long story short, last week after reading up on Vitamin D and how a defiency in D is associated with numerous diseases (Parkinsons, Alzheimers, Breast Cancer, MS, etc . . . ), I decided to finally take the D.

I took my first dose on Sunday night and had to laugh at myself because . . . I had absolutely NO side effects/problems with it. After reading message boards, I feared that surely I'd vomit or have cramps or worse, but NOTHING! :)

I can't speak for everyone because I don't know your individual bodies, but I can say that I had no side effects whatsoever and am thrilled to finally have gone on the 50,000 IU of Vitamin D that my body sorely needs!

to all interested in Vitamin D

please read : http://www.thorne.com/altmedrev/.fulltext/13/1/6.pdf

I had a Vitamin D level of 6 back in November 08 with associated bilateral hip pain and terrible fatigue. The doctor put me on 50,000 iu of D once a week for one month. Then off a month and retested. My D is back at 34 but the pain has resumed and so has the fatigue. Taking 50,000 iu of D once a week is safe, but I can't imagine why anyone would prescribe 50,000 iu daily. Get a 2nd opinion via a rheumatologist.

I have been having depression issues and fatigue and eye dizziness and all kinds of problems. I finally went to the doc because the dizziness was getting worse and lasting longer. I was having many more problems but these were the most frequent other than of course the hurting bones and sleepiness. I was put on 50,000IU THREE times a week for 3 months. My levels are at 19. I am 26 and I am a bit nervous about taking this dose. I took it last night for the first time and I am having awful dizzy spells and I feel likes it's even worse now. The doc will be doing a Cat Scan on me soon. I hope something comes of this. And we can find the problem. It's been going on for way to long.

I am a 50 year old female who three years ago had a full mastectomy & lots of chemo. I do not know what my Vita D levels were before cancer but now it is non-existent. I am taking 3,000 mg per day & it still does not register. Can someone suggest the proper type, amount of Vita D. & what to take it in conjunction with. I read not to take it with fruit or water. Thanks

My Vit. D level was 12 and Dr. said "normal" is 30. Was put on 50,000 units 1xweek. Started taking it this past Saturday. On Saturday evening I had extremely loose bowels and go to bathroom quite frequently. Is this a side effect?

I have been taken 50,000 IU of Vitamin D weekly for a chronic (non-painful) twitching/tremor issue I have. I have to say that my diet is OK, but I am a smoker and a chronic connoisseur of wine/alcohol. Ever since taking the pills, the twitching is considerably less than before, but it's still there. I am also deficient in B12, which I am treating as well. The strange thing is that I never had any issues and it can't be alcohol because I stopped drinking for over a month and the twitching stayed! I am waiting to follow up with my doc in early March and I have a feeling that I am gonna end up seeing a chiropractor.

My family physician sent me to a rheumatologist and she tested me for all kinds of things. It's been one week and so far it has been shown that I have a Vit D deficiency. She said to take 50,000 IU twice weekly. I am scared to take it. I would greatly appreciate any feed back on this. Thanks!!

For more information on this, please go to the Vitamin D Council's website:

They have so much information on this and they state they rarely see toxicity of Vitamin D unless it's 10,000 units or higher per day. But they describe the toxicity as more of a hyperactivity symptom not toxicity.

I believe that's how they describe it.

This website is wonderful.

I was diagnosed with D Deficiency too.

Please note that there appears to be only two different types (all I could find): Cod (fish) liver oil or lanolin (comes from sheeps wool).

I take the lanolin because I'm a vegetarian and cannot use the fish oil because it comes from a dead creature.

I've been taking 5,000 per day for a week and now I'm down to 4,000 per day and will be decreasing it in increments of 1,000 per week until 1,000.

I will be tested again on or about March 11, 2009 and will find out whether mine has risen.

I was having achy joint issues as well which I thought were all arthritis related.

I've noticed that the pain in my joints have eased up a great deal. I can't wait for a month to go by so I can see what taking these supplements for one month can do.

Also, please note that from much of what I've read, tanning beds for increasing D3 levels is not encouraged because it's a different mechanism being used for the UVB rays. Further, from much of what I've read, the best sunning times depends on where you live in the country. I live in the NE part of the US (Penn) and the best sunning times are between the hours of 10am and 2pm. Apparently when most/any of the D3 is released due to sun exposure depends on the angle of the sun, so simple sun exposure any time of the day is apparently critical as well.

Please read as much on this as you can because it's not as simple as you think.

Good luck everyone.

I'll keep you posted.

PS: read the book The Calcium Lie written by Dr. Robert Thomson and Kathleen Barnes which emphasizes the "myth of how much calcium our bodies really need".

Like many others, I am finding that our PCP are just spouting treatments which they have not studied or even read studies. They simply tell you whatever is the popular thing to do...what other doctors are doing.

You really have to educate yourself.

I am taking 1000Mg Vitamin D daily and having itching attacks badly all over my body and scalp. Should I discontinue?

PEOPLE'S PHARMACY RESPONSE: IF YOU ARE TAKING SOMETHING THAT MAKES YOU ITCH, YOU SHOULD STOP.

I had the biliopancreatic diversion with duodenal switch (malabsorptive bariatric surgery several years ago). My vitamin D level is now 4. My bariatric surgeon recommends 50,000 IU vitamin D (dry) daily for three months along with the usual amount of 5,000 IU vitamin D daily I have been taking since my surgery along with the 1,800 mg calcium citrate with vitamin D daily. I malabsorb up to 70-80% of my fats. Should I take 50,000 IU vitamin D daily? What would I have to worry about from getting too much vitamin D?

How do you prevent Vitamin D deficiency? Are you kidding? GET OUT IN THE SUN. The Sun is the BEST source of Vitamin D. Take supplements when you cannot get in the sun, e.g. winter. Best time of day for vitamin D is between 10:00 a.m. and 2:00 p.m. (Yes... the hours that dermatologists say stay out of the sun). Actually, that's pretty much the only time you will get Vit D from the sun unless you live in the tropics.

For several years I have suffered from what I call sore hips/knees/BODY! I just brushed it off to getting older and perimenopause. My last trip to the dr. I told her I was only 48 years old and felt like I was 100. She tested my vitamin D and the count was 11. She prescribed 50,000 units once a week of Vitamin D. I took one dose and felt like a new person the next day! It has been four days since the first dose and for the first time in years, NO soreness ANYWHERE! I love it! I will be retested in three months and hope my numbers come up to normal.

My 11yr old son has just been prescribed 1000iu vit. D a day for next 8 weeks. He just started taking it yesterday. He has been extremely fatigued, weak, and nausea for several months. Dr. said his vit. D was a little low. Wants to try this out. His WBC low and hemoglobin low. Not sure if this is the answer for an 11yr old boy. What are your thoughts?

I'm 32 yrs old. My Vit D is 26. I was prescribed 50000 units of Vit D weekly for 8 weeks. took first one on Tuesday. Felt extremely sleepy 2 hrs after taking it. Later in the night I woke up dizzy, sick to stomach, tingling sensation, rapid heart beat. Now Saturday, I have had insomnia all week and feeling weird - What do these symptoms/side effects mean? I'm not going to take the 50000 units again. My Dr. has not called me back about this yet. I'm thinking my body is super sensitive to the high dose and I need to cut it back and take on a daily basis. Any thoughts out there?

Hi I'm only 30 years old and I have very low vitamin D. My Dr prescribed 50,000 units of vitamin D to be taken once weekly for 12 weeks. I'm very worried.

I've had a diagnosis of Myasthenia Gravis (extreme muscle weakness, including eyelids) and fibromyalgia and have felt terrible for the last 10 years, not able to work. I was just tested yesterday for Vit. D - and was at 16. I've started dosage once a week for 6 weeks. My questions to other bloggers: To those who went through the supplemental dosages, DO YOU FEEL BETTER?

My doctor put me on 50000 units of vitamin D. I only have 1 kidney, 1 tab. weekly for 12 weeks. Are there any side effects taking this vitamin? Thanks

There are two forms of Vitamin D. D2 (Ergocalciferol) is a synthetic form which the body has to convert to be used. Taking too much can be toxic. D3 (cholecalciiferol), a more natural form, is not toxic and large doses are beneficial. 50,000 IU per week is not a huge dose and will not cause toxic effects.

I hope posting links is not a problem. If it is, I apologize ahead of time:

http://www.vitamindcouncil.org/vitaminDToxicity.shtml

http://survivethejourney.blogspot.com/2008/12/vitamin-d-normal-isnt-normal-anymore.html

(responding to JL) I started to get severe lower back pain on & off during my last 2 months of my pregnancy it stopped after the baby was born. I breastfed him for 13 months & started to have lower back pain the 3 month breastfeeding. It came & went but got to be more often as time was going on & then about the 6th month I started to get pain in one my knees & teeth off & on. I got diagnosed with a vitamin d deficiency of 27 2 months after I stopped breastfeeding him. Now I'm having even more pains since starting the higher doses of vitamin d.

I'm a 37 yr old female. I was diagnosed with a vitamin D deficiency 6 wks ago. I seen a endocrinologists because I was having a lot bone pain in my lower back when I was breastfeeding my baby. Since I started taking the Vitamin D in high dosages I have been feeling nausea, fatigued, trouble sleeping, & more bone pain in other bones. All these symptoms seem to be slowly decreasing as the weeks go by. My Endo doctor said it may take 3 or 4 months until I'm really feeling good. I think he may be right. I just wish he would have warned me that I was going to feel worse before I feel better so I wouldn't of freaked out when I first was getting these symptoms.

My doctor prescribed to me Vitamin-D 50,000. I was wondering if that was a high dosage? I am only 30.

I too been diagnosed with a Vitamin D deficiency my levels are only at a 9.2 at age 49 years old.

I had been feeling so achy and pain in muscle and joints for awhile just seem like it was getting worse. Since then I've been placed on the Vitamin D at 50,000 units (as of tomorrow for 1 month). Seems like it's slightly better but at times I do feel the same way as before taking it and other ways worse.

I started to get more swollen ankles, now not sure if this is another side effect on taking the Vitamin D or not, has anyone else got swollen ankles from taking the Vitamin D?

I am taking 50,000 iu of Vit D once a week. Also, I am trying to get pregnant. Could this be dangerous for me or the baby if I get pregnant? My prenatal vitamins have 400 iu, I have not started them yet. Can I start them on top of the Vit D I am taking ( which is over 7000 units per day). How much more can I safely take per day to insure the safety of me and the baby. Thanks

I am 46 and my doctor put me on 50,000 iu of Vitamin D once a week. My level is 7 and she wants me to be at 40. I did not notice any difference of how I felt until about the 6th week of taking the vitamin. I used to sit on the couch all evening looking at what needed to be picked up/cleaned, now my house is spotless and it has been that way for 2 weeks...I feel great and look forward to how I will feel once my levels are normal.

I am 46 and was told that my vitamin d level was 21 back in July of 08. My GYN told me to take 50,000 iu of vitamin d once a week for 8 weeks and then had more blood drawn. I am stubborn and basically didn't do it. I have osteopenia (for about 3 years now). My bond scans aren't getting worse really but aren't getting better either.

I didn't start on calcium either b/c of the way it made my stomach cramp. So, to make a long story short I had more labs drawn in July of 09 and told again my level is very low. Now, I started on the 50,000 iu once a week for 8 weeks. I have only taken one pill. I was scared in the past to take it. It just sounded way too high of a dose. But, I'm tired of my legs hurting.

I'm tired of not feeling good 90% of the time. My bones even hurt! So, maybe the low vitamin d is the reason why I have felt the way I have felt. My husband said if we took to heart everything we read about side effects from pills that we shouldn't EVER take any sort of pill. Basically? He was telling me to listen to my doctor and have a relationship with him about side effects or concerns. I've learned that the hard way. I probably should have listed to him a year ago.

My friend had gastric bypass and was losing her hair. The doc prescribed 50,000 IU's of Vitamin D twice a week. Her hair is growing back and her nails look fantastic.

I also have anemia and a vitamin D deficiency. I'm experiencing hair loss. The hematologist said my ferritin level needs to be close to 100, and the hair loss/brittle nails would stop. It hasn't. I recently found out about the Vitamin D deficiency. The doc prescribed 50,000 iu's of vitamin d once a week. This is the first week. A friend who had vitamin D def. reported she was taking essential fatty acids daily and vitamin d weekly. She's reported a huge improvement in her thinning hair and brittle nails. Has anyone else had a similar experience?

My vitamin D level was 8, with a high PTH, and growth hormone deficiency. My Dr placed me on 1000 iu Vit D daily to see if that will have an affect on the PTH and growth hormone (guess we need this even at 62 yo). I went to the endo b/c my hair is falling out, bones hurt, no energy, weight gain mostly in trunk and pesky kidney stones (which prevent me from taking calcium). I'm hoping this helps - just started. Has anyone had a high PTH (parathyroid hormone) with vit D deficiency?

From my readings from the Vitamin D Council, I am told that D3, cholecalciferol, is the type of supplemental D that should be used, not D2, Ergocalciferol.

47. I was tested by my doctor end of May. My level was 20. No apparent signs of deficiency on my part. Took 800 iu a day and tested at the beginning of July. It went up to 22. Took 1100 iu a day for two months after that. Just recently tested and the level was just 25, and I was out in the sun more this summer. So my doctor prescribed the 50,000 units once a week for 12 weeks in addition to the 1000 units a day. I'm hoping I will notice a difference.

Thanks for everyone's insights. Tomorrow I will pick up the 50,000 vitamin D. Hopefully, it will help me recover. Your statements have been useful and comforting.

My 16 year old daughter was recently diagnosed with Vitamin D deficiency (her current Vitamin D level is 9). She is very small (weighs on 94 pounds...height 5'1"). The doctor prescribed 50000 units of Vitamin D to be taken 1 x per week for 8 weeks. I am afraid that the high dosage may cause harm (due to her age and size). I have not filled the Rx yet; however, I will fill it this weekend. All of the information that I have read regarding dosage and side effects has been for older people. I am aware of the dangers of my daughter's low level (9), so intervention is imperative.
Any feed back that I receive will be greatly appreciated.

Thanks so much for all of your comments. Has anyone had any side effects from this high dose? I was really afraid to take the high dose of Vit D my doctor prescribed after having a level of 24.6 He told me to take 50000IU once a week for 3 months then once a month for 3 months with a new blood test in 6 months. I guess I'll try it, since some say it helped them. I'm 57, not yet menopausal (I know - it's weird - even my GYN thinks it's amazing). I don't think I have symptoms, but maybe I do and don't realize it.

I have backache and what I thought was normal aches and pains for 57 y.o. I wonder if the numbness in arms when I sleep has anything to do with this? Anyway, I'll take my first 50000 tomorrow. I would appreciate any feedback about side effects.

Thank you for your comment. I too just started taking the 50,000 IU of vit D. I took the Pill this AM, after doing so, I wanted to look it up on the internet, and I found this page. Was not too sure about what I just took, and now I was scared I was going to get cramps, sick or something. It is now early afternoon of the same day I started by Vit D, and so FAR, no problems. Thanks for your post. It relieved my fears. And my Doc told me I should start feeling a lot better. I trust my Doctor with my life... My test results were a 10, which is VERY low for a 52 year old women. Anyway, Thanks for the positive post!!

After taking the 50,000 IU of vitamin D once a week for 8 weeks my levels came up and I actually felt better. My bones didn't "ache" like they did and now I'm on a maintenance level of 1000 IU every day along with calcium. I was extremely fearful of taking this much but it was okay and now I do feel better than my vitamin D level is up. I would suggest to anyone having to do this to make sure after you take it for the recommended time to make sure you get on a maintenance dose and stick with it. Make sure you take the calcium as well; just get the straight calcium tablets and not the one with D in it. Hope this helps anyone out there!

I'm 18. most of the stuff I've seen so far about vit d problems happens when you're older. My doctor has me on 50,000 IU dose ergocalciferol once a week for eight weeks. All the doctor told me was my vit d was very low. I don't know how concerned I should be about my health?

I was diagnosed a couple of days ago with a vit. d level of 9. For the past three years I have been treated for fibromyalgia, tested for MS, told I had early osteoprosis and lived my life in an exhausted state and in pain on most days. My thinking is foggy at times and my ability to concentrate is almost nonexistent.

Thyroid problems run in my family so when I first went to the DR. I asked them to test mine. They state my levels are in the upper ranges of normal. I had a colonoscopy and they found celiac sprue so I then endured a endoscopy and they said that was normal.

I have IBS and when I eat anything with any grease I gotta go right then.
I had a complete hysterectomy 5 yrs ago and ended up having 4 more surgeries in the following 8 months, one to remove my gallbladder and 3 to remove adhesions from my intestines. The adhesions are back but they ain't cutting me again if I can help it.

One other symptom is that I have had a "green" (runs from a bright color like a mt. dew bottle to almost a blackish green) drainage from both breasts. I am 44 yrs old.
My Dr. has put me on 50000 units of D twice a week.

I have noticed today that I have not felt quit so exhausted today but still by no means have I felt perky. My pharmacist said it would take 3 to 4 doses before I really started to feel the benefits. I have to be retested in 4 months.

God I just hope to receive enough help to get through a day and feel half way normal at the end of that day.
Any suggestions anyone.

I am 42 years old. Just had my results back from my doctor (endo) and it said they were to0 low (6.9), was prescribed 50,000 units, 2pills a week for 6wks and one a week for eight. Took the pill on Sunday (Tuesday now) no side effects, not sure if I am going to take two pills a week.

I going to wait to take the two pills until a month go by ( I am concerned about the side effects, my luck I always get some weird side effects).

I had blood work done and my vitamin d levels were very low. My Dr put me on 50,000 units 1x a week fro 8 weeks, then repeat blood work. I took the first pill around 12:00 on a Friday afternoon and by 4:00 I was in bed sick and ended up at the hospital with severe headache, chills, sick stomach, shaky. We don't know if the high dose of vitamin D caused this and will be calling the Dr on Monday.

I am too. Did you ever get through it where the D helped you?

I have the same low vitamin D and been given 50,000IU 2x weekly. I have taken the 2nd dose and I am so tired I cannot even function. Will this go away or is something wrong? I do not want to do anything but sleep!

I was diagnosed one month ago with a vitamin d level of 9. After one month and the fatigue still there, my doctor will not test me again until next month. I have more then one doctor, so I will get another to do this test. I have Crohn's Disease, GERD, Interstital Cystitis, IBS and a hiatal hernia. No gall bladder and knee surgery a year ago. The one thing that got me was when he was removing some moles off my back, he kept on about the d level and that it could be associated with any type of disease, especially cancer. I have been through enough, I truly hope I don't have to go through this now. BTW I am on 50,000 units 1x a week.

I was wondering if you were feeling better yet. I just had a vitamin d3 injection of 400,000 IU on Friday for my deficiency. I am still as tired and weak.

I just took my dose of Vit. D 50,000 units last Monday for low Vit. D level of 12. have been nauseated, weak, increase in thirst, increase in urination, no appetite and ended up in emergency room for palpation's that was the last dose I take I did not feel well. Not sure if this was the cause? Wondering when I will feel better.

50,000 D2 is a standard prescription for D deficiency and is not dangerous. D3 is actually about twice as potent as D2 so 25,000 of D3 is pretty much the same as 50,000 D2. D2 is not a bad form of D, it just comes from plants.

50,000 D2 is a standard prescription for D deficiency and is not dangerous. D3 is actually about twice as potent as D2 so 25,000 of D3 is pretty much the same as 50,000 D2. D2 is not a bad form of D, it just comes from plants.

PEOPLE'S PHARMACY RESPONSE: TO LEARN MORE ABOUT THIS, CHECK THE JOURNAL OF CLINICAL ENDOCRINOLOGY AND METABOLISM: http://jcem.endojournals.org/cgi/content/full/89/11/5387

I'm 48 year old female. I just took my vit.D 50,000 for the first day no side effect. My body aches and bone pain, no wonder why. Really I complain about my feet hurting all time and leg. My vit D level was low. This is very interesting.

I'm 51 I'm taking my first vit.D 50,000E today, and 1000 vit.D OTC twice a day. Is that to much? Tested 15. Going to be tested again in 3 months.

Well I'm back on the Vit. D at 50,000 units once a week for three months. Last summer was the first time they found I had a low Vit. D level at 9.2.

I haven't been healing right with my foot and been started having aches. I asked one of my doctors to run a test for it, all they said was it was done last Nov. and was within normal range so this doctor didn't run it.

Then I went to see my primary doctor he ran the test and found my Vit. D level was at 21. All I know is I feel it when I drop the signs are there.

Then my primary doctor was going to put me on just a simple Vit. D at 2000 units a day but I didn't go for it... I asked for the same kind I was on last summer the 50,000 units. It's amazing how well I started to feel a month after taking it.

I just wonder why it has been dropping after I stop taking it... I'm 50 years young.

Hey, I was diagnosed with low Vit D level and was put on 50,000 IU of Vitamin D and I have been experiencing pain in my stomach and nauseated feeling.

Will this change anytime soon? I am not really concerned about the amount as much as I am about the side affects. Because we need Vitamin D for many things however, I just would like to know what to expect from the dosage.

I appreciate all of you sharing your results, as it has been helpful to me personally. I am 39 years of age and I have major aches in my joints, arms , hands, feet etc. Although I have a clean bill of health my Vitamin D was a 10 so that is extremely low.
Thanks again for any advice you could pass along to help me in my situation.

My vitamin D level was found to be low at 15. A nephrologist told me to take 50,000 i.u. of prescription Vit. D once a week, for 4 wks. The second week I was urinating constantly, this Wed, (the 3rd week), I got diarrhea, VERY HIGH BLOOD PRESSURE (I already have high blood pressure, waves of nausea, extreme thirst, a lot of urination). I called the prescribing Dr.'s emergency line that night, and all he could say is "stop taking it"!!! Well, No kidding, I ALREADY took it!

My fear now is AM I TOXIC FROM IT? I'm extremely hypersensitive to all drugs, and I always tell all Drs. I see this, but THEY DON'T LISTEN!!

He took no responsibility for it whatsoever! The next day when my blood pressure was up to 180/113, I called his office and asked if I should go to ER? He had the nerve to say No, just keep monitoring it!! I drove myself to ER anyway. They were not much better there either! IT SEEMS TO ME NOBODY KNOWS HOW TO TREAT VITAMIN D TOXICITY! This is not the first time Drs. really caused me to have life threatening conditions due to their malpractice!!! I have to become my own Dr. and do my own research!@!

They checked my Vit. D. level at the ER, (really nasty people over there), but the results won't be in for days. It is now 4 days after I took that 50,000 iu toxic dose, and I'm still having symptoms FROM THE MEGA DOSE OF VIT. D OF EXTREME NERVOUSNESS, DIARRHEA, URINATING A LOT, EXTREME THIRST. I am trying to drink a lot of water also, but I think it's TOO LATE! DO NOT TAKE CALCIUM AFTER TAKING MEGA DOSES OF VITAMIN D! IT'S DANGEROUS! I called Poison Control Center and they told me I have all the symptoms of Vitamin D toxicity! Now the Dr. who prescribed it, doesn't care! He's probably afraid I'll sue him !

Very important to have your blood calcium levels tested too if you suspect you've been overdosed! I don't know what else to do, except pray! Poison Control told me it could take 2 MONTHS of these horrible symptoms to disappear since Vitamin D is stored in your liver and fat!!!! SO MANY INCOMPETENT DRS. OUT THERE! LISTEN TO YOURSELF!!! I KNEW IT WAS TOO HIGH A DOSE FOR SOMEONE LIKE ME WHO IS VERY HYPERSENSITIVE TO DRUGS, BUT HE CONVINCED ME I WAS SO LOW, IT WAS VERY SAFE!

I have been reading everyone's comments with great interest, as well as researching Vitamin D deficiency since being told by my Nurse Practitioner that my Vit D level is 20. Like many others I will begin a regimen of 50,000 IU for the next twelve weeks. First I'd like to say that I feel somewhat ignorant in that I never realized the importance of Vit D or its relation to calcium. I am a fifty year old female who has experienced several of the ailments associated with this deficiency.

In the past two years I feel like I aged two decades, which was out of character because I had always felt younger than my years. All of a sudden I was experiencing pain in my wrists, hips, bones in my feet and calves, as well as chronic headaches, dizziness, problems with vision, severe fatigue (no matter how much I slept), insomnia, anxiety, depression, and increased weight gain in my mid section.

In addition I was found to be in the beginning stages of osteopenia, with minimal bone density loss in my hip region. I was beginning to think I was losing my mind, becoming a hypochondriac, or just plain falling apart. If I felt like this at fifty, I certainly wasn't looking forward to seventy or eighty! I was quite concerned when I picked my prescription up today to find that I'd be taking such a high dosage, but now after reading how much better so many of you have felt after improved Vit D levels, I am actually looking forward to taking my first capsule.

I will wait until tomorrow (my days off) just in case I do experience any of the side effects that I've been reading about. By the way, I work the night shift and get very little sun exposure (go figure). I am now telling all my coworkers to have their Vitamin D levels tested ASAP. I'm also passing this information on to my adult children in the hope that they will have a head start in avoiding or addressing any deficiency they may have in this area.

Nope, drinking milk is not enough if your vitamin D is low. I have drank milk, ate yogurt and cheese everyday of my life and am still vitamin D deficient. I was surprised because at 48yo I was already taking 2000iu a day and still tested low. I have taken 50,000iu once a week and just last week the Dr said we'd bump me up to 2 a week. I've had type 1 diabetes since I was 9yo and have other autoimmune problems.

I have a lot of muscle and joint pain and I am tired all the time. I had a blood test and it came back and was put on 50000 twice a week. I am 45 yrs old. I sure hope this helps me. This pain is terrible.

Did the vitamin D help you?

I have been on 50.000 units vitamin d-3 twice a week, I have asked doctor if it's not too much, but he said no. Only thing I feel is my legs feel heavy sometime. I am wondering should I cut down and see? Anyone have that problem?

What medicine did you mean when you said your doctor told you that because of these medicines you had the problem?

I am wondering because my doctor also told me that I needed vitamin D so he prescribed 50.000iu one a week, did that medicine cause your problem?
Just wondering.

Hi. I don't know if anyone else has these symptoms...brain fog, knees pop and hurt, extreme back pain with it being so bad at night, I can't sleep and very severe itching skin! The itching also keeps me awake. It feels like itching and sometimes even biting! I have a vit d level of 14 and have just been told the same as pretty much everyone else...50,000/1xweek. I know I have read about the bone and back pain, but what about the severe itching?? Anyone?

I have been diagnosed with a vitamin D deficiency and being treated with 50000 units weekly. I am relieved that finally my symptoms have a cause. I am 39 years old and have aches and pains almost all of the time. I am also fatigued, no matter how much rest I get I am tired. I have taken my first pill and am hoping that I will see improvements in the next few weeks. My vitamin D level was 9 and my Dr. said it was as low as he has seen in awhile.

I trust him to take care of me. He called me on a Saturday because he was concerned with my low levels. I don't know many doctors that would do that. He also called the prescription in to the pharmacy so I would have it asap. I have 10 weeks of the 50000 units then take 2000 units daily of over the counter supplements. In three months I will be retested. Hopefully I will feel like a new person in a couple of weeks.

N.E., You asked if there may be side effects from taking large doses of Vit D. I knew that megadoses of Vit D could be toxic, but I didn't know that excessive Vitamin D also can be a factor in developing kidney stones. However, I recently developed a kidney stone and discovered the link between Vit D and kidney stones. Prior to the kidney stone, I was taking 2100 units of Vit D a day. This is not considered a megadose but it was 4 times what I had been taking previously. Just a word of caution. I intend to drop back to my previous Vit D levels.

Maybe we're not all as lucky as you!

One cup contains 100iu of D, depending on what part of the country you live in and how much you go outside and the angle of the sun will give you the answer to how much vitamin d you need.

I was diagnosed as having low Vit D in April 2010, but then found out I had a menengioma and had to have surgery early June, so I never got to start the Dr. recommended dose of 2000 units/day till about July when I went back to see my PCP.

I had no major issues with the dose in the beginning, but after the second week, I was feeling weaker then was the norm at the time and so very nauseous that even the sight of water turned my stomach. I thought it was the anti seizure meds, but I had been on them since early May and never had those issues and then realized the only thing I changed was the additional Vit. D.

So I stopped 2000/day and dropped to 2000 every two days (couldn't return the vits and I didn't have the $ to buy 1000iu) and the worst of the symptoms went away. Had an updated test mid Sept, but my numbers had not changed much and my PCP was worried, so I told her I'd try again with the daily dosing. This time I haven't had the same problems, I am losing some needed weight, but not because of extreme aversions to food and water - I just seem to be able to control my urge to splurge better.

This was something I read might happen if I could start to get my numbers higher. I'll go in another month for a re-test, I hope it's rising I can't imagine taking that mega dose everyone's mentioned even just once a wk - I think 2000/day will probably be my limit.

I am 38 years old and the doctor just recently put me on the Vit D pill once a week for 8 weeks. I have just taken my second dose and realized that I felt the same way after taking the first dose. I get chest pain, feel tired really bad headaches and nausea. I keep telling myself that this is for the best but after the dose I took today I am not sure it's worth it. I hate feeling that way. At a loss for what to do.

I am very worried. I am only 28 WITH vit d level of 14. I have just started taking the 50000 f vit d weekly, and I have had a lot of bone pain for a while, also lower lumber spine narrowing of disc space with a lot of pain in back and legs.

PEOPLE'S PHARMACY RESPONSE: CORRECTING YOUR VERY LOW VITAMIN D LEVEL SHOULD HELP YOU FEEL BETTER.

I have been diagnosed with low Vitamin D levels by my rheumatologist. I also have diabetes, osteopenia, atrial fibrillation, obesity, polymyalgia rheumatica, and have in the last 1-1/2 years had total knee replacement and then subsequent repair of that replacement with insertion of a metal rod several inches into my bone. My rheumatologist mailed me a prescription with a note that my Vitamin D levels were low and to take 50,000 IU weekly for 12 weeks and then be retested.

I, too, was very scared to start the dosage as it seemed excessive (my ignorance). I was already on 3 Caltrate tablets which contained 400 IU each 3 times a day. I had also been on Fosamax for 3 years. After a DEXA scan showed no improvement but rather a decline, was taken off of Fosamax and recommended to take Boniva by injection. I have still not made a decision on that. My bone pain for the last 2 years has been almost unbearable even with large doses of painkillers. I have now decided to stop the painkillers and NSAIDs and go with my doctor's recommendations for the Vitamin D.

Reading many of the comments above has given me courage that this maybe is what I have needed for two years. I took my first capsule 3 hours ago on a full stomach and I now am waiting for the side effects. I'm anxious, of course, but I have hope that it is going to help me. I'll post again if I have side effects. At this point I feel very optimistic.

I am 33 years old and was just diagnosed with extremely low Vit D. My level tested a 10. I would never have known that my extreme fatigue, pain and low immunity (I seem to catch colds very easily which then turns to pneumonia) was due to Vit D.

I knew it was part of the bones and teeth, but I didn't know it played such a big part in everything else. The only reason I even had my levels tested was because I was due to have a 3rd surgery on my right ankle. My orthopedist ordered a battery of tests, from EKG's to blood tests. The orthopedist who did my 2nd surgery did not order these tests, so I had no idea about my Vit D level. I thank my recent Dr. for ordering the blood work because it answered a lot of my questions.

I am now on 50,000iu of D once a week as well as a Calcium and D supplement twice a day for the next 6 weeks. I hope it works and I can go back to the person who has energy and who very rarely gets sick. The person I am now is not me.

I took my first 50,000iu Monday and did not have any side effects. I hope the rest of the 6 weeks goes just as well. I was wondering, though, how long it takes for my energy levels to go up and for me to notice a difference in the way I feel? My husband keeps trying to get me to get out of the house, but due to the pain and fatigue, I don't want to do anything but lay around and sleep after work as well as on my days off. How long did it take for everyone to notice a difference?

Hello. I saw this thread about vitamin D deficiency and thought I could ask of your opinions.

I'm a 23 year old female from UK and was pretty active. Then after moving to the middle east and also having very painful knee problems, I haven't been going out as much. Anyway- I went to the doctors and I had a bloody test for vitamin D which came out at 13. So I was on vit.d supplements for 10 weeks, one a week. Then I retook my blood test, and its become even lower- to 9!

Is this possible? I have made an appointment to talk to my doctor about it, but for now its really making me worry! As my doctor seemed worried on the phone too. Have any of you guys heard of this happening after taking the tablets?

Awaiting your replies!

Tamsin

I am 47 and was just diagnosed with a low level of Vitamin D of 17. I was prescribed 50,000 units for 4 weeks and then was told I would be having to take 1000 units every day from that point forward. I have yet to find out what the reactions are and am worried now after reading so many comments here that I may experience a lot of those same symptoms. I will reply once I experience this. I didn't know a lot about this deficiency and am glad I came across this.

Hi:
I was just wondering if you had any side effects from the 50,000 units?

How was your experience with the 50,000 units of vit D? My doctor just prescribed it for me and I am a little nervous about the large dose. Concerned about the side effects. Any input would be appreciated. Lu

I had no side effects from the 50,000 iu of vitamin D. If anything I got better and didn't have leg cramps anymore. I'm on 1,000 per day now that I take at night along with calcium. I can tell the difference because of the lack of leg cramps. My blood work is within the normal range now. So.... I'm better with what was prescribed.

I had no side effects from the vitamin D. I got better; no more leg cramps. I'm on a maintenance dose now and take 1,000 IU per day at night along with my calcium. My blood levels are within normal range and I am feeling better.

Approx 10 months ago my vitamin D level was checked and the results were

I will be tested again next month. The way I understand it you will not begin to feel the effects of vitamin D until you reach the optimum level. You body has to reach it's "full" level before you can actually use the vitamin D. I am an active person and spend lots of time outside and I do drink milk, eat yogurt, cheese, ice cream and even eat cereal fortified with vitamin D. I am very concerned that it is taking so long for my levels to increase.

I haven't suffered any side effects that I would attribute to the vitamin D itself, but I do know everyone is different. I also suffer from hyper-thyroidism. I had to have a hip replacement 2 years ago due to mal formation of the cartilage. The hip problem has also caused ankle and foot issues on the other leg (compensating for the bad hip). I'm wondering if all of this could be related.

I am 44 years old and live in Oklahoma and do get plenty of sun and in the past have been very active. All of these issues make me feel like I have aged tremendously in the past 5 years. I also wonder how long my vitamin D level has been low because I have suffered from insomnia, depression and fatigue for years.

Maybe my story will help someone and I'm looking for input from you too!

Thanks!

Hi
I am 25 and consulted my doctor regarding the constant fatigue and drowsiness problem, she got me tested for vitamin d levels. my vitamin d level was 9 last month. My doc prescribed me one osteocare tablet daily and one dose of injection indrop D/ month for 3 months (that means 3 doses in 3 months). Can any one suggest if this is enough? By reading all the comments above I have this feeling that I should be taking more vitamin D.

I was just diagnosed with a Vit D level of * 5 * from a having a full blood screen done. I'm 40 and the rest of my blood work was fine, including glucose, cholesterol, blood pressure, etc).

My doctor did the standard D2 prescription (50,000 1x/week for 12 weeks). After doing a lot of research in various scientific journals, etc I went out and bought high quality D3. Instead of taking 50,000 once a week, I am taking the 10,000 of the D3 every day plus 500mg of Magnesium.

I can pass on what I have learned. Hope it helps!


A ** very important ** component when taking D3 to prevent the side effects is to take it with a quality Magnesium supplement. D3 binds and reacts with Magnesium and if you don't take a supplement with it, the D3 will pull it out of muscles, etc (leading to all the side effects). Many people are Magnesium deficient as it is (from not eating lots of veggies, etc) and so that large Vit D dose is going to make it worse. So, it will really help to add that Magnesium supplement. If you read up on the signs of low Magnesium levels, you will see it mirrors the "side effects of those taking high Vit D." It's really the low magnesium (directly), not the Vit. D, that causing those side effects (muscle aches, stiff joints, headaches, chronic constipation, insomnia, fatigue, etc).

Also, D3 does better if taken with a meal that has a little fat in it. It needs the fat to facilitate a better absorption. So, don't drink it with skim milk, for example.

These 3 things (using D3 instead of D2, add a magnesium supplement, and a bit of fat) will increase your Vit D levels faster.

A few notes on Magnesium.

1. First, like Vit D in the D2 or D3 form, there are various forms of magnesium. The cheapest and lowest grade (unfortunately found in most multi-vitamins) is Magnesium oxalate or Oxide. This is the form you want to avoid. There are several other, high grade forms. Do a google search and you can read about the them; lots to chose from.

Note: magnesium stearate will be listed in as an ingredient in most vitamins. This is a very common binding agent in almost ALL vitamins. So, don't confuse that if you see it on the label.


2. I believe the current RDI for regular Magnesium levels (to maintain) is around 400. So, if you have a deficiency or are taking high doses of Vit D, you will need more than that. There are many 500 and up Magnesium supplements out there.

3. You want to start with 500 and even then, might want to break that into 2 doses (morning/night). The reason being that for some people, high magnesium can have a laxative effect. :-)

I started with the 500 single dose and no problems but just to be sure, I started mine on a weekend, so I wasn't at work. If you can tolerate that, you can inch up in 100 increments until you have a level that works without an laxative effects. I don't believe you should take more than 900mg a day. Again, this higher magnesium is for those taking high doses of Vit D for treatment as well.

There are also many high grade magnesium supplements that are time-released so that they will "dispense" over the course of the day and your system is not getting a huge hit all at once.


Hope this info helps! I just started my Vit D and will be curious to get it re-tested. My level 5 was the lowest my doctor said she had ever seen personally. There are lower levels, down to nothing but it's pretty low. After reading all the symptoms of low Vit D, I could practically go down the list and check them off. I just was attributing them to stress and other things (hair loss, very dry skin, head aches, fatigue, insomnia, weight gain, heart palpitations, mental fog, etc). It makes what has gone on these past 2-3 years make so much more sense!

She said "You don't get down to a level 5 overnight" and this has been going on for awhile probably.

So, I am excited to start this Vit D regimen and look forward to feeling better soon!

PEOPLE'S PHARMACY RESPONSE: WE HOPE YOUR SOLUTION WILL HAVE YOU FEELING BETTER SOON!

WITH RESPECT TO MAGNESIUM, PEOPLE WITH KIDNEY PROBLEMS NEED TO AVOID SUPPLEMENTAL MAGNESIUM.

WE HAVE RECENTLY LEARNED THAT PPIS LIKE PRILOSEC OR NEXIUM CAN DEPLETE MAGNESIUM, SO THAT IS SOMETHING ELSE TO CONSIDER.

PEOPLE STARTING MAGNESIUM SUPPLEMENTATION SHOULD KEEP YOUR WARNING IN MIND: IT DOES HAVE A LAXATIVE EFFECT. THAT EFFECT WILL KICK IN AT DIFFERENT DOSES FOR DIFFERENT PEOPLE.

Just diagnosed with low vitamin D levels so doc prescribed 50,000IU 1 tab 1 x week for 3 months. All other blood tests results were good. As per Rachel above, experienced all the same things i.e. fatigue, headaches, acne - biggest worry was "fuzzy" head and weight gain. This was driving me crazy as I have an extremely health diet and work out at the gym 5 days p/w for approx 1 1/2 hrs at a time. Gained approx 25lbs over 6 months and even my doctor was surprised so really hoping the pills work to get me back to some sort of normality.

Took my first pill yesterday and so far, no side effects. I also take other vitamins and have done so for the last few months to include fish oil, cranberry, zinc, vit c and green tea. Does anyone know if this will interfere with the 50k IU tab???

PEOPLE'S PHARMACY RESPONSE: NONE OF THOSE SHOULD INTERFERE.

I am 20 yrs old and my doctor just informed me that my vitamin is extremely low and prescribed me 50,000 units of vitamin D! I am a little worried about it.

I am 20 yrs old and my doctor just informed me that my vitamin is extremely low and prescribed me 50,000 units of vitamin D! I am a little worried about it.

PEOPLE'S PHARMACY RESPONSE: THIS IS THE USUAL WEEKLY DOSE TO REPLENISH VERY LOW VITAMIN D. YOU SHOULD FEEL GOOD WHEN THE LEVEL IS UP TO WHERE IT OUGHT TO BE.

Just diagnosed with low vitamin D and took my first 50,000 IU pill. Woke up with my knees on fire, then found this website after searching for side effects of Vitamin D pills. I just wish I had found this site, and learned of my vitamin D levels BEFORE all of the joint pain, knee surgeries and the Crohn's Disease that I now have. Yegads, I wonder how long it took my body to do all that damage to myself since I was low. Thanks for all the wonderful info!

Any side effects of the 50,000 units of Vitamin D?


Hello everyone,

I had my total stomach removed do to gastric cancer in 1998. I found out in 2007 that I had a vitamin D deficiency,-7. Here it is 2011 I am still at a -7. I had problem taking the 50,0000 ui. My body felt funny, my mind was confused and I felt scared all the time. Once I stop taking the vitamins everything stopped. I was taking the Vit,d every two weeks and then once a month.I stop taking the vit, D in 2008.

In April 2011, I started taking Viactiv Calcium plus D. I was told my B12 was good. It's been a month my vit,d is still -7 and my B12 level is 909 and I'm in mentalpause. My body feel like it missing something. I am being treated for my mentalpause. I do workout a lot maybe this has been helping me. I am not in any pain but I have trouble sleeping and no problems eating.

The people who wants to try the Vitamin D try taking it every month or two months. I can tell you this you must stop smoking, drinking alcohol, coffee, tea, pop and chocolates. If you want to try and get help from the Vitamin D, don't read the side effects.

Bertha C. May 1, 2011


What problems can I get from my B12 being this high? What can I do to lower it?

I have been reading the posts and was wondering how long it takes to build up the vitamin D level to within the normal range.. My blood tested at 24 last September and I have been taking 2000 IU (D3) every day since then.. just had another test and it's now at 30 and my doc says it's "low normal"... and wants me to take more (waiting for his call back to see how much "more" he wants me to take). Does it really take this long for Vitamin D levels to build up in the blood?

Seems like 6 mos time would be long enough to boost up the level by more than from 24-30... and, if I am currently taking way more than the minimum daily requirement, why am I still below normal??

Any comments would be appreciated.

PEOPLE'S PHARMACY RESPONSE: YOU ARE NOT THE ONLY ONE TO REPORT THAT THE RISE IN VITAMIN D LEVELS IN THE BODY HAS BEEN SLOW. IT SEEMS TO VARY FROM ONE PERSON TO ANOTHER.

I too have thyroid disease, Hashimoto's Thyroiditis, to be exact. Regular adjustments to my Armor Thyroid meds have helped me stay well, although the past few months, I have felt tired and very down. I attributed it to depression bc my husband is leaving me.

Anyway, this last trip to my endocrinologist showed that I was vit D deficient. I took the first 50000 iu Vit D3 pill (she wants me to do this once a week for 8 weeks and then once every two weeks thereafter regimen), expecting to feel awesome the next day, as I have read that this much vit d3 is an immediate boost of energy. Instead, I felt really, REALLY tired, I was sweating and I had this nervous, vibrating sensation on the inside of my body and in my limbs and fingers...I also felt like my heart was racing out of me, although my pulse was normal. I had pain that I couldnt explain. Just an achy feeling all over, in various parts of my body...I couldnt pinpoint it in any exact location. I also lost my appetite immediately. Knowing I am not a hypochondriac, I knew something was wrong.

I called my doc and she never returned my phone call. Frustrated, I went to the internet for advice. I couldn't find any of my symptoms on any of the Vit D overdose pages I searched. I was on there for hours, it seemed. Then, finally, one page had my symptoms and it all made sense! It said that people taking any kind of Vit D dosage should piggyback it with Magnesium. Blood tests will reveal the Vit D deficiency but usually not the magnesium deficiency. It said a lot of people have a magnesium deficiency and do not know it. It causes symptoms related to fibromyalgia and others. When we take high or normal dosages of Vit D, whatever magnesium you have in your system at the time, the D binds to it so it can be converted to its active form so that it can be absorbed into the intestine. In other words, NO OR LOW MAGNESIUM, NO or LOW VIT D ABSORPTION. Yikes!

Soooo, I went and bought Magnesium Citrate. I chose the citrate only bc I read it is absorbed well. It is trial and error at this point but at least I am getting SOMEWHERE. I also bought some calcium citrate bc all three go hand in hand.

Conclusion: After taking the Mag Citrate 2 days after I took the 50000 Vit D3 pill, I started feeling better . The vibrating and pain is gone and energy is way up. Still a little stiff in my fingers but I suspect that will go away too, eventually. Now, I just need to make sure my body does not OD on the Vit D3!

I am a 27 yr old 'healthy' male, and my physical just showed really low levels of vitamin D (6.2). My doc was actually surprised to see that in a young male. I to got prescribed 50,000 IU Vitamin D caps to be taken once/week for 3 months. After ignoring to get my prescription for couple of weeks, I finally got it today.

I didn't had any symptoms mentioned here before, and I am now a little concerned if I get any side effects. Lets see.

I too am very concerned about my vitamin d levels:(:( I have been taking vitamin pills 50,000 IU for at least 6months. My vitamin d level was 14 so my doctor put me on this regimen. I have recently been feeling more achy than usual.... I do have fibromyalgia. But this seems different. I have lower back and stiffness. I went back to walking about a week ago. Seem to have felt slightly better. Now I am experiencing heaviness in my knees.... along with numbness and tingling in my legs off and on. I too have a heaviness feeling in forearms.

These last two symptoms have only surfaced the last couple. I am extremely concerned to say the least. I have a strong suspicion that these bizarre symptoms are linked to the vitamin d. I will be awaiting your reply. I need answers.

Back in March of this year my Vitamin D levels were tested because I've had achy muscles and bones for a while now and the results came back as a 16. I was told to take 2,000 ui of Vitamin D for 3 months, at the same time I had an abnormal papsmear and my biopsy came back with CIN 3 severe dysplasia.

At my recheck in May I was up to a 19, but then my RF tests came back a little off but not enough to see a rheumatologist. Now it's been about a week after getting the abnormal cells removed and I've been really fatigued. Went to the doc yesterday and they finally prescribed me 50,000 ui of Vitamin D.

Not really feeling a difference today. No one can seem to tell me if this is all related but I learned that Vitamin D helps get rid of abnormal cells. Anyone else ever experience this? It's been a roller coaster of emotions since March, I just wanna be healthy!

I'm breastfeeding my 11 months old daughter. Doctor gave me VITAMIN D CAP 50000 IU. Before I start please can you suggest me if its okay to take vitamin D cap and in the same time breastfeed my baby?

PEOPLE'S PHARMACY RESPONSE: IT WOULD BE SMART TO CHECK WITH YOUR DAUGHTER'S PEDIATRICIAN BEFORE YOU START. WE'RE NOT SURE ABOUT THIS ONE.

I am a 56 year old woman. I was diagnosed as having very low vit D in Oct 2010. My level was a 7. My symptoms were massive muscle pain, spasms and bone pain, mental confusion, extreme weakness, difficulty in rising from sitting position due to weakness, memory loss & more.

I was seeing a nurse practitioner at the time. She prescribed an oral dose of D3, even though I told her that I had a history of gut malabsorption. I finally convinced her to try sublingual. Went thru a messy phase of trying different pharmacies' concoctions and others not being able to get what she ordered. In the meantime, my D levels were getting ever lower.

I switched to an M.D. (internist) in Mar 2011. He prescribed 50,000 units of D2 once a week. I clipped the top of the liquid-filled capsule and squeezed the liquid inside under my tongue. I held it there for 20 - 30 minutes. At the same time, I started to get outside and slowly working in the yard, thus increasing my sun exposure.

All was going well, although my doc was puzzled why it was taking so long for my levels to rise. He increased my 50,000 D2 dosage to twice weekly. My levels were still low, so he sent me to an endocrinologist to check for low parathyroid function and any other possible endocrine difficulties, like thyroid, calcium levels, etc. (Frankly, my internist seems stumped by it all.) My blood work returned in the normal ranges and the endo said I was healthy, all fine, just take the D2 once a week now.

However, in the mean time, MY HAIR WAS BEGINNING TO COME OUT IN LARGE AMOUNTS. I started treatment with a LOT of hair on my head. My hair texture is fine but the amount of hair growth has always been thick in number. (I'm also convinced that I have been Vit D deficient most of my life. I was allergic to milk & wheat and gluten intolerant. I never ate fish. I had a low D diet. I also had uneven skin tone all of my life - small round white patches in my arms where there is no melanin. These show up more when I've had sun exposure.)

I mentioned the hair loss to both doctors and they were not very interested. They said that it has to be "something else".

Everything I read says that Vitamin D should help hair loss but this is not my case. And now, frankly, I'm puzzled and can't account for it. Am I suffering some kind of weird reverse problem? How does D affect hair follicles and the scalp? Can it affect it negatively? Am I being overdosed?

I now have so much unabated hair loss that I will have to use a wig. I've been preoccupied with a new career but I was shocked when I looked in the mirror this morning and saw my scalp shining through around a few hairs dotted here and there in my bangs. The hair loss is all over my head. I pull out gobs daily that are tickling my shoulders as they come out. This serious hair loss has happened in the last 3 months. I went from having such thick hair that it drew attention to this in 3 months! Something is wrong!

I don't know what to do but to stop taking the D and see if the hair loss stops.

A.M., I see you taking vitamin D2. There are some studies that suggest D3 is 500% more bio-available than D2. In all fairness, Wikipedia states further studies have debunked this. I would ask my doctor about this for clarity...

I am a 42 year old man with severe rheumatoid arthritis--13 years now with both knees and right hip replaced 8 years ago--at the age of 34. Like I said, "severe" :-)

A blood test in February showed I had a vitamin D level of 13. My rheumatologist immediately put me on 50,000 IUs of D3, two times a week for 8 weeks, then reduced it to 50,000 a week. She suggested to me I might be on that high dose for a year or more, and some form of supplementation for the rest of my life. My next test of my D levels will be next month, so I guess I'll see how much an impact all that vit D had.

I asked her about toxicity and she said that at a minimum, someone would have to take 50,000 IUs or more every day for over 6 months to become toxic. So I think you are probably not being overdosed (and in fact, you seem to have been prescribed a similar dose to myself).

I also suspect that it is not the vitamin D supplement causing the hair loss. I've googled "vitamin d causing hair loss" and every page I went to said there has never been a link between vit D and hair loss.

You vitamin D levels are so low, I'd caution against just stopping taking it. If something else is causing the hair loss, further lowering of your vitamin D levels could compound the problem.

It must be frustrating to have these health problems and the doctors can't seem to figure it out. I went through that my first year of having RA because my disease is atypical. Hang in there and maybe try to find a different doctor to specifically address the hair loss.

OMG... since taking Vitamin D2... my LIFE IS SO MUCH BETTER!

43 yrs old. Had so many aches and pains and was SO tired for 10-15 years. I felt old and could have sworn Dr.s were missing something when I have been complaining all this time. I really thought I was dying a slow death.

I took 50,000 units 2x week til my levels came up to about 80 then over the counter D3 2000 units day. I feel 80% better. I'm golfing... doing more with my husband... and even help him mow the lawn!!! I have never done that before. I always felt to tired and achy!!

Didn't have any side effects (and I'm usually allergic to everything)

It's VERY hard to OD on D!! Google it and read many many stories. I'm so happy about feeling better. It is a miracle for me!!

Hi. I was just diagnosed with Vitamin D deficiency as well as acute Lyme disease. I've been feeling fatigued for years, and also experience minor muscle and joint aches, along with occasional shooting pains in my ribs and chest area. I always just felt like I was lazy and unhealthy on account of not exercising daily, along with bad ADD until within the past couple months I began feeling worse than ever. No energy, no drive, complete and utter fatigue along with brain fog (due to being tired constantly).

Thing is though, I'm only 20. And all my life my favorite thing to drink has been milk, along with eating tons of cheese and egg yolks! My doctor had an office receptionist call me yesterday, Friday right before labor day weekend to tell me I have acute Lyme disease and D deficiency and that I have 2 medications being prescribed to pick up: VIT D2 1.25 MG (50,000 UNIT) to take once a week along with Vitamin D pill at 1000iu/day. And for my Lyme disease I've been prescribed doxycycline hyclate 100MG to take twice a day for 21 days.

If anyone could give me some advise I'd much appreciate it. Everything I've been reading about Lyme disease has been scaring the crap outta me.... :(

I'm 17 and was prescribed 50,000 mg of Vitamin D once a week. From what I have read about such an extreme dosage, it seems it is mostly for older people suffering from fatigue and/or arthritis. I'm unsure as to why I would need that much vitamin D. Help?

I have been on 50000 IU of Vit D (D2) daily for over five years now. I feel great and have not had any of the symptoms or side effects which have been noted above. My treatment began under the care of an endocrinologist and has continued under the care of an internist, and now a primary physician.

Very little is known about the benefits of Vitamin D therapy by some of those in the medical field. At this time a new pharmacy questions the justification of my current successful daily use of Vitamin D 50000 IU (D2) having no knowledge of my present or past medical history. I hope that my present physician will see the benefits of my therapy and see to continue it rather than to abruptly withdraw me from it.

I have nothing negative to say about my daily use of 50000 IU Vitamin D2 and I would encourage you to go for it if it has been prescribed for your use. Look at the possible side effects after you have been successful with your experience rather than before.

This post of for those "older" folks diagnosed with the Vit. D deficiency. 60ish lady who has been on 12 weeks of 50,000IU from my doctor and have improved a lot from when I started on this supplement, but does anyone else have a set back from time to time?

Back pain and heavy feeling in back hip area and back and leg spasms, plus some feet pain, but as I said not nearly as bad as before.

Someone wise said, no person knows what this is until you feel it yourself as it sounds so like nothing, oh, you have a vitamin deficiency... tsk tsk... oh well! Thanks for reading. D

Isn't this something--for years I have gone back and forth to doctors with one complaint after another with stomach-headaches back pain and just all around feeling of not feeling well and not getting any real answers. Last year I saw an ortho doctor who has been treating me for fibro and now after requesting the vitamin levels to be done per my daughter the levels were extremely low and now I have been given the prescript for Vit D. same as everyone else BUT I am willing to try anything so I can feel better--too many grandkids to enjoy and have not been able to do so the past couple of years because the condition just kept getting worse. If that doesn't help even the slightest then I will just give up and deal with it. Thanks for listening.

I recently had surgery to have 2 parathyroid glands removed due to low Vit D, high PTH hormone levels and high calcium levels in my blood. I now have no bone pain and am feeling great!

I would be interested in knowing if you have better results with the cholecalciferol. My level is 22 & I just picked up my prescription for the 50,000 IU of ergocalciferol, but I know cholecalciferol is more effective. I was thinking I'd try it for 4-8 weeks, test and then go with the cholecalciferol at 1000-2000 IU and test again. Why is the medical profession so far behind in this all the time?

Hi, I just started taking the Vitamin D3 50,000 IU once a week, after a blood test showed only a level of 14. My hair seems to be coming out by the handfuls, and I just turned 26 (female). The pharmacist said that it couldn't be the vitamin D but I don't know what else would cause that, as it just started when I started the supplements. glad to see I'm not the only one with this problem.

Hi,
I have a very similar situation like yours. I was recently tested with a Vit D level of 10. Was on mega doses of 50,000 ius D2 2xs a week for a month. I went from feeling good some days to just awful. Talked to my doctor to switch to D3 and regulate my doses. She says 2,000 iu's with 1500 calcium. No mag. What kind of mag did you take? You said you D3 Dodd was 10,000 daily, for how long? How long did it take to raise your level? What worked for you?
Thank you,

Personally I think you should always take magnesium with calcium. If you are going to take 1500 mg of calcium a day, you need to split that into at least 3 daily doses of 500 mg. You couuld get very constipated with 1500 mg. Your body can only absorb so much calcium at a time. I only take calcium with magnesium and vitamin D3. Magnesium also can help with constipation problems. I'm only on week 6 of my first 8-week course of vitamin D2 at 50,000 units a week, but I will not continue on this and will only switch over to D3 at around 1000 IU to start and then 2000 if I need it.

Kim,
Could you say what your symptoms were before getting treated with vitamin D? I have weird symptoms that I think are like MS, but my doctor didn't think they quite fit that picture. Then he found my vit D level is at 4.5 and wants me to take 50,000 of vit D once a week, which seems insanely high to me.
Danielle

People's Pharmacy response: 50,000 IU a week is quite a common prescription for someone with vitamin D deficiency.

I simply was found to have a low vitamin D level by accident. I've had MS come up in conversation with MDs twice at different times because of some neurological symptoms I had. These would come and then disappear. I don't think it is MS. You should do research on MS and learn how it is diagnosed if you think you may have it. I am a medical transcriptionist and I can tell you that treating vitamin D deficiency with that 50,000 IU dose of D2 once a week is very common.

I've done research on vitamin D and know that D3 is a better choice at maybe 1000 IU a day to start. You can read comments from people here who had bad reactions to taking such a high dose of D2. I recently read a study that showed the D2 left the body much faster than D3 also. As to serious illnesses like MS and even taking supplements, you really need to work a MD and do your own research. Even though I said that I always take calcium with magnesium and D3, there can be medical reasons not to take magnesium supplements that you need to be aware of.

I just had my Vitamin D levels checked and they came back at 14. My doctor put me on Vitamin D 50,000 units once weekly and get my levels checked again in 6 months. Is this a long time to be on this dosage, and I took my first dose today and I now have diarrhea. Is this normal?

People's Pharmacy response: The prescription is not unusual, though some doctors would check in 2 months rather than 6 months.

We have not been able to learn if diarrhea is a common reaction to this supplement.

I also have low vitamin D. I took it for a couple of months and my number came up, but not high enough. Had I taken it regularly it may well have been up to normal range. I did some reading and found out that those with low levels of Vitamin D have trouble bringing it back up unless taking 5000 IU's daily. That is what I am taking and hopefully it will be within high normal range next bloodtest.

I take Advair daily and Avepro. A few months back I noticed pretty bad hair thinning. At that time I was taking Advair twice a day and Diovan HCT. I had been on Diovan for years but about 4 months prior was put on Diovan HCT...could not take it, that's when the hair loss started. I changed my BP med, cut down on the advair and the thinning stopped, but regrowth has not begun. After reading about low Vitamin D, it is possible that the hair loss was related to that....we'll see.

I was recently diagnosed with a Vitamin-D deficiency and a level of 10. I just started on the 50,000 dosage 2 days ago. Today I had the worst diarrhea episode I have ever had. My stomach hasn't been feeling great since I took the capsule, but I do have a sensitive stomach, so I didn't think much of it. But now, I'm really concerned. I've also had some hip pain. Of course I have no way of knowing if it's because of the Vitamin D prescription or not, but it's certainly making me wonder. I'm going to try and tough it out, but if anyone else had this problem I'd be interested to know if it got better as your system adjusted to the high dosage.

My vit d level was low 9. I am now taking 50000 iu twice a week with no side effects. I take 50000 iu on Sunday and on Wednesday. I am feeling so much better now, no joint pain, no muscle or bone pain.
I feel so good....

If your vit d levels are low, take 50000iu twice a week for 8 weeks and then once a week for 4 weeks. Now I am on maintenance dose of 50000 iu once in two weeks.

Life is good now ... God bless vit d
No side effects for me.

Hello,

I read your post you wrote 3 years ago about vitamin d deficiency and after your treatment from your Dr.
You were find I was wondering how are you doing now I recently was prescribed 50000iu once a week I'm 45 years old and diagnosed with celiac disease do you have any comments?

My level was 11.1 after taking 5000 IU per day for 1 week. My Dr published it to my online chart but left no message for today. I go back in about 2 weeks. Anyone else have this level? Just curious. Anyone else lower? It really begins to explain why I have Avascular Necrosis in many joints. Also explains why they hit on MS sometimes. Please tell me it will get better fast! Thanks a bunch!

I was diagnosed last March for very low vit D, (14). I took the 50,000 of the prescription vit D for 2 goes of 8 weeks. Blood work retested after that it came up to 38 and then again in 8 weeks with more of the script of 50,000vit D... it is up to 46. Doc said to take cal+vit d 600mg every day. I tried that and got so very extremely constipated. Wondering if anyone else uses cal+vit D and has that result.

BTW, I had very bad joint, back, feet, everywhere-pain too like mentioned above, before diagnosed, and sometimes it got worse on the script of Vit D and then the sun came out in my body and the pains began to go away. After a year I do feel like a new person, however, still not where I want to be, but so very much better. So, if you are just starting out with this treatment , do keep on keeping on... it will get better, as this is a serious and very odd deficiency.

It does play with your mind as well as body. I did also get anxiety attacks, with all the symptoms plus the pain everywhere and then a zing down the arm or leg every now and then rather often. The anxiety now is way down and I am responding rather normally to worrisome thoughts or excitement, which was just as bad as the pain, at least for me. I was a low key personality and went with the flow, being mostly in the present and satisfied with the present situations, or calmly get busy and set up a plan to change it.

Best of luck with this process and do hang in there it will get better. As you get more energy do make it a point to step outdoors and get some exercise if just walking a bit as well as great balanced diet and faith. drgf

Thank you, drgf. I was diagnosed with a VitD level of 17 last Monday and feeling hopeless. You gave me hope.

Your problem sounds so similar to mine! Anxiety attacks and all. Since I've been taking the 50,000/wk (it's been about 6-7 weeks) I feel so much better. So much more energy! I was sleeping so much, couldn't lose weight, I've lost 10 pounds! :) My Vit D levels were VERY low, I don't have the test results with me, but my doctor was shocked how low they were at age 39.
Amazing how much something you would never think of could change so much in your life!

First you need to know if the doctor prescribed Vitamin D2 or D3.

I had blood work done last year and this year, never really paid attention to as how much in vitamin D he gave me last year but he just recently (today) put me on 50,000iu twice a month and I don't go back till October but I got to go get blood work done again a week before that appointment, I drink a lot of milk myself plus I take multivitamins with minerals every day plus fibromyalgia runs in my mom's family and I have had it on and off the last couple years so in 4 month's we will see how it is then, I also try to eat a lot of veggies and fruits when the money situation permit's, that is why I have a big garden.

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